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Fury over black market for disabled parking permits

<p>An investigation has uncovered a rise in the black market for disabled and mobility permits on online classified sites.</p> <p>According to motoring news outlet <a href="https://www.drive.com.au/caradvice/outrage-after-disabled-parking-permits-spotted-for-sale-online/" target="_blank" rel="noopener"><em>Drive</em></a>, some users around Australia are using Facebook and other social media outlets to sell their unused mobility parking permits to give other drivers unauthorised access to disabled parking spots.</p> <p>The publication unearthed one permit for sale in Sydney was priced at $500 and valid until 2028.</p> <p>The permit was equipped with the holder, photo ID, and a description stating the buyer will get free unmetered parking and that the permit is valid Australia-wide.</p> <p>A spokesperson for Transport NSW told <em>Drive</em> this practice is illegal and carries large fines for both the purchaser and seller, adding that the permit holder is subject to cancellation for misuse.</p> <p>“The sale of mobility parking permits online is illegal, and Transport for NSW urges anyone who is aware of this happening to report it to NSW Police," the spokesperson said. “These permits are reserved only for people with permanent or temporary mobility challenges as assessed by a medical professional."</p> <p>“The regulatory penalty for misuse of a permit is currently a penalty notice of $818 or a maximum court-imposed penalty of $2200 under the Road Transport (General) Regulation 2021. This includes ‘permitting another person to have possession of it’.”</p> <p>A spokesperson for the Department of Social Services Australia went on to stress the importance of not buying a mobility parking permit if you are not legally entitled to one.</p> <p>“Australia’s Disability Strategy recognises that people with disability should be supported to live more accessible and connected lives within their communities, including being able to fully participate in social, recreational, and cultural events," the spokesperson said.</p> <p>“The inappropriate use of accessible parking spaces can negatively impact people with disability.”</p> <p><em>Image credits: Drive / Facebook</em></p>

Legal

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"Felt like a criminal": Mother and disabled son "kicked out" of Pink concert

<p>A distraught mother has taken to social media to recall the moment her and her seven-year-old son, who has Down syndrome, were asked to leave a concert venue. </p> <p>Vanessa Vasey, 48, spent over $1,000 to take her son Jesse to see Pink in London during her UK stadium tour, but when the pair arrived at the venue, things took a turn. </p> <p>Jesse struggled to stay still in his seat and was soon surrounded by "six security guards" who ordered the disabled boy to sit down, otherwise they would have to leave.</p> <p>She said she tried to explain her son’s condition to the guards but they ended up being “escorted from the premises” just as Pink took to the stage.</p> <p>On Facebook, Vasey wrote in detail about what happened, saying her son had been “robbed” of a special experience.</p> <p>“Music is his life and Pink is one of his absolute favourites,” she wrote.</p> <p>“We successfully saw her perform at BST Hyde Park last year and were thrilled to learn of her return again this year.”</p> <p>Vasey said she purchased more expensive “hospitality tickets” allowing people to move between bars and food outlets during the night “so that Jesse wouldn’t be pressured into remaining in one seat all night, as he gets overwhelmed in busy environments and finds it hard to sit still.”</p> <p>“We spent some time in the bar leading up to the main act, and Jesse was having a wonderful time, until about 45 minutes before Pink was due to come on, they suddenly shut all the blinds, obstructing us from seeing anything,” she wrote.</p> <p>“I tried to consult with the hospitality managers over this, and explained Jesse’s needs, but they wouldn’t budge on it. So not wanting Jesse to stare at a blind all night, we attempted to go into the seating zone."</p> <p>“We couldn’t get him to sit in his seat, but he was happy dancing and singing at the front railings, and even interacting with some of the other guests."</p> <p>“Doing no harm to anyone, or obstructing anyone’s view. This seemed OK for about half an hour or so. Then ... just as Pink dropped from the sky in her opening number, we had six security guards come into the zone and ask us to leave or sit in our seats.”</p> <p>Vasey said the security guards were “abrupt, intimidating and unpleasant”, as they "tried to force us to take Jesse to a sensory room which was soundproof, and watch Pink on a screen.” </p> <div> </div> <p>“Something we could do at home, robbing us of the whole experience, as if my son was some sort of inconvenience, and better off shut in a room out of sight.”</p> <p>When Vasey complained to venue staff, she claims that more security guards appeared and they had no choice but to leave. </p> <p>“We were escorted out of the building like criminals and saw no more of the Pink show. Jesse was utterly devastated, and they showed absolutely zero care or understanding."</p> <p>“Shame on you Tottenham Stadium,” she concluded. “My poor boy deserved so much better than this!”</p> <p>After UK media picked up Vasey's story, Tottenham Stadium released a statement explaining their actions. </p> <p>“Following further investigation, we can confirm that Ms Vasey was offered assistance by our Safeguarding and Welfare teams throughout the night to provide Jesse with a comfortable viewing experience, including access to our dedicated Sensory Room,” the statement read.</p> <p>“The offers of assistance were declined by Ms Vasey and the party chose to leave the event.”</p> <p>Vasey was soon set upon by online trolls who condemned her choice to take Jesse to the concert in the first place, to which she issues a lengthy statement about inclusivity and not singling people out for their disabilities. </p> <p>“Why do we take them [to events]? Because, as parents, we have the same dreams and aspirations for our children as any other parent,” she wrote.</p> <p>“We have the same desires to see our children’s faces light up, as any other parent would. Our children are exposed to the same world as other children, and they enjoy the same things."</p> <p>“They have the same likes and desires. The only thing that’s different is their needs, their abilities and their way of accessing their dreams."</p> <p>“Why should these things deny them of fulfilling these dreams and passions? This is meant to be a world of inclusion. So let’s start including!"</p> <p>“That means adapting, understanding, supporting and most importantly; changing the way we deliver these privileges so that they are privileges for all of us, and not just some of us.”</p> <p><em>Image credits: Facebook/Richard Isaac/Shutterstock Editorial </em></p> <div class="hide-print ad-no-notice css-qyun7f-StyledAdUnitWrapper ezkyf1c0" style="box-sizing: border-box; caret-color: #292a33; color: #292a33; font-family: HeyWow, Montserrat, 'Helvetica Neue', Helvetica, Arial, sans-serif; font-size: 15px;"> </div>

Caring

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Disabled man slams Qantas after they damaged his wheelchair

<p>An Australian man has called out Qantas for damaging his wheelchair during a flight, and then offering him a slim compensation package that wouldn't cover the cost of the repair. </p> <p>Queensland wheelchair athlete Timothy Lachlan was travelling from the USA to Sydney when he claims Qantas luggage handlers broke his wheelchair as it was being loaded onto the plane. </p> <p>Like many Australians living with a disability, Lachlan described his wheelchair as "his legs".</p> <p>"This wheelchair is basically my legs — Qantas has basically broken my legs," he told <em>7News</em> of the custom chair he's owned for more than a decade.</p> <p>"If you go up the slightest incline, the chair just tips back."</p> <p>Lachlan now can no longer use the chair and says the saga has cost him work as an occupational therapist. He's currently borrowing a friend's chair to get around and says though he did try to fix his chair, he wasn't able due to the extent of the damage.</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-permalink="https://www.instagram.com/reel/C7Q68PmJYXV/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/C7Q68PmJYXV/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by 7NEWS Queensland (@7newsqueensland)</a></p> </div> </blockquote> <p>He was then locked in a bitter compensation battle with the airline for several months, which resulted in Lachlan being offered a mere $3,500, which he claims won't "even cover a set of wheels", let alone repair the entire chair. </p> <p>As part of the settlement agreement, which was described by Lachlan as a "signed confidential settlement", he claims he was forced to stay quiet about the amount he was offered by the airline. </p> <p>However, instead of staying quiet, he decided to do the opposite and call out the airline, which has taken a large hit to its reputation in recent years.</p> <p>In a statement provided to <em><a href="https://au.news.yahoo.com/qantas-offers-disabled-aussie-3500-to-stay-quiet-after-damaging-his-wheelchair-225833471.html" target="_blank" rel="noopener">Yahoo News Australia</a></em>, a Qantas spokesperson said they "sincerely apologise to Mr Lachlan for the damage caused to his wheelchair".</p> <p>"We have offered him compensation and are waiting to hear back," a spokesperson said.</p> <p>Lachlan said he would like the incident to serve as a reminder to Qantas, and airlines in general, to be more respectful when it comes to transporting mobility aids.</p> <p>"I am more than happy to meet with them, I invite the CEO of Qantas to jump in this chair and tell me it doesn't need to be replaced," he said.</p> <p><em>Image credits: 7News</em></p>

Travel Trouble

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Travellers with disability often face discrimination. What should change and how to complain

<p><em><a href="https://theconversation.com/profiles/kelsey-chapman-1345505">Kelsey Chapman</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>; <a href="https://theconversation.com/profiles/elizabeth-kendall-210342">Elizabeth Kendall</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>, and <a href="https://theconversation.com/profiles/lisa-stafford-1505408">Lisa Stafford</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a></em></p> <p>Australia’s former disability discrimination commissioner, Graeme Innes, has settled his dispute <a href="https://www.abc.net.au/news/2024-01-23/adelaide-airport-graeme-innes-disability-discrimination-dispute/103375068">with Adelaide Airport</a>. His complaint to the Human Rights Commission was lodged after being denied access to a body scanner with his assistance dog in <a href="https://graemeinnes.com/2022/05/17/airport-discrimination-dash-i-am-angry-as-hell-and-im-not-going-to-take-it-anymore/">May 2022</a>.</p> <p>Unfortunately, Innes’ experience will resonate widely with Australia’s <a href="https://www.aihw.gov.au/reports/disability/people-with-disability-in-australia/contents/people-with-disability/prevalence-of-disability">4.4 million people with disability</a>.</p> <p>“People with disability know how challenging air travel can be, and that experience needs to be more inclusive,” said Innes, who was disability discrimination commissioner for nine years and is on the board of the <a href="https://www.ndis.gov.au/about-us/governance/board/board-profiles">National Disability Insurance Agency</a>.</p> <p>Experiences like Innes’ have been widely <a href="https://www.theguardian.com/australia-news/2023/feb/03/australias-airlines-and-airports-urged-to-improve-treatment-of-travellers-with-disabilities">reported</a> and have happened to <a href="https://www.smh.com.au/national/graeme-innes-fights-to-change-how-disabled-people-are-treated-when-they-fly-20220516-p5alqs.html">prominent Australians with disability</a>. The everyday experience of air travel is likely even more shocking. Change is happening, but it is moving slowly.</p> <h2>Airport and airline ableism</h2> <p>The Human Rights Commission received more than <a href="https://www.infrastructure.gov.au/sites/default/files/documents/awptor2023-submission-a16-australian-human-rights-commission.pdf">100 disability discrimination complaints against airlines</a> in the six years to 2022, including the period in which COVID restrictions saw air travel severely limited.</p> <p>Issues included:</p> <ul> <li>assistance animal refusals</li> <li>inaccessible facilities</li> <li>inaccessible ticketing arrangements for people with vision impairments</li> <li>taxis and rideshare providers not turning up, long delays or refusing passengers with disability aids and/or assistance animals.</li> </ul> <p>These issues highlight a system underpinned by unchallenged <a href="https://theconversation.com/ableism-and-disablism-how-to-spot-them-and-how-we-can-all-do-better-204541">ableism</a> – discrimination that favours people without disability.</p> <h2>Freedom of movement</h2> <p>An important right under the <a href="https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities/article-20-personal-mobility.html">United Nations Convention on the Rights of Persons with Disabilities</a> is freedom of movement. This right seeks to enable all people to be <a href="https://www.tandfonline.com/doi/full/10.1080/09687599.2023.2203307">included in society in ways they self-determine</a>.</p> <p>Ableism in air travel is a fundamental denial of independence and freedom of movement. Discrimination can be even more blatant and offensive. People have been removed from flights or denied boarding because there are <a href="https://www.infrastructure.gov.au/sites/default/files/documents/awptor2023-submission-a16-australian-human-rights-commission.pdf">limits on the number of wheelchair users who can access an aircraft</a> or because they require additional support to access facilities.</p> <p>People with disability report the removal of, or damage to, <a href="https://www.abc.net.au/news/2023-10-31/virgin-airline-wheelchair-damage-broken-compensation/103010472">personal mobility equipment</a>, and lack of suitable equipment. In the most severe cases, people have been <a href="https://www.9news.com.au/national/australians-with-disabilities-suffer-dehumanising-treatment-at-airports-travel-news/b7de6139-258a-4e86-a615-031eb0e89074">injured during travel</a> or left stranded in dangerous circumstances.</p> <h2>Inconsistency can fuel ableism</h2> <p>Inconsistent policies and practices significantly impact travellers with disability. This is made worse by the fact that individual airlines and airports are encouraged by government to develop their own <a href="https://www.infrastructure.gov.au/infrastructure-transport-vehicles/aviation/aviation-access-forum-aaf/dafp">Disability Access Facilitation Plans</a>.</p> <p>So, it is not surprising when news reports highlight instances of assistance dogs being denied travel <a href="https://www.abc.net.au/news/2023-12-15/jetstar-assistance-dog-policy-criticised/103221894">domestically</a> and <a href="https://www.nytimes.com/2023/08/22/travel/jetblue-service-animal-dot-open-form.html">internationally</a>, even when they’ve <a href="https://www.abc.net.au/news/2023-12-20/qantas-sued-over-assistance-dog/103223736">previously been approved</a> by other airlines.</p> <p>Lack of consistency, negative attitudes, stereotypes and prejudices in the air travel industry have resulted in <a href="https://www.independent.co.uk/travel/singapore-airlines-disability-discrimination-amputee-b2301471.html">reportedly aggressive eviction of passengers</a> with disability from exit rows. Others report being told to “<a href="https://qdn.org.au/wp-content/uploads/2023/06/Voice-of-Queenslanders-with-Disability-report.pdf">catheterise</a>” (to insert a tube through the urethra to the bladder) to avoid needing toilet facilities on an overseas flight. Many people with disability experience situations like Innes’ where they are subjected to alternative, sometimes undignified, processes.</p> <p>Ongoing experiences of ableism not only deny people with disability their rights to travel but can also <a href="https://www.tandfonline.com/doi/full/10.1080/09687599.2023.2203307">damage their dignity</a>. Anticipation of discrimination can increase anxiety and stress for travellers with disability or prevent them travelling altogether.</p> <h2>Slow reform</h2> <p>These stories and many others point to the need for urgent reform.</p> <p>Stories shared by more than 60 participants in a special Disability Royal Commission session prompted its chair to <a href="https://disability.royalcommission.gov.au/news-and-media/media-releases/chair-writes-ceos-airlines-and-airports#:%7E:text=The%20Chair%20of%20the%20Disability,their%20experiences%20with%20air%20travel">write directly to the CEOs</a> of Australian airlines and airports, urging them to work on solutions.<br />The review and modernisation of the <a href="https://www.infrastructure.gov.au/infrastructure-transport-vehicles/transport-accessibility/transport-disability-standards">2002 Disability Standards for Accessible Public Transport</a> along with the upcoming release of the Australian government’s <a href="https://www.infrastructure.gov.au/infrastructure-transport-vehicles/aviation/aviation-white-paper">Aviation White Paper</a> could be key mechanisms to address systemic discrimination. But only if key recommendations from disability organisations and advocacy centres are adopted. They include:</p> <ol> <li> <p><a href="https://www.infrastructure.gov.au/sites/default/files/documents/agp2023-submission-c170-australian-federation-of-disability-organisations-and-national-inclusive-transport-advocacy-network.pdf">specific standards</a> for air travel co-designed with people with disability and representative organisations. <a href="https://www.engineersaustralia.org.au/sites/default/files/2022-04/Universal-Design-for-Transport-TAs-discussion-paper-20220421.pdf">Universal design</a> aims to make products and environments usable by all people, without adaptation. It can play an important role in overcoming the systemic barriers in infrastructure and service design to create more seamless and inclusive transport and air travel experiences</p> </li> <li> <p><a href="https://piac.asn.au/wp-content/uploads/2023/12/PIAC-Submission-to-Aviation-Green-Paper.pdf">reportable and enforceable standards</a> and independent oversight, such as funding the Human Rights Commission to oversee compliance.</p> </li> </ol> <h2>Complaints are just one route</h2> <p>The exclusion of people with disability from seamless airline travel is a violation of their fundamental right to freedom of movement.</p> <p>Decades of travel horror stories in the media, continuing legislative reviews and national enquiries should bring change. Everyone should be able to make journeys with dignity and autonomy. People with disability deserve the same travel privileges as non-disabled Australians.</p> <p>Governments and the aviation industry will need to collaborate to implement comprehensive accessibility measures, ranging from wheelchair-friendly facilities to trained staff capable of providing appropriate assistance. Embracing inclusivity in air travel not only aligns with the principles of equity but also contributes to a society that celebrates diversity.</p> <p>For now, there are a number of ways to raise complaints, including with the individual airline or with the <a href="https://humanrights.gov.au/complaints/make-complaint">Human Rights Commission</a>. Raising complaints with the Human Rights Commission can be completed by anyone who experiences discrimination. Legal support and advice may also be sought from some state-based legal aid organisations.</p> <p>While complaints are one mechanism for change, more proactive methods for change include the disability royal commission’s recommendation for the design and implementation of a <a href="https://teamdsc.com.au/resources/inside-the-disability-royal-commission-s-final-report">Disability Rights Act</a>, which would see human rights enshrined in legislation and facilitate barrier-free travel.<!-- End of code. If you don't see any code above, please get new code from the Advanced tab after you click the republish button. The page counter does not collect any personal data. More info: https://theconversation.com/republishing-guidelines --></p> <p><a href="https://theconversation.com/profiles/kelsey-chapman-1345505"><em>Kelsey Chapman</em></a><em>, Research Fellow Dignity Project, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>; <a href="https://theconversation.com/profiles/elizabeth-kendall-210342">Elizabeth Kendall</a>, Professor, Director, Griffith Inclusive Futures, Griffith University, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>, and <a href="https://theconversation.com/profiles/lisa-stafford-1505408">Lisa Stafford</a>, Adjunct Senior Research Fellow, Inclusive Futures Centre, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a></em></p> <p><em>Image credits: Shutterstock</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/travellers-with-disability-often-face-discrimination-what-should-change-and-how-to-complain-221740">original article</a>.</em></p>

Travel Trouble

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Disabled customer "crushed" by Coles' new smart gate

<p>A customer using a wheelchair has been crushed by Coles' new controversial smart gates, just months after it was rolled out in Aussie stores. </p> <p>The smart gates were added to self-serve check-outs across the country late last year as a security measure against thieves. </p> <p>The gates were installed with a range of other security measures in response to rising theft rates, including "CCTV, electronic article surveillance (EAS), and in some stores new smart gate technology that automatically opens as customers make payment for their products," according to a Coles spokesperson. </p> <p>But on Tuesday a customer, who chose to remain anonymous, said that one of the smart gates “slammed shut” on them and their wheelchair, while they were on their routine shopping trip with their son. </p> <p>After buying a few things the customer said that they were heading to the "wide open" gate, and their son passed through safely. </p> <p>But, when they tried to follow, the gate abruptly closed “hitting” their arms and “crushing” their wheelchair.</p> <p>The gate began to beep and only reopened when the customer pushed their way through. </p> <p>Fortunately, the customer was not injured but wanted to raise awareness on the issue. </p> <p>“I’ll be calling every day until SOMEONE tells me how to avoid being crushed next time,” they said.</p> <p>A few other annoyed customers slammed the "invasive" and "annoying" technology. </p> <p>“One literally snapped shut on our pram as we were pushing our kiddo through,” one person wrote on social media. </p> <p>“I’d walked out the store first, pram and husband following behind. Especially cause they make them too small for you to go side-by-side!</p> <p>“It’s insane, and I refuse to look at any self check out or check out with that in the path.”</p> <p>Another added: “Not long until an elderly person is knocked over by them and breaks their hip or similar." </p> <p>"It’s turning into a jail rather than a supermarket,” a third wrote. </p> <p><em>Image: Getty</em></p> <p> </p>

Legal

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Disabled woman dies after firefighters go to wrong address

<p>A disabled woman has tragically died after being trapped in a burning home while firefighters went to the wrong address in an attempt to save her. </p> <p>Vivianne Rodger, who relies on using a wheelchair, called emergency services after her home in Victoria sparked a fire. </p> <p>She was then left for over two hours as firefighters, who were relying on a paper map, went to the wrong house trying to find her. </p> <p>When they eventually reached Ms Rodger, she was dead. </p> <p>According to a Victorian coroner, the blaze was "clearly avoidable" and she may have survived if they had arrived sooner, with their delayed response being directly linked to her death. </p> <p>The 54-year-old lived alone and was unable to move around independently after suffering a stroke and acquired brain injury, meaning she relied on a wheelchair and needed assistance to get in and out of bed.</p> <p>In the early hours of the morning on January 17th 2019, a service coordinator received a distressed call from the woman who said "my blanket is on fire", but the call was disconnected before more information was taken.</p> <p>Firefighters initially went to the wrong house on Ms Rodger's street, after becoming confused with the street numbers and using Melways, a printed street directory of Melbourne, to find the property.</p> <p>The process at the time was to send the fire station an A4 printout of the fire call with the address and a Melways reference.</p> <p>Fire crews didn't arrive at Ms Rodger's home until 5am, when smoke was billowing out of her home, and the woman was found dead in her bedroom. </p> <p>Coroner Paul Lawrie said the failure to find the correct address was "a missed opportunity to try to rescue Ms Rodger" and she would have had an "improved" chance of surviving if they found her sooner.</p> <p>He found the delays were "significant", "clearly avoidable" and questioned the fire brigade's reliance on Melways maps over a GPS map application.</p> <p>"It is also concerning that reliance on a Melway map may have contributed to the failure to identify the correct property," he wrote.</p> <p>The coroner urged for firetrucks to be equipped with modern navigation technology, and to implement policies, procedures and training to ensure firefighters can better identify the location of a call to prevent further deaths. </p> <p><em>Image credits: Getty Images</em></p>

Caring

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What does a building need to call itself ‘accessible’ – and is that enough?

<p><a href="https://theconversation.com/profiles/ilan-wiesel-303040">Ilan W<em>iesel</em></a><em>, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a> and <a href="https://theconversation.com/profiles/rebecca-bentley-173502">Rebecca Bentley</a>, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a></em></p> <p>The <a href="https://www.ndisreview.gov.au/resources/reports/working-together-deliver-ndis">National Disability Insurance Scheme (NDIS) review</a> and the disability royal commission’s <a href="https://disability.royalcommission.gov.au/system/files/2023-09/Final%20Report%20-%20Volume%207%2C%20Inclusive%20education%2C%20employment%20and%20housing%20-%20Part%20C.pdf">final report</a> both highlighted the crucial role of accessible buildings and homes in ensuring the inclusion of people with disabilities.</p> <p>But the experiences of people with disability show Australia is a very long way from achieving this. There are the stories from people with disability who <a href="https://www.abc.net.au/news/2023-06-25/taylor-swift-concert-disability-access-concerns/102520088">can’t enjoy events</a> or <a href="https://www.abc.net.au/news/2023-03-09/harry-styles-concert-disability-tickets-consumer-rights/102060698">venues</a>. And researchers say even <a href="https://www.unsw.edu.au/arts-design-architecture/our-research/research-impact/case-studies/are-our-accessible-bathrooms-inaccessible-to-people-in-wheelchairs">accessible bathrooms are not usable</a> for half the people with disability.</p> <p>What can be called an accessible building or home? And should standards be improved?</p> <h2>What is accessibility?</h2> <p>The <a href="https://www.ohchr.org/en/instruments-mechanisms/instruments/convention-rights-persons-disabilities">Convention on the Rights of Persons with Disability</a> includes the right to accessibility. Australia’s 1992 <a href="https://humanrights.gov.au/our-work/disability-rights/frequently-asked-questions-access-premises">Disability Discrimination Act</a> includes premises standards to ensure people with disability have “dignified, equitable, cost-effective and reasonably achievable access to buildings, facilities and services”.</p> <p>However, a building is exempt if the owners can demonstrate modifying a building would cause them “unjustifiable hardship”. The burden of making a complaint about an inaccessible building falls on people with disability and the act also does not apply to private homes.</p> <p>Although experts follow different definitions of accessibility, they generally include some key principles:</p> <ul> <li> <p>easy entry and exit into a building</p> </li> <li> <p>easy navigation and functionality in and around the building</p> </li> <li> <p>potential for easy adaptation in response to changing needs of occupants.</p> </li> </ul> <p>An accessible building is one where people of all abilities are able move and carry out activities independently, safely, in comfort and with dignity.</p> <p>For people with disabilities <a href="https://disability.unimelb.edu.au/__data/assets/pdf_file/0010/3969109/Accessible-Housing-Research-Report-22-October-2020.pdf">many buildings are inaccessible</a>. In these buildings, basic everyday activities such as taking a shower or preparing breakfast becomes difficult, tiring, uncomfortable and sometimes dangerous.</p> <p>Some people have been <a href="https://disability.unimelb.edu.au/__data/assets/pdf_file/0010/3969109/Accessible-Housing-Research-Report-22-October-2020.pdf">injured</a> repeatedly in inaccessible homes, for example falling down a staircase. Such injuries may compound their disability. Many people with disabilities worry that if they’re injured at home, they will be forced to move permanently into a nursing home.</p> <p><a href="https://www.sciencedirect.com/science/article/pii/S0016718523001525">Studies</a> have found living in inaccessible homes severely harms the dignity, independence, social inclusion, employment, health and wellbeing of people with disabilities.</p> <p>People become more reliant on family members for support, putting strain on their relationships. Difficulty getting in and out of the house for social activities worsens social isolation. A sense of fatigue also reduces the motivation and capacity to work.</p> <h2>Access through the front door</h2> <p>Dignity is a crucial aspect of accessibility but it is often forgotten. For example, many buildings’ front entry has stairs that make it inaccessible for wheelchair users. There may be an accessible ramp entry in the back of the building. The building is then considered accessible, since wheelchair users can enter and exit. But such a “backdoor treatment” can be experienced as an indignity and discrimination.</p> <p>Accessible toilets are sometimes used for <a href="https://www.sbs.com.au/news/article/most-public-toilets-inaccessible-to-people-with-disabilities/adsx7cnr8">storage, locked or out of order</a>. Again, although the design meets accessibility standards, in practice the building is inaccessible because of poor management.</p> <p>And accessibility is not exclusively about physical disabilities and physical barriers.</p> <p>People with cognitive disabilities, for example, might struggle to find their way in a building if way-finding signs are difficult to understand. <a href="https://theconversation.com/for-people-with-communication-disability-complaining-about-their-treatment-isnt-so-simple-214717">Communication accessibility</a> in building is achieved when the information needed to navigate and use the building is understood by everyone, no matter how they communicate.</p> <h2>Silver, gold and platinum standards</h2> <p>There are different levels of accessibility. In Australia, housing accessibility is most often assessed according to <a href="https://livablehousingaustralia.org.au/wp-content/uploads/2021/02/SLLHA_GuidelinesJuly2017FINAL4.pdf">Livable Housing Australia</a>’s (LHA) three standards of silver, gold and platinum. Silver-level homes have minimal accessibility features, but are designed in a way that enables easy home modifications over time.</p> <p>The silver standard of accessibility requires seven features:</p> <p>• a step-free path of travel from the street or parking area</p> <p>• at least one step-free entrance</p> <p>• internal doors and corridors that allow comfortable movement, including for people using wheelchairs</p> <p>• a toilet on the entry level with easy access</p> <p>• a bathroom with a hobless shower recess, so there isn’t a step-over barrier to entry</p> <p>• reinforced walls around the toilet, shower and bath. These allow installation of grabrails later if needed</p> <p>• stairways designed to reduce the risk of injury and also enable future adaptation.</p> <p>Gold-level homes have additional accessibility features. Platinum homes are designed for people with higher mobility needs and to allow ageing at home.</p> <h2>A patchwork of standards and what the NDIS review says</h2> <p>In 2021 Australian housing ministers <a href="https://www.industry.gov.au/news/building-ministers-meeting-communique-april-2021">agreed for the first time</a> to introduce minimum accessibility standards in the National Construction Code. It followed decades of campaigning by activist groups such as the <a href="https://anuhd.org/">Australian Network for Universal Housing Design</a>, <a href="https://riaustralia.org/">Rights and Inclusion Australia</a> and the <a href="https://www.summerfoundation.org.au/">Summer Foundation</a>.</p> <p>The code requires all new homes be built to silver standards. It does not apply to existing homes and exemptions will apply for some newly built homes because of site restrictions.</p> <p>When the code was introduced, New South Wales and Western Australia announced they would not adopt the new code. Both the NDIS review and the disability royal commission recommended all states and territories <a href="https://disability.royalcommission.gov.au/system/files/2023-09/Final%20Report%20-%20Volume%207%2C%20Inclusive%20education%2C%20employment%20and%20housing%20-%20Part%20C.pdf">immediately adopt</a> the code’s new accessibility standards.</p> <p>A consistent application of the code’s new standards across Australia is a good start. But the code provides only the minimum standard of accessibility. To make buildings and homes truly accessible, we need to improve education on accessibility for designers, operators and consumers.</p> <h2>An urgent national priority</h2> <p>With Australia’s ageing population, most people will experience disability – or have a household member with disability – at some point.</p> <p>Accessible homes and buildings can reduce pressure on the health system and improve quality of life. A consistent national construction code is just the first step urgently needed to improve building accessibility and inclusion so people with disability have autonomy and flourish.<!-- Below is The Conversation's page counter tag. Please DO NOT REMOVE. --><img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/217278/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /><!-- End of code. If you don't see any code above, please get new code from the Advanced tab after you click the republish button. The page counter does not collect any personal data. More info: https://theconversation.com/republishing-guidelines --></p> <p><em><a href="https://theconversation.com/profiles/ilan-wiesel-303040">Ilan Wiesel</a>, Associate Professor in Urban Geography, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a> and <a href="https://theconversation.com/profiles/rebecca-bentley-173502">Rebecca Bentley</a>, Professor of Social Epidemiology and Director of the Centre of Research Excellence in Healthy Housing at the Melbourne School of Population and Global Health, <a href="https://theconversation.com/institutions/the-university-of-melbourne-722">The University of Melbourne</a></em></p> <p><em>Image credits: Getty Images</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/what-does-a-building-need-to-call-itself-accessible-and-is-that-enough-217278">original article</a>.</em></p>

Caring

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Carer allowance and disability pension set to increase

<p>Over 936,000 Aussies are set to see a cash boost in the new year, as indexation to government payments takes effect from January. </p> <p>Australians receiving youth, student or carer support will receive a 6 per cent boost to their payments, as additional support to help them navigate the rising cost of living. </p> <p>“Australia’s social security system is a safety net that is continually strengthened and improved to support all vulnerable Australians,” Minister for Social Services Amanda Rishworth said.</p> <p>“Through regular indexation, our payments are adjusted in line with changes in the cost of living to retain their purchasing power.”</p> <p>For over 600,000 carers, the Carer Allowance is set to increase to  $153.50 a fortnight, while the Disability Support Pension for Australians under 21 will increase by $31.10 to $44.90 a fortnight. </p> <p>Youth Allowance payments are also set to increase between $22.40 and $45.60 a fortnight, while Austudy payments will increase by between $36.20 and $45.60. </p> <p>The new year increases are being set into motion after a $40 a fortnight increase to youth and student payment rates, which was effective from September 20. </p> <p>A complete list of the new payment increases can be found on the <a href="https://www.dss.gov.au/about-the-department/benefits-payments/previous-indexation-rates" target="_blank" rel="noopener">Department of Social Services website</a>.</p> <p><em>Image: Getty</em></p>

Money & Banking

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Disabled woman slams bus driver who refused to let her onboard

<p>A disabled woman has taken aim at a bus driver who refused to let her onboard a busy bus. </p> <p>The 23-year-old, who relies on a mobility scooter, sparked an online debate after recalling how a driver wouldn't let her on the Melbourne bus, as the vehicle was filled to capacity. </p> <p>“I’m so sorry,” the driver told Anastasiia Berezikova as she tried to board the bus. </p> <p>“I can’t take you on at this stage. The next one shouldn’t be too long. The bus is full, I am only allowed to take 75 passengers. So I can’t kick them off and let you on, it would be unfair.”</p> <p>While filming the interaction, the woman asked the bus driver if he “understands there are priority seats” available for disabled people on public buses.</p> <p>“I understand, but there are other people who got on the bus before you, and I can’t kick them out,” he replied.</p> <p>Ms Berezikova claimed “able-bodied people” had been prioritised in this instance, as she addressed those on the bus and asked, “So none of the able-bodied people want to help a disabled person?”</p> <p>Posting the interaction to TikTok, Ms Berezikova was met with mixed responses from viewers, as some people sided with her, while others sided with the bus driver. </p> <div class="embed" style="font-size: 16px; box-sizing: inherit; margin: 0px; padding: 0px; border: 0px; vertical-align: baseline; outline: none !important;"><iframe class="embedly-embed" style="box-sizing: inherit; margin: 0px; padding: 0px; border-width: 0px; vertical-align: baseline; width: 600px; max-width: 100%; outline: none !important;" title="tiktok embed" src="https://cdn.embedly.com/widgets/media.html?src=https%3A%2F%2Fwww.tiktok.com%2Fembed%2Fv2%2F7303018244124708103&display_name=tiktok&url=https%3A%2F%2Fwww.tiktok.com%2F%40seanympha888%2Fvideo%2F7303018244124708103%3Fembed_source%3D121355059%252C121351166%252C121331973%252C120811592%252C120810756%253Bnull%253Bembed_name%26refer%3Dembed%26referer_url%3Dwww.news.com.au%252Ftechnology%252Fonline%252Fsocial%252Fdisabled-woman-slams-melbourne-bus-driver-who-would-not-let-her-on-full-bus%252Fnews-story%252F085b4e9e53cb14a0e4b7e7709dfe934e%26referer_video_id%3D7303018244124708103&image=https%3A%2F%2Fp16-sign-sg.tiktokcdn.com%2Fobj%2Ftos-alisg-p-0037%2Fo0GXECFv58gXEkdZDBDAIfsxjfKAiCNI2wEafE%3Fx-expires%3D1701388800%26x-signature%3Dp2HoaXXYfdsIXHvvNvZLRcSoSbc%253D&key=59e3ae3acaa649a5a98672932445e203&type=text%2Fhtml&schema=tiktok" width="340" height="700" frameborder="0" scrolling="no" allowfullscreen="allowfullscreen"></iframe></div> <p>“You’re prioritised a seat/space on the bus if there is a space on the bus, they can’t just kick someone off that’s on before you,” one user wrote.</p> <p>“On the bus you get priority seating, yes. But you don’t get priority to ride - if it’s full it’s full they can’t just kick people off,” a second commenter wrote.</p> <p>“I’m a wheelchair user also. In this situation he did nothing wrong. You’re assuming people are discriminating you when they’re not,” a third wrote.</p> <p>Others were adamant the people on the bus were in the wrong by not offering her a seat.</p> <p>“Bloody hell how rude & inconsiderate are people nowadays they only think about themselves. They should’ve moved & stood up from the priority seat,” one wrote.</p> <p>In follow-up videos posted to TikTok, Ms Berezikova claimed that other travellers had boarded the bus at her stop after pushing in front of her, and that she had pleaded with them to make space for her. </p> <p>She also chose to reveal her medical history, which included being in a 12-day coma in July 2021 due to cardiac arrests caused by Eosinophilic granulomatosis with polyangiitis (EGPA) and subsequent motor skills, co-ordination, and speech issues.</p> <p>“I get it, it doesn’t matter to you that (myself) or others have special needs. What matters to you is that you get from point A to point B on time. I dont mind waiting for a second bus. Okay third. But fourth? Fifth?!” she wrote in the follow-up post.</p> <p>“And still face discrimination on the bus. If you think its okay to leave disabled people stranded that is NOT COOL ... I deserve to get on a bus like anyone else and infrastructure and society must allow that.”</p> <p><em>Image credits: TikTok / Getty Images</em></p>

Travel Trouble

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"I’m not going to be cured". How breast cancer awareness and support sidelines people with metastatic disease

<p><em><a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a></em></p> <p>There have been incredible <a href="https://www.cancer.gov/types/breast/research">advances</a> in breast cancer diagnosis and treatment in recent years. And stories about celebrities who have “beaten” breast cancer continue to be a source of inspiration for many people.</p> <p>However, this emphasis on fighting, beating and surviving cancer shuts out the voices of those who will not survive. That is, the many people diagnosed with incurable, life-limiting metastatic breast cancer, <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">which kills nine Australians every day</a> or nearly <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">3,300 people</a> a year. Yet an <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">estimated 10,000</a> Australians are living with the diagnosis.</p> <p>Being diagnosed with metastatic breast cancer, as one of the authors has been, means ongoing treatment to live as long, and as well, as possible. It also means an ongoing need for emotional and practical support.</p> <p>However, society, health-care professionals, cancer advocacy organisations, even a patient’s closest family and friends, can struggle to understand what it is like to live with an incurable and life-limiting cancer and how best to provide support.</p> <h2>Why is there so little awareness?</h2> <p><a href="https://www.breastcancer.org/types/metastatic">Metastatic breast cancer</a>, also called stage four breast cancer, is the most serious form of breast cancer. Unlike early breast cancer that is contained within the breast or nearby lymph nodes, metastatic breast cancer has spread to other parts of the body, most often the bones, lungs, liver, or brain.</p> <p>There is no cure for metastatic breast cancer despite decades of advocacy, funding and research. Treatment continues for as long as it helps to control the cancer and is tolerated by the patient. Median survival is <a href="https://onlinelibrary.wiley.com/doi/10.5694/mja2.51687">two to three years</a>, although newer, novel treatments mean some patients are living much longer.</p> <p>As a society, we can be uncomfortable <a href="https://theconversation.com/before-you-go-are-you-in-denial-about-death-34056">talking about and facing death</a>. When it comes to cancer, we usually prefer focusing on good news stories. These narratives are often perceived to be better for fundraising and are reassuring for people newly diagnosed. But they fail to <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">represent</a> the diversity and reality of cancer experiences.</p> <p>Despite considerable research into people with non-metastatic breast cancer, <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">relatively little</a> is known about Australians with metastatic breast cancer.</p> <h2>Feeling silenced and unsupported</h2> <p>Through our <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">research</a> we wanted to better understand people’s experiences of metastatic breast cancer. We interviewed 38 participants from around Australia with diverse experiences of metastatic breast cancer. Participants were recruited through breast cancer and community organisations.</p> <p>We found messages and public campaigns about cancer survivorship, which emphasise hope and positivity, drowned out the voices of those with metastatic breast cancer. The focus on “success stories” about surviving breast cancer made some people feel like it was their responsibility to “beat” cancer. If they didn’t, it was their own fault. </p> <p>As one interviewee told us: "I react quite badly to all the, ‘we’ve had breast cancer and we beat it and we’ve survived. Aren’t we fantastic.’ There’s almost a feeling if you haven’t beaten your breast cancer you haven’t tried hard enough."</p> <p>Silence around metastatic breast cancer was common in research participants’ experiences. It prevented many from connecting with others and to the support they needed. It even affected relationships with those closest to them leaving them feeling misunderstood: "They don’t realise I’ve got to be on treatment forever. I’m not going to be cured. I think society thinks everything can be fixed; metastatic breast cancer actually can’t be fixed."</p> <p>Sharing deep fears and worries about their life expectancy can leave people with metastatic breast cancer feeling drained rather than supported. Many participants reported having to support and shield family, friends, acquaintances and work colleagues from the reality of their terminal diagnosis.</p> <p>"You hide how you feel because you don’t want to be avoided […] You put on that big, happy face. But like an onion if you peeled the layers away, you’d find out what’s going on."</p> <p>While many participants wanted to join a community of people with metastatic breast cancer, they struggled to know how to find one. Those who did, emphasised how invaluable it had been: "Being able to identify with and know that these people really get me is a huge relief and it reduces the isolation."</p> <p>These findings echo <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">previous research</a> demonstrating people with metastatic breast cancer have higher support needs than those with non-metastatic breast cancer. And these needs are <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">less likely to be met</a> by <a href="https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08269-8">health care, support services</a>, family or friends.</p> <h2>A new path</h2> <p>Being diagnosed with metastatic breast cancer can be terrifying, lonely and create significant support needs. It is essential people with metastatic breast cancer have their <a href="https://ascopubs.org/doi/10.1200/OP.20.00183">voices listened to</a> and their needs met.</p> <p>Next steps should include:</p> <ul> <li> <p><a href="https://bcna-dxp.azureedge.net/media/d32bhdzf/bcna_making-metastatic-breast-cancer-count_2022.pdf">improving data collection by cancer registries</a> so we know exactly how many people in Australia have metastatic breast cancer</p> </li> <li> <p>increasing representation of people with metastatic breast cancer in advocacy, support organisations and research</p> </li> <li> <p>nationwide access to peer-to-peer programs and professionally led metastatic breast cancer support groups.</p> </li> </ul> <p>We must ensure people with metastatic breast cancer are the ones to speak to their experience and needs. As a colleague with metastatic breast cancer said: "I read an article written by an early-stage breast cancer ‘survivor’. It felt like someone describing winter when they had only ever experienced autumn."</p> <p>If you or someone you know has metastatic breast cancer, these organisations may be able to support you or connect you with others with the same diagnosis:</p> <ul> <li> <p><a href="https://www.bcna.org.au">Breast Cancer Network Australia</a> for information and support</p> </li> <li> <p><a href="https://www.mcgrathfoundation.com.au/">McGrath Foundation</a> for information about access to metastatic breast care nurses.</p> </li> </ul> <hr /> <p><em>The authors would like to thank the members of Breast Cancer Network Australia’s Metastatic Breast Cancer Lived Experience Reference Group for their review of this article.</em><img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/215458/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /></p> <p><em><a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, Senior Lecturer, University of Sydney, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, Research fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, ARC DECRA Senior Research Fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a></em></p> <p><em>Image credits: Getty Images</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/im-not-going-to-be-cured-how-breast-cancer-awareness-and-support-sidelines-people-with-metastatic-disease-215458">original article</a>.</em></p>

Caring

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Heavily pregnant mum and disabled child kicked off plane

<p>Siobhan Foster, her husband, and their disabled child were kicked off their flight after she was accused of being "aggressive" by a flight attendant.</p> <p>Foster, who is seven months pregnant, was onboard an easyJet flight to Ibiza to celebrate her brother's wedding.</p> <p>She struggled to find room for her carry-on in the overhead baggage compartment, so she asked a flight attendant to help her find space, but the response was reportedly "a sharp ‘Clearly Not’", which eventually led to a dispute. </p> <p>When things escalated, all 180 passengers were eventually told to disembark. </p> <p>One of Foster's outraged friends posted the <a href="https://www.thesun.co.uk/news/23859832/easyjet-passengers-kicked-off-pregnant-mum-stewardess-fight/" target="_blank" rel="noopener">video</a> on social media, and the Newtonabbey mum was seen collecting hand luggage while struggling to carry her toddler.</p> <p>“We’re being thrown off the plane today because of somebody thinking they’re better than everyone else,” the friend said.</p> <p>The easyJet stewardess responded: “Bye, bye bye," as the upset family walked down the stairs. </p> <p>Foster took to Facebook to complain about her experience with "sleezy jet".</p> <p>“So, I asked could you help me find somewhere, her reply was ‘You’ll need to find somewhere yourself’ even though there literally was nowhere," she wrote. </p> <p>She then claimed that she asked for help again, because she was heavily pregnant, to which the flight attendant allegedly said:  "You’re being abusive and it’s not my job to help you.”</p> <p>Another flight attendant reportedly backed up her co-worker, but Foster argued that other airlines have been more helpful as she is pregnant. </p> <p>“Writing this, I understand it would make you think was I being abusive, but I honestly wasn’t and the whole plane can vouch for me,” Foster wrote. “People were actually putting this on [Facebook] about how bad I was treated.”</p> <p>After eventually finding a place for her bag, the pregnant mum was allegedly confronted by two other crew members who also accused her of being “aggressive.”</p> <p>Foster decided to ignore them because she was "crying" and "so upset," but the flight attendant reportedly started raising her voice. </p> <p>They were then kicked off, and were told it was because of Foster's aggression,  but when Foster’s mum and brother asked for an exact reason, the crew members allegedly couldn't give them a direct response. </p> <p>After an hour, everyone had to disembark and the family were met by eight police officers and two Swissport employees and were told they would not be allowed back on the flight, despite other passengers being allowed back in.</p> <p>“So, that whole day we were in Belfast airport from one lunchtime to nine that night with our child, my legs were so swollen and sore with being on them all this time I was crying uncontrollably that this was happening to us for no reason whatsoever.</p> <p>“I’m so traumatized to the point I don’t know how I’ll ever fly again,” she wrote on Facebook.</p> <p>EasyJet has denied any wrongdoing and a spokesperson told the Daily Mail that "a group of passengers were "behaving disruptively."</p> <p>“EasyJet’s cabin crew and ground agents are trained to assess and evaluate all situations and to act quickly and appropriately to ensure that the safety of the flight and other passengers is not compromised at any time.</p> <p>“The Captain took the decision to ask all passengers on the flight to return to the terminal so the situation could be resolved and as soon as it was they re-boarded and the aircraft continued to Ibiza.”</p> <p>Despite the incident, the Foster family eventually made it to Ibiza the next day, just in time for the wedding, after catching a RyanAir flight out of Dublin. </p> <p>“Thankfully we got to Ibiza and made my brother’s wedding to say how stressed, upset, and overwhelmed I’ve been I honestly think I’ve no words,” she wrote.</p> <p>“EasyJet should be ashamed of themselves and I most definitely am taking this further, I’m still in shock of how we were treated especially being seven months pregnant and having a disabled child with us.”</p> <p><em>Images: Facebook</em></p>

Travel Trouble

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Ableism and disablism – how to spot them and how we can all do better

<p><em><a href="https://theconversation.com/profiles/kelsey-chapman-1345505">Kelsey Chapman</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>; <a href="https://theconversation.com/profiles/angel-dixon-1412256">Angel Dixon</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>; <a href="https://theconversation.com/profiles/elizabeth-kendall-210342">Elizabeth Kendall</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>, and <a href="https://theconversation.com/profiles/katie-kelly-1436986">Katie Kelly</a>, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a></em></p> <p>When the 2022 Australian of the Year was announced, <a href="https://www.sbs.com.au/news/article/the-defining-moments-of-dylan-alcotts-time-as-australian-of-the-year/anpkgw2gw">Dylan Alcott</a> wheeled onto the stage. Australian audiences are tuning in to watch TV shows featuring people with disability: <a href="https://iview.abc.net.au/show/you-can-t-ask-that/series/7/video/LE2021H003S00?gclid=EAIaIQobChMIlMCoiYLY_gIVl1l9Ch2plwHkEAAYASAAEgKiC_D_BwE&amp;gclsrc=aw.ds">You Can’t Ask That</a>, <a href="https://iview.abc.net.au/show/love-on-the-spectrum">Love on the Spectrum</a> and <a href="https://iview.abc.net.au/show/employable-me-australia">Employable Me</a>.</p> <p>The Disability Pride movement is gaining momentum and people with disability are becoming part of the diversity conversation.</p> <p>On the surface, it would appear we have come a long way in our collective attitudes towards disability. But two of society’s biggest “-isms” still go largely <a href="https://www.abc.net.au/news/2023-02-27/harry-styles-concerts-marvel-stadium-accessibility-chloe-hayden/102025124">unnoticed and unaddressed</a>: ableism and disablism.</p> <p>What do these terms mean? And how can we all do better to dismantle them?</p> <h2>Two types of discrimination</h2> <p>Ableism and disablism both refer to types of disability discrimination. The nuance between the two words can cause confusion but are important for acknowledging, detecting, and dismantling the types of barriers people with disability encounter.</p> <p><a href="https://www.attitude.org.au/uploads/120/Perspective%20Shift_Series%201_Study%20Guide_Nov_FINAL.pdf">Ableism</a> is discrimination that favours “able-bodied” people, or people without disability. Ableism prioritises the needs of people without disability. A building designed without a ramp or a lift for people who require them, a lack of captions for a meeting, and stadiums without <a href="https://www.smh.com.au/lifestyle/health-and-wellness/what-is-a-sensory-space-and-why-are-they-so-important-20230227-p5cnwy.html">low-sensory spaces</a> are all examples of ableism.</p> <p><a href="https://www.sense.org.uk/information-and-advice/ableism-and-disablism/">Disablism</a> is the inherent belief that people with disability are inferior to those without disability. It is discrimination against people with disability, like those shared in the <a href="https://disability.royalcommission.gov.au/system/files/2022-03/Issues%20paper%20-%20Rights%20and%20attitudes.pdf">Royal Commission into Violence, Abuse, Neglect and Exploitation of People with Disability</a>. Disablism can be a more direct, conscious act of discrimination and abuse. Using disability slurs, ignoring someone, or speaking in a patronising way are common examples.</p> <blockquote class="twitter-tweet"> <p dir="ltr" lang="en">Weekly reminder: If your event doesn't have a virtual option, it's not inclusive or accessible. Thank you for coming to my Twitter talk on <a href="https://twitter.com/hashtag/ableism?src=hash&amp;ref_src=twsrc%5Etfw">#ableism</a></p> <p>— chantzy (@chantz_y) <a href="https://twitter.com/chantz_y/status/1653033877105934339?ref_src=twsrc%5Etfw">May 1, 2023</a></p></blockquote> <h2>Ingrained and everywhere</h2> <p>If we are honest, we can acknowledge ableism and disablism are ubiquitous in our language, our homes, children’s stories, media, at work and in our daily social interactions. Indeed, ableism and disablism can be so ingrained in our daily lives that most people are unaware of them.</p> <p>Both forms of discrimination can be subtle and insidious, making them difficult to detect and address. They often operate at systemic levels and are not identified as discrimination.</p> <p>A good example of systemic ableism is the forced segregation of people with disability into <a href="https://disability.royalcommission.gov.au/system/files/2022-03/Issues%20paper%20-%20Education%20and%20learning.pdf">“special” schools or “sheltered” workplaces</a> through limited choice and structural support of these options. Although the process of forcing people into these options no longer occurs in such blatantly disrespectful ways, the result is the same.</p> <p>Ableist and disablist attitudes are frequently encountered in daily conversation. Subtle ableism manifests in the use of well-intended “empathetic” comments, like “I can’t imagine losing my eyesight. That would be the worst.” These remarks, even when intended to prompt a connection between two people, reveal deep-seated beliefs and create a greater divide.</p> <p>People with disability, along with other marginalised communities, categorise these types of interactions as “<a href="https://hbr.org/2020/07/when-and-how-to-respond-to-microaggressions">microaggressions</a>”.</p> <p>Disablist attitudes are more overt. Comments like “If you are unable to walk down the ramp then you shouldn’t have gotten tickets to this concert” demonstrate the low expectations and damaging beliefs that impact on people’s opportunities for education, employment and social interaction.</p> <h2>Challenging but worth it</h2> <p>Combating disablism and ableism is a great challenge but one that is worthwhile. A broad spectrum of challenges is at play: confronting and disrupting the status quo, valuing diverse types of knowledge and experience and acknowledging the unconscious biases we all have.</p> <p>At a systemic and societal level, the way we design and deliver systems, polices, virtual and physical environments, products and experiences need to be co-designed in partnership with people with disability – or better yet, through disability-led initiatives.</p> <p>Generating new ideas and better ways of working will contribute to improvements in daily life for all people – just like ramps benefit parents pushing prams and people using mobility aids.</p> <p>The emphasis on <a href="https://anzsog.edu.au/research-insights-and-resources/research/the-promise-of-co-design-for-public-policy/">co-design</a> and engagement with people with disability is <a href="https://onlinelibrary.wiley.com/doi/full/10.1111/1440-1630.12847">increasingly prevalent</a>. However, it is critical to conduct co-design in ways that are not tokenistic and don’t merely validate current practice. Frameworks like the <a href="https://onlinelibrary.wiley.com/doi/full/10.1111/1440-1630.12847">Dignity Project Framework</a>, which includes principles of importance for engaging with people with disability, can better support a dignified process of co-design and citizen partnership.</p> <h2>‘Not yet disabled’</h2> <p>At an individual level, we all have a part to play in creating an inclusive future.</p> <p>Disability has been called the <a href="https://www.un.org/development/desa/disabilities/resources/factsheet-on-persons-with-disabilities.html">world’s largest minority</a> and is a group any person can join at any time in their life.</p> <p>The late disability rights activist <a href="https://judithheumann.com/">Judith Heumann</a> preferred to use the term “not yet disabled” to emphasise that we will all experience impairment and disability at some stage. Thus, we may all confront ableism and disablism at some point. The way to prepare for that time is to actively acknowledge and challenge personal biases, learn about and advocate for accessibility and inclusion in the spaces where you live, work and play and amplify the voices of people with disability at every opportunity.</p> <p>As advocate <a href="https://tiltingthelens.com/about-us/#:%7E:text=As%20a%20passionate%20writer%2C%20podcast,of%20Fashion%2C%20and%20many%20more.">Sinead Burke from Tilting the Lens</a> says in <a href="https://www.vogue.co.uk/article/vogue-disability-portfolio-2023">British Vogue’s</a> May issue, "Accessibility and disability inclusion is everyone’s responsibility and opportunity. This is a movement, not a moment. And it involves all of us.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/204541/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" />"</p> <p><em><a href="https://theconversation.com/profiles/kelsey-chapman-1345505">Kelsey Chapman</a>, Research Fellow Dignity Project, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>; <a href="https://theconversation.com/profiles/angel-dixon-1412256">Angel Dixon</a>, Researcher, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>; <a href="https://theconversation.com/profiles/elizabeth-kendall-210342">Elizabeth Kendall</a>, Professor, Director, Griffith Inclusive Futures, Griffith University, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a>, and <a href="https://theconversation.com/profiles/katie-kelly-1436986">Katie Kelly</a>, Research fellow, <a href="https://theconversation.com/institutions/griffith-university-828">Griffith University</a></em></p> <p><em>Image credits: Getty </em><em>Images </em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/ableism-and-disablism-how-to-spot-them-and-how-we-can-all-do-better-204541">original article</a>.</em></p>

Caring

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Woman slams parking note asking if she was “truly disabled”

<p dir="ltr">A driver has been left fuming after an “entitled” parking note was left on her mother’s car accusing them of misusing a disabled parking spot.</p> <p dir="ltr">Canberra resident Cheyenne took to <a href="https://www.reddit.com/r/canberra/comments/12x8cr9/the_absolute_gall_to_leave_this_on_my_mothers_car/" target="_blank" rel="noopener">Reddit</a> to share her horrific experience and a photo of the note left on her mother’s car.</p> <p dir="ltr">“Hi, are you truly disabled,” the note read.</p> <p dir="ltr">“You both walked from your car like athletes. Please follow the rules.”</p> <p dir="ltr">Cheyenne who was left fuming at the situation captioned the post with “The absolute gall to leave this on my mother’s car in Gungahlin shops parking.”.</p> <p dir="ltr">She then explained: “My mother is disabled, her disability isn’t visible. She was legally given a disability parking permit because she is DISABLED! What a moron”.</p> <p dir="ltr">Speaking to <a href="https://au.news.yahoo.com/aussie-woman-slams-entitled-parking-note-how-dare-they-041811992.html" target="_blank" rel="noopener"><em>Yahoo</em> News Australia</a>, Cheyenne said that “it’s frustrating” because her mum doesn’t look like she has a disability, even though she has “multiple”.</p> <p dir="ltr">She also explained that her mum has suffered with a polycystic kidney and liver. After a kidney transplant caused further health issues, she was granted a disability badge.</p> <p dir="ltr">"Because she has all of her limbs and is able-bodied, many people have the wrong idea and get entitled," Cheyenne added.</p> <p dir="ltr">Other Reddit users have shared similar experiences.</p> <p dir="ltr">“I have arthritis in my spine and elsewhere – disabling, yet completely invisible. Have had old women yell at me for parking in the disabled spots, despite having a permit,” one user wrote.</p> <p dir="ltr">“My mother recently had surgery so she’s not able to drive. Ordinarily she has a disabled permit anyway. I picked her up from a doctor's checkup and a woman gave me a serve for parking in the disabled bay as I was picking up my mum. People are so quick to judge,” wrote another.</p> <p dir="ltr">“I’m sorry you found this note on your car. There’s no need to ever justify why you have a disabled ‘sticker’. It’s no-one’s business but your own,” commented a third.</p> <p dir="ltr"><em>Images: Reddit</em></p>

Caring

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Outrage after Aus Post driver caught parking in disability spot

<p>A Queensland Australian Post worker has sparked outrage after parking his car at a shopping centre car park, leading to a quick response from the company.</p> <p>A disgruntled Karalee local saw the Aus Post van parked in the disability spot and said the contractor’s “unacceptable” act led to an elderly woman missing out on the much-needed spot.</p> <p>Posting to the Australian Disability Parking Wall of Shame Facebook page, the woman wrote, "Driver’s laziness led to elderly lady with a permit having to park opposite and hobble across the road."</p> <p>The van was parked outside the Karalee Chempro Chemist.</p> <p>The post prompted many to weigh in, with some users bringing up other Australia Post parking concerns they’ve seen around their local areas.</p> <p>“At my local shops here in Perth one of the thatched areas besides an ACROD bay is marked that Australia Post vehicles are permitted to park in it which I also believe is wrong and this is definitely inexcusable," one man wrote.</p> <p>The Facebook post has since been deleted.</p> <p>Australia Post issued an apology as soon as they were made aware of the situation.</p> <p>"We sincerely apologise for the actions of this delivery contractor and any inconvenience caused," an Australia Post spokesperson said in a statement.</p> <p>"This lapse in judgement falls well below the high standards we expect of our team members.</p> <p>"It’s especially disappointing given Australia Post prides itself on its commitment to inclusion and diversity both across our workforce and within our communities. We’ve spoken to the contractor and taken steps to ensure this doesn’t happen again.”</p> <p>According to <em>Yahoo</em>, both the man driving the van and all Australia Post contractors copped a strong reminder that they cannot park in disability spots without a permit.</p> <p><em>Image credit: Facebook</em></p>

Legal

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"Broke my heart": Mum's outrage at stranger's comment about her disabled son

<p>A Sydney mother has shared her shock and outrage after a stranger made "rude" comments about her son. </p> <p>Tori Boyadji and her friend Lyndal were walking through Collaroy Park in Sydney's north with Tori's two-year-old son Isaac, who has Down syndrome. </p> <p>The friends were stopped by a woman who looked at Isaac and exclaimed, "Ohh is this a little downsie?"</p> <p>Tori, 28, went on to recount how the stranger said she would "never want a kid with Down syndrome" herself.</p> <p>Ms Boyadji told <a href="https://www.dailytelegraph.com.au/news/nsw/sydney-mum-tori-boyadji-shocked-by-strangers-taunt-to-her-son/news-story/d8e3ee46ad9ed07ded6776987ff220f7" target="_blank" rel="noopener"><em>The Daily Telegraph</em></a> that the stranger's comments left her feeling very upset. </p> <p>"Lyndal and I just looked at each other in disbelief – I’m not easily offended but this comment truly broke my heart," she said.</p> <p>"Why would you say that to two mums with their adorable kids right there?"</p> <p>Tori said Isaac is just like any other toddler, as he loved The Wiggles and going to the beach. </p> <p>"He also happens to have Down syndrome — but this is the least interesting part of him," she said.</p> <p>Rhonda Faragher, Associate Professor of Inclusion and Diversity at Queensland University, weighed in on the exchange, and shared her thoughts that the major issue lays with the fact that people believe those with Down syndrome need to change in some way. </p> <p>"In my view, it's not the language itself, it's what's behind the language," she explained to <a href="https://au.news.yahoo.com/sydney-mums-shock-at-strangers-rude-comment-about-disabled-son-073246046.html" target="_blank" rel="noopener"><em>Yahoo News Australia</em></a>.</p> <p>"That somebody in the community would feel [a child with Down Syndrome] would not be a child they'd like to have in their family without even knowing the child."</p> <p>"I think it's [disappointing] that other people don't understand that this is not a tragedy," she added. "Having a person with Down syndrome in your family, in your life, is actually a terrific blessing."</p> <p><em>Image credits: Instagram </em></p>

Caring

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3 reasons you should never view or share videos showing children being assaulted – even if you think it helps ‘raise awareness’

<p>Australians have been shocked by an <a href="https://www.theguardian.com/australia-news/2023/mar/22/queensland-children-aged-between-12-and-14-charged-after-allegedly-assaulting-girl-over-several-hours">incident</a> on the Sunshine Coast this month in which a 13-year-old girl was imprisoned, assaulted and tortured over many hours, allegedly by three girls aged 12, 13 and 14.</p> <p>The alleged perpetrators also filmed the abuse, which went <a href="https://www.news.com.au/national/queensland/crime/three-girls-charged-after-13yearold-allegedly-lured-to-home-and-tortured/news-story/c08af6c838e54fc0d39c449e57f9719a">viral online</a> with photos and videos being shared across news outlets and social media profiles.</p> <p>Some people may think they’re supporting victims by watching the videos and then expressing their outrage at their treatment. Morbid curiosity about the event might also prompt people to view the photos or videos.</p> <p>But there are three key reasons why you should never view, download or share photos or videos of children being assaulted.</p> <h2>1. You may be committing a criminal offence</h2> <p>Photos and videos showing this 13-year-old girl allegedly being assaulted and tortured are unlawful. Content such as this is called child sexual abuse material (CSAM), which has <a href="https://theconversation.com/whats-in-a-name-online-child-abuse-material-is-not-pornography-45840">previously been called child pornography</a>.</p> <p>Child sexual abuse material is <a href="https://theconversation.com/virtual-child-sexual-abuse-material-depicts-fictitious-children-but-can-be-used-to-disguise-real-abuse-180248">offensive or sexual online material</a> depicting children. It’s a criminal offence to possess, view, share or create it.</p> <p>It isn’t just pornographic material. These laws extend to material that depicts children being assaulted and tortured, even without a sexual element.</p> <p>Criminal offences exist for possessing, viewing, sharing or creating such material. Each state and territory jurisdiction, and the Commonwealth, has their own legislation which may have a slightly <a href="https://bridges.monash.edu/articles/journal_contribution/Lawful_Acts_Unlawful_Images_The_Problematic_Definition_of_Child_Pornography/10064963/1">different perspective</a> on whether a person has committed an offence.</p> <p>Criminal offences can be committed in the following circumstances:</p> <ol> <li> <p>if someone <a href="https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2277239">downloads</a> a child assault photo or video, they are “possessing” child sexual abuse material</p> </li> <li> <p>where someone posts it to their social media page or <a href="https://heinonline.org/HOL/LandingPage?handle=hein.journals/utasman40&amp;div=14&amp;id=&amp;page=">sends it</a> via email to others, they are “distributing” or “disseminating” child sexual abuse material</p> </li> <li> <p>when someone <a href="https://www.cdpp.gov.au/crimes-we-prosecute/child-exploitation">watches</a> a child assault video online without downloading, or looks at a photo, they are still “accessing” (viewing) such material, which can be an offence.</p> </li> </ol> <p>It doesn’t matter if the child victim indicates their approval for the material to be promulgated. Children are <a href="https://www.aic.gov.au/sites/default/files/2020-05/58-1213-FinalReport.pdf">unable to consent</a> to material depicting their own assault being shared or viewed by others.</p> <h2>2. You are perpetuating the abuse suffered by the victim</h2> <p>Watching and sharing child abuse photos or videos does not support the victim. Every photo and video depicting child abuse <a href="https://theconversation.com/it-is-not-child-pornography-it-is-a-crime-scene-photo-12465">shows a crime scene</a>.</p> <p>A victim’s abuse being captured and shared as a video is a <a href="https://www.sciencedirect.com/science/article/abs/pii/S0145213419303667">regular reminder</a> of their abuse. The photos or videos can cause <a href="https://www.aic.gov.au/publications/tandi/tandi653">ongoing harm to a child victim</a>, beyond any physical harm they may have recovered from.</p> <p>US researchers conducted <a href="https://www.sciencedirect.com/science/article/abs/pii/S0145213418301510?via%3Dihub">a study</a>, published in 2018, to analyse the complex experiences of survivors (adults who, as children, had material of their abuse shared online).</p> <p>The participants described ongoing feelings of guilt and shame, and a feeling of enduring vulnerability because their records of abuse will always be online for others to see.</p> <p>As one survivor, not part of this study, <a href="https://www.emerald.com/insight/content/doi/10.1108/978-1-83982-848-520211053/full/html">said</a> "I have to live with the knowledge that my abuse will never end, and that every second of every day, someone could be – almost certainly is – watching my torture and abuse. Even once I’m dead, my degradation will continue. I will never be able to escape it. This trauma is infinite.</p> <p>Some also described an empowering dimension because the material provided validation of the abuse they suffered, or could be used as evidence in court.</p> <p>While victims may all process their experiences in different ways, it’s important to be mindful of the detrimental and ongoing effects on a child victim of an assault being captured and shared online.</p> <p>As a community, we must do everything we can to support those children, including refusing to watch or share photos or videos of their abuse.</p> <h2>3. You are giving undeserved notoriety to the perpetrators</h2> <p>Some perpetrators use records of their offending to create social media content for notoriety.</p> <p>“Performance crimes” allow perpetrators to use their online platform <a href="http://www8.austlii.edu.au/cgi-bin/viewdoc/au/journals/CICrimJust/2015/21.html">for attention</a>.</p> <p>Terrorism is another example, where terror attacks have been <a href="https://theconversation.com/social-media-create-a-spectacle-society-that-makes-it-easier-for-terrorists-to-achieve-notoriety-113715">livestreamed</a> and media outlets have responded by refusing to name the perpetrators.</p> <p>Do not reward the perpetrators by giving them a platform.</p> <h2>How should we respond?</h2> <p>It’s important we, as a community, acknowledge that children whose assaults are captured in photos and videos have been through a traumatic experience and need support.</p> <p>Watching or sharing their assault only perpetuates the abuse.</p> <p>We must refuse to watch videos of child abuse, and delete them if they’re sent to us.</p> <p>We then need to trust that police will conduct thorough investigations that will result in an appropriate outcome.</p> <p><em>This article originally appeared on <a href="https://theconversation.com/3-reasons-you-should-never-view-or-share-videos-showing-children-being-assaulted-even-if-you-think-it-helps-raise-awareness-202610" target="_blank" rel="noopener">The Conversation</a>.</em></p> <p><em>Images: Shutterstock</em></p>

Technology

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“Doesn’t seem okay to me”: Police slammed for parking in disabled spot

<p dir="ltr">NSW Police have come under fire after an outraged Sydney driver called out a patrol car that was parked in a disabled parking spot.</p> <p dir="ltr">A furious driver spotted the police vehicle outside a state election early-voting centre in Mascot on Monday, and snapped a photo of the Hyundai Sonata police car in the clearly labelled disabled parking zone.</p> <p dir="ltr">They then posted the picture to Reddit, with the infuriated motorist captioning the post, “Police parking in a disabled spot so they can vote in Mascot. Where should I complain?”</p> <p dir="ltr">“I have no issue with them voting while on the clock, I do have an issue with them having to park in a disabled spot,” the driver commented.</p> <p dir="ltr">“They have five more days to vote, even if they can’t find time when they’re not working, they can at least wait until they’re not disadvantaging a disabled person.”</p> <p dir="ltr">The driver, who has firsthand experience of battling to claim a disabled parking space for their chronically ill parent, called out the brazen officers for not thinking how this act could significantly impact accessibility requirements for people with disabilities.</p> <p dir="ltr">“My mum had MS and this kind of sh*t would mean we’d need to turn around and go home,” they said.</p> <p dir="ltr">“For people with severe and debilitating disabilities, these spots are vital to them even being able to leave the house. Blocking a spot so they can vote in an election that isn’t until the weekend doesn’t seem okay to me.</p> <p dir="ltr">“There were no other spots between there and the polling station. The election isn’t now, or even tomorrow. (The officers) had time to wait for a non-disabled spot.”</p> <p dir="ltr">The post went viral on Reddit, with a spokesperson for NSW Police saying they’re looking into the situation after being notified about the incident.</p> <p dir="ltr">The comments on the post were divided after many people sided with the officers, saying officers on patrol should be remaining close to their vehicles in case of an emergency.</p> <p dir="ltr">“Arguably, emergency services are probably better off parking in convenient accessible locations,” one person said.</p> <p dir="ltr">“I agree a disabled spot sounds a bit sh*tty, but you wouldn’t want them having to rush to level 4 of a nearby multi-story carpark to take an urgent call like a domestic violence response.”</p> <p dir="ltr">“It’s very important for the officers to (be) close to their patrol car in case of an emergency. Stop having a whinge,” another comment read.</p> <p dir="ltr">Meanwhile, others were more sympathetic towards the person who posted the photo and agreed the officers should have parked elsewhere.</p> <p dir="ltr">“As a disabled person, this is really disappointing to read,” one person said.</p> <p dir="ltr">“I greatly appreciate someone sticking up for people like myself. Not a lot of people will.”</p> <p dir="ltr">Another supporter added, “Yeah that’s not on. I have a disability and I’m tired of people parking in our spots when they don’t have a disability.”</p> <p dir="ltr">According to the NSW state government website, “heavy fines apply for stopping in spaces reserved for people with disabilities, or using a permit that infringes its conditions of use.”</p> <p dir="ltr"><em>Image credits: Reddit</em></p>

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How on-demand buses can transform travel and daily life for people with disabilities

<p>People with disabilities arguably stand to gain the most from good public transport, but are continually excluded by transport systems that still aren’t adapted to their needs as the law requires. <a href="https://www.aihw.gov.au/getmedia/ee5ee3c2-152d-4b5f-9901-71d483b47f03/aihw-dis-72.pdf.aspx?inline=true">One in six people</a> aged 15 and over with disability have difficulty using some or all forms of public transport. One in seven are not able to use public transport at all. </p> <p>Under the <a href="https://www.legislation.gov.au/Details/C2018C00125">Disability Discrimination Act 1992</a>, Australia’s public transport systems were expected to be fully compliant with the 2002 <a href="https://www.infrastructure.gov.au/infrastructure-transport-vehicles/transport-accessibility">Transport Standards</a> by December 31 2022. Not only have many of our bus, train and tram systems <a href="https://www.disabilitysupportguide.com.au/talking-disability/public-transport-remains-inaccessible-as-20-year-targets-are-not-met">failed to meet these targets</a>, but the standards themselves are outdated. The standards are <a href="https://www.infrastructure.gov.au/infrastructure-transport-vehicles/transport-accessibility/2022-review-transport-standards">under review</a> and public consultation has begun.</p> <p>For buses, the standards <a href="https://www.mcw.com.au/why-public-transport-operators-must-review-their-vehicles-in-2022/">largely focus on the vehicles themselves</a>: low-floor buses, wheelchair ramps, priority seating, handrails and enough room to manoeuvre. But just because a vehicle is accessible doesn’t necessarily mean a bus journey is accessible. </p> <p>There are difficulties getting to and from the bus, limited frequency of accessible services, <a href="https://www.tandfonline.com/doi/full/10.1080/17450101.2022.2126794">poor driver training, passenger conflict</a>, <a href="https://www.forbes.com/sites/gusalexiou/2021/02/17/for-disabled-people-inclusive-transportation-is-about-much-more-than-lifts-and-ramps/?sh=322fc9c62b08">travel anxiety</a> and a lack of <a href="https://www.inclusivecitymaker.com/transport-accessibility-intellectual-disability/">planning for diversity</a>. In all these ways, bus travel excludes people with disabilities. </p> <div data-id="17"> </div> <p>Infrastructure alone cannot overcomes these issues. <a href="https://translink.com.au/travel-with-us/on-demand">On-demand transport</a>, which enables users to travel between any two points within a service zone whenever they want, offers potential solutions to some of these issues. It’s already <a href="https://sifted.eu/articles/viavan-on-demand-transport/">operating</a> in <a href="https://ringandride.org/">cities</a><a href="https://www.bcgomi.com/">overseas</a> and is being <a href="https://theconversation.com/1-million-rides-and-counting-on-demand-services-bring-public-transport-to-the-suburbs-132355">trialled in Australia</a>.</p> <h2>Accessible vehicles are just the start</h2> <p>Making vehicles accessible is really only the tip of the iceberg. Focusing only on infrastructure misses two key points: </p> <ol> <li> <p>our public transport journeys begin before we board the service and continue after we’ve left it</p> </li> <li> <p>accessibility means providing people with quality transport experiences, not just access to resources.</p> </li> </ol> <p>Let’s imagine a typical suburban bus journey. It is industry accepted that passengers are <a href="https://australasiantransportresearchforum.org.au/wp-content/uploads/2022/03/2013_rose_mulley_tsai_hensher.pdf">generally willing to walk about 400 metres</a> to a bus stop. That is based, of course, on the assumption that passengers are able-bodied. Long distances, steep hills, neglected pathways, few kerb cuts and poorly designed bus shelters all hinder individuals with disabilities from getting to the bus in the first place. </p> <p>This issue resurfaced in the 2020 report <a href="https://www.aihw.gov.au/getmedia/ee5ee3c2-152d-4b5f-9901-71d483b47f03/aihw-dis-72.pdf.aspx?inline=true">People with Disability in Australia</a>, by the Australian Institute of Health and Welfare. More than one in four respondents with disabilities said getting “to and from stops” was a major obstacle to using public transport. </p> <p>But other barriers to making services inclusive are even more difficult to see. People with disabilities are forced to plan extensively when to travel, how to travel, who to travel with and what resources they need to complete the journey. Even the best-laid plans involve <a href="https://www.forbes.com/sites/gusalexiou/2021/02/17/for-disabled-people-inclusive-transportation-is-about-much-more-than-lifts-and-ramps/?sh=322fc9c62b08">added emotional energy or “travel anxiety”</a>.</p> <h2>What solutions are there?</h2> <p><a href="https://theconversation.com/1-million-rides-and-counting-on-demand-services-bring-public-transport-to-the-suburbs-132355">On-demand transport</a> offers potential solutions to some of these issues. Its key feature is flexibility: users can travel between any two points within a service zone, whenever they want. </p> <p>This flexibility can be harnessed to design more inclusive bus services. Without a fixed route or timetable, on-demand services can pick up passengers at their home and drop them directly at their destination. This door-to-door service eliminates the stressful journey to and from a bus stop and their destinations. </p> <p>And with services available on demand, users can plan their travel to complement their daily activities instead of the availability of transport dictating their daily activities. </p> <p>The technology behind on-demand transport also helps reduce the need for customers to consistently restate their mobility needs. Once a customer creates a profile, extra boarding and alighting time is automatically applied to all future bookings. This eliminates the exhaustive process of added planning, and enables drivers to deliver a better experience for all of their passengers.</p> <h2>Examples of on-demand services</h2> <p>Cities around the globe are already using on-demand services to overcome transport disadvantage for people with disabilities. </p> <p>BCGo is one such service in Calhoun County, Michigan. A recent yet-to-be-published survey of BCGo users shows 51% of respondents face mobility challenges that affect their ability to travel. </p> <p>Some 30% have “conditions which make it difficult to walk more than 200 feet” (61m). That means the industry’s assumed walkable distance (400m) is 6.5 times the distance that’s realistically possible for many users of the service.</p> <p>Ring &amp; Ride West Midlands is the UK’s largest on-demand project. It operates across seven zones with over 80 vehicles. </p> <p>The service, recently digitised using <a href="https://www.liftango.com/">Liftango</a>’s technology, is designed to provide low-cost, accessible transport. It can be used for commuting, visiting friends, shopping and leisure activities. </p> <p>Ring &amp; Ride serves as an example of how on-demand service can provide sustainable and equitable transport at scale. It’s completing over 12,000 trips per month.</p> <h2>A call to action for Australian governments</h2> <p>Government policy needs to address not only inadequate bus infrastructure, but those invisible barriers that continue to exclude many people from bus travel. We need a cognitive shift to recognise accessibility is about creating quality experiences from door to destination for everyone. </p> <p>This needs to be paired with a willingness to explore solutions like on-demand transport. Transport authorities worldwide are already embracing these solutions. We cannot continue to rely on the community transport sector to absorb the responsibility of providing transport for people with disabilities, particularly as <a href="https://theconversation.com/eight-simple-changes-to-our-neighbourhoods-can-help-us-age-well-83962">our populations age</a>. </p> <p>Now is the time to have your say. The Transport Standards are <a href="https://www.infrastructure.gov.au/infrastructure-transport-vehicles/transport-accessibility/2022-review-transport-standards">open for public consultation</a> until June 2023.</p> <p><em>Image credits: Getty Images</em></p> <p><em>This article originally appeared on <a href="https://theconversation.com/how-on-demand-buses-can-transform-travel-and-daily-life-for-people-with-disabilities-199988" target="_blank" rel="noopener">The Conversation</a>. </em></p>

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"How did you live with this much pain?": Bindi Irwin hospitalised

<p dir="ltr"> Bindi Irwin has issued an emotional statement on social media after undergoing surgery for endometriosis.</p> <p dir="ltr">The beloved Australian conservationist has been battling with the condition for 10 years, and detailed in her post what it had been like to struggle with “insurmountable fatigue, pain &amp; nausea.”</p> <p dir="ltr">She confessed that she had spent a long time wondering whether or not she should share her story, but ultimately believed it to be her “responsibility” to share her story for others like her who haven’t been able to get the help they desperately need for their condition. </p> <p dir="ltr">“I’m aware of millions of women struggling with a similar story,” Bindi wrote, “there’s stigma around this awful disease. I’m sharing my story for anyone who reads this &amp; is quietly dealing with pain &amp; no answers. Let this be your validation that your pain is real &amp; you deserve help. Keep searching for answers.”</p> <p dir="ltr">According to the World Health Organisation, endometriosis - a chronic disease for which there is no known cure - affects approximately 10% of the world’s population of women, girls, and gender diverse individuals of a reproductive age (that’s roughly 190 million people). It is associated with severe pain during periods, bloating, nausea, fatigue, and even infertility. </p> <p dir="ltr">However, the symptoms can be so varied that healthcare professionals often struggle to diagnose the condition, and that many sufferers don’t know enough to put a name to it. Due to this, there are often large spans of time between first noticing symptoms, getting a formal diagnosis, and getting help. </p> <p dir="ltr">“These last 10yrs have included many tests, doctors visits, scans, etc.,” Bindi explained in her caption. “A doctor told me it was simply something you deal with as a woman &amp; I gave up entirely, trying to function through the pain.”</p> <p dir="ltr">“I decided to undergo surgery for endometriosis,” she continued, after noting that a friend had helped steer in the right direction. “Going in for surgery was scary but I knew I couldn’t live like I was. Every part of my life was getting torn apart because of the pain. </p> <p dir="ltr">“To cut a long story short, they found 37 lesions, some very deep &amp; difficult to remove, &amp; a chocolate cyst. @seckinmd’s [Bindi’s doctor] first words to me when I was in recovery were, ‘How did you live with this much pain?’”</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/Cpf6o7YJ0xa/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/Cpf6o7YJ0xa/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank" rel="noopener">A post shared by Bindi Irwin (@bindisueirwin)</a></p> </div> </blockquote> <p dir="ltr">Bindi, in true Irwin fashion, took the time to pay tribute to the support of her family and friends who had been on that journey with her for over a decade, and wrote of the “indescribable” relief at the “validation for years of pain”. </p> <p dir="ltr">“THANK YOU,” she gushed, “for encouraging me to find answers when I thought I’d never climb out. Thank you to the doctors &amp; nurses who believed my pain. I’m on the road to recovery &amp; the gratitude I feel is overwhelming. </p> <p dir="ltr">“To those questioning the cancelled plans, unanswered messages &amp; absence - I had been pouring every ounce of the energy I had left into our daughter &amp; family.</p> <p dir="ltr">“Things may look fine on the outside looking in through the window of someone’s life, however, that is not always the case. Please be gentle &amp; pause before asking me (or any woman) when we’ll be having more children. </p> <p dir="ltr">“After all that my body has gone through, I feel tremendously grateful that we have our gorgeous daughter. She feels like our family’s miracle.”</p> <p dir="ltr"><em>March is Endometriosis Awareness Month, for more information visit: </em></p> <p dir="ltr"><em><a href="https://www.endometriosisaustralia.org/">Endometriosis Australia</a></em></p> <p dir="ltr"><em><a href="https://nzendo.org.nz/2023-march-awareness-month/#:~:text=March%20is%20International%20Endometriosis%20Awareness,years%20before%20they%20are%20diagnosed.">Endometriosis New Zealand</a></em></p> <p dir="ltr"><em>Images: Instagram</em></p>

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5 hidden sugar bombs you should be aware of

<p>It seems like a pretty easy rule to follow – when you’re doing your weekly shop, if an item is packaged, it's likely laden with sugar. We all know that the sweet stuff is absolutely everywhere and that food companies use clever little tricks to disguise this from us when it comes to food labels. So, if you're not careful, sneaky foods packed with sugar will make their way into your home. Here we bring you some tips on how to arm yourself with the knowledge to avoid an accidental sugar binge.</p> <p><strong>Fruit yoghurt</strong></p> <p>It seems innocent enough, but fruit yogurt can be one of the biggest sugar bombs at the supermarket. Have you ever noticed how this popular morning snack feels like it would be more appropriately placed as a dessert option, well that’s because they are loaded with sugar. Opt for natural yoghurt and add cinnamon or berries to naturally sweeten.</p> <p><strong>Pasta sauce</strong></p> <p>Never mind the shortcomings of refined white pasta, it's the sauce that should be of concern. Pasta sauce alone can carry up to 12 grams of sugar for every half cup.</p> <p><strong>Agave</strong></p> <p>Despite it being sold in health food stores and renowned as a healthy alternative to sugar, it doesn’t change the fact that agave is pretty much just sugar dressed up in a healthier looking outfit. As it's 85 per cent fructose, it may be worse for you than cane sugar, which is all sucrose. What does this mean? Well, fructose is metabolised almost exclusively by your liver, which is hard work, and we’re still learning about the way different forms of sugar affect our health.</p> <p><strong>Dried fruit</strong></p> <p>Given it’s fruit it’s not surprising that most people count dried fruits amongst healthy food options, however, in some cases it might as well be like eating lollies. Just one-third of a cup can have 24 grams of sugar.</p> <p><strong>Granola bars</strong></p> <p>A convenient snack that is easy to carry in your bag to enjoy on the run? Yes. But the health factor of these bars depends on the ingredients. Most varieties aren't only made of wholegrain oats. In fact, one bar can pack as much as 12 grams (or much more) of sugar, so be sure to read the label before adding these to your shopping trolly.</p> <p><em>Image credits: Getty Images </em></p>

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