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"Non-fixable": Neighbours icon reveals terminal diagnosis

<p>Veteran actor Ian Smith, beloved for his role as Harold Bishop on the long-running soap <em>Neighbours</em>, has filmed his final scenes, marking an emotional farewell to the show and his career.</p> <p>At 85, Smith revealed his decision to step away from acting follows a terminal diagnosis of pulmonary pleomorphic carcinoma, a rare and aggressive form of cancer.</p> <p>“It isn’t just my last day in <em>Neighbours</em>, it’s my last day of work,” Smith <a href="https://www.news.com.au/entertainment/celebrity-life/aussie-tv-icon-ian-smith-shares-tragic-health-update/news-story/3edbe4d153e7f322b08258ec86360bba" target="_blank" rel="noopener">told 10 News First reporter Angela Bishop</a>. “I found out a few months back that I have cancer, that I have a very aggressive, non-fixable cancer, and they expect me to die.”</p> <p>Smith, who has undergone three rounds of treatment, including immunotherapy, expressed his determination to maintain his quality of life for as long as possible. “I’ve really put my hand up just to be a guinea pig, I think, plus the fact I don’t want to die. I want to stay alive with quality as long as I can,” he said. “I wake up every morning hoping there’s no pain because I know that’s the beginning of the bad part.”</p> <p>Smith, a staple of Ramsay Street since 1987, was honoured by cast and crew on his final day of filming. The emotional farewell included heartfelt speeches, tears and hugs, reflecting the profound impact Smith has had on the<em> Neighbours</em> family.</p> <p>“There were real tears,” Smith shared. “In fact, one young fella worried me a bit. I had to follow up and make sure he was alright the next day. It knocked me out a bit honestly.”</p> <p>Smith’s final storyline features the return of Anne Charleston, who famously played Harold’s wife, Madge. Charleston will reprise a new role in the upcoming episodes. Executive Producer Jason Herbison praised Smith’s contributions, saying, “The way the residents of Ramsay Street feel about Harold is how we all feel about Ian – we couldn’t love him more than we do.</p> <p>“Despite the challenges he was facing with his health, he wanted to give Harold a proper send-off. It was a very emotional moment on set as we paid tribute to him and the incredible contribution he has made to the show.”</p> <p>Smith’s personal life has been marked by loss, having endured the passing of his wife, Gail, of five decades, and several family members to cancer. His own health battles have included prostate cancer and a stroke, yet he has remained a resilient and cherished figure in Australian television.</p> <p>Network 10 expressed their sorrow over his diagnosis and immense gratitude for his contributions. “Ian has brought joy, laughter and inspiration to audiences all around the world for decades,” a spokesperson said. “Along with the cast and crew and all his fans from around the world, we will support Ian in any way we can during this difficult time.”</p> <p>Smith’s final scenes on Neighbours will air in April 2025, bringing a 30-year chapter of television history to a close.</p> <p><em>Images: Supplied</em></p>

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Doctor defies terminal cancer diagnosis with breakthrough therapy

<p>Dr Tina Willits was told she had just 24 months to live after being diagnosed with breast cancer, but against all odds she is now in remission. </p> <p>The mother-of-five's disease was "everywhere" with three golf-ball sized tumors in her breast and cancerous masses in her ribs, spine, lymph nodes and legs.</p> <p>"When my cancer was detected, it was pretty past a stage four diagnosis and I was too far gone for a mastectomy," she told the <em>Daily M</em><em>ail</em>. </p> <p>She was placed on end-of-care chemotherapy and was told to "enjoy the time you have left". </p> <p>That was nearly three years ago. Now, the 53-year-old US mum is in remission thanks to a breakthrough cancer therapy that uses cold gases and the body's own cells to freeze and fight tumors. </p> <p>"I was devastated, but I was also like no, I was not ok with that diagnosis. I felt I had to do something," she recalled.</p> <p>"I was just really determined that I did not want to live my life with this cancer, even if they could stop it progressing, I didn't want that, I just wanted it gone."</p> <p>Dr Willits' cancer was HER2 positive, which account for about 20 percent of all diagnoses, and she had no family history of the disease.</p> <p>She underwent four rounds of chemotherapy before she sought alternative treatment at the Williams Cancer Institute. </p> <p>The institute sent her a list of supplements to begin taking and advised her to avoid sugar, which some researchers believe can help reduce inflammation and slow down the growth of cancer cells. </p> <p>She then underwent a treatment regimen that is not yet fully approved in the US, with cryoablation as the first step. </p> <p>Cryoablation is the process where doctors insert  a small metal probe through the skin and into the tumor, extremely cold gasses are then released directly into the mass to kill its cells.</p> <p>In the second phase of her treatment, she received immunotherapy, where eight drugs were administered directly into her tumor, which doctors say can prompt the immune system to recognise cancer cells as a threat and trigger an immune response. </p> <p>Dr Willits told the Dailymail that she was shocked when she got the results from her six-week scan after the treatment.</p> <p>"There were none, no tumors. They were just completely gone," she said. </p> <p>"All the metastasis (cancerous growths outside the breast) had completely healed, and the cancer in my lymph nodes was no longer there."</p> <p>After the treatment she had another four rounds of chemotherapy, and still undergoes PET scans every six months. </p> <p>So far the cancer has not been detected in her body since the treatment, and will need to wait for five years of clear results before she can be declared cancer free. </p> <p>Dr Williams, the founder of the institute, developed the treatment regimen over several years, and believes it could offer a better way to treat cancer.</p> <p>He is currently running a trial of the treatment in hard-to-treat prostate cancer patients, although he did not reveal how long the study had been going on for or how many rounds of treatment the patients had received. </p> <p>Since going into remission Dr Willits has travelled to Honduras and Colorado, tried mountain biking and is training for a 5k marathon for breast cancer awareness. </p> <p>"I wouldn't appreciate life like this if I had not gone through the cancer," she said. </p> <p>"No one on their deathbed says I wish I had worked more or got that job, you all say I wish I had spent more time with my parents and kids or gone to that place I had always wanted to." </p> <p><em>Images: DailyMail</em></p>

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Man decides to end his own life after waiting for at-home care

<p>A terminally ill man has made the heartbreaking decision to end his life after waiting 10-month for end of life care. </p> <p>Cyril Tooze, an 86-year-old from South Australia's Fleurieu Peninsula, was approved for a Level 4 Home Care Package in January. </p> <p>The package - which is the highest available care for individuals with high-level needs under the federal government’s MyAgedCare scheme - would give Mr Tooze up to $59,594 annually for daily assistance with physical, medical and social tasks.</p> <p>But almost one year on from the approval, his funds and support have yet to be delivered.</p> <p>It’s understood his family, who live interstate, contacted the government to enquire about receiving an urgent reassessment, and were told he could be waiting another three to six months.</p> <p>Independent MP Rebekha Sharkie told reporters that his family were also told a reassessment “could delay it even longer”.</p> <p>While waiting for his vital funds, Mr Tooze - who suffers from terminal heart and lung conditions and regularly requires morphine for pain relief - has worsened and has been hospitalised after suffering a fall at home. </p> <p>Tired of waiting for help to arrive, Tooze has started the process of ending his life through South Australia’s voluntary assisted dying scheme.</p> <p>“There is no hope ... I don’t want to live my life laying in a bed waiting for something to happen,” he told <a href="https://7news.com.au/news/terminally-ill-mans-heartbreaking-decision-to-end-his-life-after-10-month-wait-for-home-care-in-australia-c-16471785" target="_blank" rel="noopener">7News</a>.</p> <p>“You can’t live like that, that’s unfair, we don’t deserve that in such a country as Australia.”</p> <p>Following the media coverage of his case, Tooze was contacted by the Aged Care Department, who said the package could temporarily be made available.</p> <p>Sharkie said Tooze’s situation was “shameful”, saying, “What devastates me is that Mr Tooze feels voluntary assisted dying is the only course available to him, and that is because we as a nation have failed him."</p> <p>“I would say, if Mr Tooze had that package in a timely manner, as he should have, he would probably be sitting at home now, making himself a cup of tea.”</p> <p>Anglicare Australia’s <a href="https://www.anglicare.asn.au/2024/09/20/life-on-the-wait-list-report-shows-older-australians-are-going-without-support/" target="_blank" rel="noopener" data-link-type="article-inline">Life on the Wait List report</a> revealed that as of May 2024, 68,109 Australians had been approved for a Home Care Package but were facing wait times of up to 15 months to access it.</p> <p><em>Image credits: 7News</em></p>

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Terminally ill 23-year-old's final request

<p>Liam Bulman was working a shift at The Illawarra Hotel in Wollongong last month when he asked to leave early, as he felt unwell. </p> <p>The following week he found himself in "crippling pain" and was rushed to hospital by his friend. After days of intensive testing, the 23-year-old was diagnosed with stage-four High Grade Neuroendocrine Carcinoma — a "rare" cancer that had spread. </p> <p>Now, his family and friends are doing everything they can to raise funds so he can have a "chance to make memories" through ticking off items on his bucket list in this  "scary, sad and unknown" time. </p> <p>"He's smart and kind. He's been raised to work hard and contribute to people's lives, and our community. He's incredible," Liam's colleagues from The Illawarra Hotel wrote on the<a href="https://www.gofundme.com/f/youre-friendly-local-bartender-bulmans-bucket-list" target="_blank" rel="noopener"> GoFundMe</a> page.</p> <p>So far they have raised over $28,000 of their $50,000 goal, with most of the money raised going towards his medical costs, medical trial attendance and palliative care, and any remaining money will help fund his bucket list. </p> <p>His bucket list includes activities like attending the F1 in Melbourne, going for a joyride in a helicopter, learning to surf and taking a family photo session. </p> <p>Liam's mum, Emily Bulman, revealed his cancer is "incurable" and he has since started a bout of chemotherapy in hope it will "buy him more time" as the cancer has spread to his  lymph nodes and lower digestive tract.</p> <p>"This will assist us to aim for longevity, quality of life, a chance to make memories, and receive the care and comfort that suits Liam best," she said on the fundraising page.</p> <p>"Anything we can raise to help take the burden off Liam, we would be incredibly grateful for."</p> <p><em>Images: GoFundMe/Facebook</em></p>

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Pioneering TV presenter reveals terminal diagnosis live on air

<p>Popular New Zealand TV presenter Joanna Paul-Robie has revealed she is dying of cancer. The pioneering presenter, known for her work on TV3, shared the heartbreaking news during an interview with Radio New Zealand on Friday morning.</p> <p>Paul-Robie, who has been a beloved figure in the broadcasting world, made the announcement while accepting the Icon Award for her contributions to the creative industries.</p> <p>“I was so touched because this award means so much to me, coming from Tauranga Moana,” she said. “But more importantly, because I am, unfortunately, dying – I have terminal cancer – and really to have this award before one posthumously gets it is an even better break. I can’t tell you the lightness, the brightness, the feeling of aroha inside me last night.”</p> <p>Reflecting on her career, Paul-Robie recounted her experiences as one of the few Māori individuals on New Zealand's television screens. “The newsroom was really … it was being run by mostly a pair of middle-class, middle-aged white men who had the audacity and the balls to say ‘If it bleeds, it leads’ but these guys you know they had never been in a Māori world,” she remarked.</p> <p>Starting her career at Radio New Zealand, Paul-Robie later became a newsreader for TV3 and played a significant role in establishing Māori Television in 2004, serving as a program and production manager.</p> <p>During a 2011 interview with <em>NZOnScreen</em>, she spoke about the challenges and triumphs of setting up the network. “There’s been a handful of people in the world who have built a television station and taken it to air,” she said. “There are only a handful of people in the world who can do that and even though it nearly broke me in half on the day that we launched, I thought ‘hell we did that’. I think it is difficult for someone like me with an A-type personality to think now you have done your big thing maybe you should take it easy now.”</p> <p>Paul-Robie's courage and dedication have left an indelible mark on New Zealand's broadcasting landscape. Her announcement has been met with an outpouring of support and love from colleagues, fans and the wider community, who admire her strength and resilience in the face of such a personal battle.</p> <p><em>Images: <span style="font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;">NZOnScreen</span></em></p>

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"I am the Bicycle Bandit": Terminally-ill ex-cop confesses to 20-year-old mystery

<p>In a startling twist to a 20-year-old mystery, 73-year-old Kym Allen Parsons, a terminally-ill former police officer and firefighter, has admitted to being the notorious "Bicycle Bandit" who terrorised South Australian banks and residents for a decade.</p> <p>Parsons' confession came just days after receiving approval for voluntary assisted dying (VAD) and being provided with a VAD kit by SA Health.</p> <p>Parsons, who has stage 4 cancer and who had previously denied the charges, changed his plea to guilty during a Supreme Court session on Monday, ending years of speculation and investigation. His sudden admission of guilt follows a plea bargain brokered by the Office of the Director of Public Prosecutions and his counsel after the VAD approval was granted.</p> <p>In a tearful apology read to the court, Parsons expressed deep remorse for his actions, acknowledging that his behaviour was both irrational and without excuse.</p> <p>"I have no excuse for my behaviour," he told the court. "My reasoning was illogical and irrational over that time, and over the past 10 years I have tried to rehabilitate, seek help and forgiveness and demonstrate my shame in distressing actions.</p> <p>"I was fearful of confessing my past and destroying their [my wife and family's] love and trust in the person they knew.</p> <p>"I do not expect your forgiveness, and I humbly ask you accept my sincerest apology and deepest remorse."</p> <p>Despite Parsons' request for bail ahead of his sentencing, Justice Sandi McDonald deemed his crimes too severe for continued freedom and ordered his immediate custody. His access to the VAD kit while in custody remains uncertain.</p> <p>The courtroom was filled with Parsons' victims and their supporters, many of whom had worked at the banks he robbed. Some were victimised multiple times. One victim described the lasting impact of being robbed at gunpoint, detailing the immense trauma and the development of an auto-immune disease likely induced by stress. Other victims recounted struggles with PTSD, anxiety, depression, and ongoing trust issues.</p> <p>Parsons had been scheduled for trial in February on charges of armed robbery, attempted armed robbery, and firearms offences, with prosecutors alleging he stole over $250,000 from 11 banks between 2004 and 2014. DNA evidence was cited as a link to the crimes. His guilty plea and impending death are expected to ignite a legal battle over his $2.4 million estate, involving prosecutors, his heirs, and his victims.</p> <p>Previously, Parsons had been granted home detention due to his terminal stage 4 cancer diagnosis, after significant weight loss while in custody. His defence lawyer, James Marcus, stated that Parsons pleaded guilty to provide closure to the victims and their families.</p> <p>Parsons' sentencing is scheduled for June 28, marking the conclusion of a complex and emotional case that has gripped the state for years.</p> <p><em>Images: ABC News / SA Police</em></p>

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Terminal lucidity: why do loved ones with dementia sometimes ‘come back’ before death?

<div class="theconversation-article-body"><em><a href="https://theconversation.com/profiles/yen-ying-lim-355185">Yen Ying Lim</a>, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a> and <a href="https://theconversation.com/profiles/diny-thomson-1519736">Diny Thomson</a>, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a></em></p> <p>Dementia is often described as “the long goodbye”. Although the person is still alive, dementia slowly and irreversibly chips away at their memories and the qualities that make someone “them”.</p> <p>Dementia eventually takes away the person’s ability to communicate, eat and drink on their own, understand where they are, and recognise family members.</p> <p>Since as early as the <a href="https://pubmed.ncbi.nlm.nih.gov/21764150/">19th century</a>, stories from loved ones, caregivers and health-care workers have described some people with dementia suddenly becoming lucid. They have described the person engaging in meaningful conversation, sharing memories that were assumed to have been lost, making jokes, and even requesting meals.</p> <p>It is estimated <a href="https://pubmed.ncbi.nlm.nih.gov/20010032/">43% of people</a> who experience this brief lucidity die within 24 hours, and 84% within a week.</p> <p>Why does this happen?</p> <h2>Terminal lucidity or paradoxical lucidity?</h2> <p>In 2009, researchers Michael Nahm and Bruce Greyson coined the term “<a href="https://pubmed.ncbi.nlm.nih.gov/21764150/">terminal lucidity</a>”, since these lucid episodes often occurred shortly before death.</p> <p>But not all lucid episodes indicate death is imminent. <a href="https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.13667">One study</a> found many people with advanced dementia will show brief glimmers of their old selves more than six months before death.</p> <p>Lucidity has also been <a href="https://www.sciencedirect.com/science/article/pii/S0167494311001865?via%3Dihub">reported</a> in other conditions that affect the brain or thinking skills, such as meningitis, schizophrenia, and in people with brain tumours or who have sustained a brain injury.</p> <p>Moments of lucidity that do not necessarily indicate death are sometimes called <a href="https://alz-journals.onlinelibrary.wiley.com/doi/10.1002/alz.12579">paradoxical lucidity</a>. It is considered paradoxical as it defies the expected course of neurodegenerative diseases such as dementia.</p> <p>But it’s important to note these episodes of lucidity are temporary and sadly do not represent a reversal of neurodegenerative disease.</p> <h2>Why does terminal lucidity happen?</h2> <p>Scientists have struggled to explain why terminal lucidity happens. Some episodes of lucidity have been reported to occur in the presence of loved ones. Others have reported that <a href="https://psywb.springeropen.com/articles/10.1186/s13612-014-0024-5">music can sometimes improve lucidity</a>. But many episodes of lucidity do not have a distinct trigger.</p> <p><a href="https://www.sciencedirect.com/science/article/pii/S0300957223002162">A research team from New York University</a> speculated that changes in brain activity before death may cause terminal lucidity. But this doesn’t fully explain why people suddenly recover abilities that were assumed to be lost.</p> <p>Paradoxical and terminal lucidity are also very difficult to study. Not everyone with advanced dementia will experience episodes of lucidity before death. Lucid episodes are also unpredictable and typically occur without a particular trigger.</p> <p>And as terminal lucidity can be a joyous time for those who witness the episode, it would be unethical for scientists to use that time to conduct their research. At the time of death, it’s also difficult for scientists to interview caregivers about any lucid moments that may have occurred.</p> <p>Explanations for terminal lucidity extend beyond science. These moments of mental clarity may be a way for the dying person to say final goodbyes, gain closure before death, and reconnect with family and friends. Some believe episodes of terminal lucidity are representative of the person connecting with an afterlife.</p> <h2>Why is it important to know about terminal lucidity?</h2> <p>People can have a variety of reactions to seeing terminal lucidity in a person with advanced dementia. While some will experience it as being peaceful and bittersweet, others may find it deeply confusing and upsetting. There may also be an urge to modify care plans and request lifesaving measures for the dying person.</p> <p>Being aware of terminal lucidity can help loved ones understand it is part of the dying process, acknowledge the person with dementia will not recover, and allow them to make the most of the time they have with the lucid person.</p> <p>For those who witness it, terminal lucidity can be a final, precious opportunity to reconnect with the person that existed before dementia took hold and the “long goodbye” began.<!-- Below is The Conversation's page counter tag. Please DO NOT REMOVE. --><img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/202342/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /><!-- End of code. If you don't see any code above, please get new code from the Advanced tab after you click the republish button. The page counter does not collect any personal data. More info: https://theconversation.com/republishing-guidelines --></p> <p><a href="https://theconversation.com/profiles/yen-ying-lim-355185"><em>Yen Ying Lim</em></a><em>, Associate Professor, Turner Institute for Brain and Mental Health, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a> and <a href="https://theconversation.com/profiles/diny-thomson-1519736">Diny Thomson</a>, PhD (Clinical Neuropsychology) Candidate and Provisional Psychologist, <a href="https://theconversation.com/institutions/monash-university-1065">Monash University</a></em></p> <p><em>Image credits: Getty Images</em></p> <p><em>This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/terminal-lucidity-why-do-loved-ones-with-dementia-sometimes-come-back-before-death-202342">original article</a>.</em></p> </div>

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"I'm lowkey dying": Brave young woman with terminal illness shares her final wish

<p>Samantha Bulloch was given three years to live after she was diagnosed with gut-wrenching stage four bowel cancer at the young age of 28. </p> <p>A year later, Bulloch has shared a heartfelt plea on social media in hopes of meeting her idol- pop star Taylor Swift. </p> <p>The Swiftie has scored a ticket to Taylor's final show in Sydney on the 26th of February, but she’s calling on “anyone to hook a sister up” so she can meet-and-greet the singer backstage. </p> <p>“I’m low key dying and honestly this would just make my year,” she said in a video shared to TikTok. </p> <p>“I’m going out on a limb here so I’m just shooting my shot and we’re going to see what happens.</p> <p>“If anyone has any connections... I would love you forever.”</p> <p>Bulloch has been a fan of the megastar since she was 15 years old. </p> <p>“Taylor means so much to me, and I’d love the opportunity to tell her just how much of an impact she’s made on my life,” she told <em>7Life</em>. </p> <p>“I’ve loved her since I was 15, and her music has seen me through so many chapters in my life — including this one.</p> <p>“I love that her music transcends all kinds of walks of life, and so many of us connect with it so personally, despite the differences in our situations.</p> <p>“She has a real talent for making you feel less alone.I recently got a new tattoo of the lyric, ‘For the hope of it all’, from her song called August.</p> <p>“I adopted that lyric during my experience with cancer. I’m choosing to live for the hope of it all.”</p> <p>As she faces terminal cancer, Bulloch said that she is determined to live the rest of her life to the fullest. </p> <p>"I’m hoping and praying for many more years than what I’ve been given. But if not, I intend to try and maximise these few I’ve got left to the best of my ability," she said. </p> <p>“Thankfully I’ve always been quite a positive and hopeful person, and that hasn’t left me during this experience.”</p> <p>Bulloch was diagnosed with terminal cancer in 2023, after experiencing low iron levels, fatigue and blood in her stool. </p> <p>She is currently on a chemotherapy regime and an immunotherapy drug and added that she also hopes to tick off many of her bucket list destinations this year, including visiting UK, Paris, New York and Tasmania. </p> <p>“My doctor has said I can, providing the treatment I’m on now works," the hopeful 29-year-old said. </p> <p>“Thankfully treatment has been working so hopefully in a few months I’ll be able to do that."</p> <p><em>Images: Samantha Bulloch </em></p>

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Woman heartlessly steals terminally-ill man's pokies win after he collapsed

<p>Thomas Purtill, 80, had “decided to go up and throw a few dollars in the pokies" at his local pub in Caboolture, Brisbane. To his surprise, the pensioner won $300.</p> <p>As the terminally-ill pensioner was about to collect his winnings, he collapsed during a medical episode and dropped his ticket. </p> <p>“I remember landing on the floor,” Purtill, who only has six months to live, told <em>7News</em>.</p> <p>“I think I fell over before I got the ticket into the machine (to cash it in).”</p> <p>CCTV footage from the pub showed the alleged thief looking concerned as she rushed to call pub staff. </p> <p>When she returned, Purtill can be seen pointing to something by the machine, and this was when she noticed the ticket he had dropped. </p> <p>The woman then moved over to the machine and allegedly pocketed the pensioner's winnings. </p> <p>While Purtill received medical attention, the alleged thief escaped and used another machine to withdraw the cash. </p> <p>Now, the CCTV footage has been released to help police identify the mystery woman, as they urge anyone with information to come forward. </p> <p>The pensioner spend two days in hospital after the incident on November 27, and has since been diagnosed with terminal cancer. </p> <p>“I don’t want to die,” he said.</p> <p>“But I’m going to.”</p> <p>He was told he has between three to six months to live, and has since returned for treatment. </p> <p>When Purtill was asked what he thought of the alleged thief's actions he said: “I can’t really say on TV. It wouldn’t be allowed.”</p> <p>“If you’re that desperate … If someone came up to me and said, ‘You’ve had a win, can I have $10 to buy a loaf of bread, a bottle of milk for the kids?’, I would have given it to them.” </p> <p>He then went on to call her "weak", and urged anyone who might know her to “give her up”.</p> <p>Staff members have offered to reimburse Purtill for his stolen winnings. </p> <p><em>Images: 7News</em></p>

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Legendary soccer icon told he has “at best a year to live”

<p>In a heart-wrenching revelation, former England manager Sven-Göran Eriksson, at 75 years of age, has disclosed that he has been diagnosed with terminal cancer.</p> <p>Speaking to a Swedish radio station, Eriksson candidly shared the news, stating that he has "at best a year" to live. Despite the grim prognosis, the decorated football icon is determined to fight and maintain a positive outlook on life.</p> <p>During the radio interview, Eriksson acknowledged the severity of his illness, recognising that the speculation surrounding it was indeed cancer, while emphasising the need to focus on the positive aspects of life.</p> <p>“Everyone guesses it’s cancer and it is," he said. "But I have to fight as long as I can ... It is better not to think about it. But you can trick your brain. See the positive in things, don’t wallow in adversity, because this is the biggest adversity of course, but make something good out of it.”</p> <p>The former manager revealed that his health concerns came to the forefront last February when he stepped down as sporting director at Karlstad Fotboll. Eriksson, who collapsed during a 5km run, consulted doctors, only to discover that he had suffered a stroke and had cancer. Reflecting on the uncertainty of the timeline, he shared, "They don't know how long I had cancer, maybe a month or a year."</p> <p>Eriksson's illustrious career in football spans both club and international management. Leading England's Golden Generation from 2001 to 2006, he guided the team to the quarter-finals in two World Cups and a European Championship. His tenure included coaching legendary players such as Frank Lampard, Steven Gerrard, Rio Ferdinand, Paul Scholes, David Beckham and Michael Owen.</p> <p>In a poignant revelation, Eriksson admitted to his biggest regret during his time with England, expressing remorse for not bringing in a mental coach ahead of the 2006 World Cup. England faced a heartbreaking exit to Portugal in a penalty shootout, marking a pivotal moment that haunts him to this day.</p> <p>Eriksson's managerial journey took him across the globe, starting in his native Sweden and then making a name for himself in Italy with Sampdoria and Lazio. After managing Manchester City and returning to international football with Mexico and Ivory Coast, he had a brief stint with Leicester before venturing into the emerging Chinese Super League. His career concluded in 2019 with the Philippines national team.</p> <p>Eriksson's revelation about his terminal cancer diagnosis marks a poignant chapter in the life of a football icon. As he faces this formidable challenge, his resilience and positive mindset serve as an inspiration.</p> <p><em>Images: Getty</em></p>

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“Our absolute worst nightmare”: Nine reporter reveals devastating family diagnosis

<p dir="ltr">Channel Nine reporter Hayley Webb has shared how she and her brother Lachlan have been struck down with a terrifying terminal illness. </p> <p dir="ltr">The siblings have spent their entire lives living with Fatal Familial Insomnia (FFI) lying dormant in their bodies. </p> <p dir="ltr">The devastating illness, which has already claimed the lives of three aunts and uncles as well as their mother, will eventually leave the siblings unable to ever fall asleep again. </p> <p dir="ltr">From there, symptoms progress to, but are not limited to, the inability to walk, loss of sight and speech and an eventual total shutdown of the body's ability to keep itself alive.</p> <p dir="ltr">Hayley and Lachie first discovered they had the gene in 2016, and decided to take part in a study of the disease in California to end the generational curse of the genetic disorder. </p> <p dir="ltr">But tragically, earlier this year, Lachlan began having symptoms at just 35 years old, and discovered his condition had rapidly worsened.</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-permalink="https://www.instagram.com/reel/CycA3kxBDGi/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/CycA3kxBDGi/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by thetodayshow (@thetodayshow)</a></p> </div> </blockquote> <p dir="ltr">"The months leading up to it, I thought something was wrong - my memory was getting worse and I just knew something was different," Lachie told Karl Stefanovic on <em>Today</em>.</p> <p dir="ltr">"I put it off for a month or two just in case it was something else, but once I got tested I realised my fears were confirmed."</p> <p dir="ltr">Lachlan was diagnosed in April, just one day after his son's first birthday, which Hayley described as “just our absolute worst nightmare”. </p> <p dir="ltr">The diagnosis triggered the disease's rapid shutdown of the mind and body, now Lachie struggles to sleep, requires a wheelchair to get around and his speech is starting to go as well.</p> <p dir="ltr">"Lach and I have always been so close - best mates our whole life," Hayley said. "The thought of not having him around is just too much to bear."</p> <p dir="ltr">Sitting in front of the pair, Hayley's heartbreaking admission brought Karl to tears.</p> <p dir="ltr">"I don't think I've ever done a story like this, and certainly never met anybody like you two in my life," the Today host said.</p> <p dir="ltr">With Lachie being officially diagnosed with the disease so young, Hayley has started to wonder about her own mortality. </p> <p dir="ltr">The disease has an average duration of 18 months, ultimately leading to death, making the siblings worry about their families and their futures. </p> <p dir="ltr">“It's just, like, been such a stark reality check that it's not a guarantee that we're gonna get to 60, it's not a guarantee we'll make it to 50,” she said.</p> <p dir="ltr">“I've got a three-and-a-half year-old and a baby on the way who I desperately want to see grow up.”</p> <p dir="ltr">While no doctor or test can predict how long Lachie has - his wife Claire and Hayley, who is expecting, have done something extraordinary, taking their family's fate into their own hands.</p> <p dir="ltr">"We both underwent IVF and through that process we were able to conceive children who won't have the gene, so the family curse stops here," Hayley said.</p> <p dir="ltr"><em>Image credits: Today</em></p>

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F1 caller faces termination over "abhorrent" Schumacher comment

<p>A Formula One pundit recently found himself issuing an apology for an unfortunate slip of the tongue during a live TV broadcast, where he inadvertently made an insensitive remark about the legendary Michael Schumacher. The incident unfolded in the aftermath of the Japanese Grand Prix during a post-race discussion on Spanish television, as reported by <em>The Sun</em>.</p> <p>Antonio Lobato, the pundit in question, raised Schumacher's name during the discussion. Regrettably, his comment quickly made its way online, inciting outrage among fans due to its insensitivity toward the Formula One icon's ongoing health struggles.</p> <p>In the clip in question, one of Lobato's fellow broadcaster quipped to him in Spanish, "Let Adrian Newey (Red Bull's chief technical officer) be shaking because Antonio Lobato is coming."</p> <p>Lobato, perhaps in an attempt at humour in the moment, shot back, "Let Michael be shaking! Well... not Michael, he cannot shake."</p> <p>Following this exchange, the pundits shared a laugh with their colleagues, Noemi de Miguel, Pedro de la Rosa, and Toni Cuquerella.</p> <p>The incident provoked a strong backlash from viewers, with many demanding that Lobato apologise to Michael Schumacher's family. Some even called for his removal from DAZN, the broadcasting platform. One individual on X (formerly Twitter) remarked, "An apology would be the minimum, a sign of decency. You don't disrespect ANYONE that way, especially when thousands of people are watching you. Journalism in Spain has a very bright present and future with people like this."</p> <p>Another comment read, "Using someone's medical condition as the punchline of a joke is unacceptable and abhorrent. Michael is beloved and respected in this sport, and [Lobato] doesn't deserve the platform he is given."</p> <p>Subsequently, Lobato released an apology video on X, which has since garnered over five million views. In the five-minute video, he attempted to explain the "accident" while justifying his actions. Lobato stated in Spanish, "I made a mistake without any bad intentions. It was simply a mistake of pure clumsiness, of pure inability to express myself correctly, maybe because of too many hours up, jet lag in Madrid, or whatever – which is not an excuse for those of you who didn't see it."</p> <p>He went on to clarify that he never intended to make a joke or mock Michael Schumacher and that anyone who knew him would understand this.</p> <p>Lobato acknowledged his error, saying, "I think that everyone who knows me and knows what I'm like knows perfectly well that I would never make a joke about something like that. Never, but I was clumsy." He admitted that he had realised his mistake instantly after making the comment.</p> <p>He also emphasised his deep regret, stating, "So the only thing I have to do, I think it's fundamental, is to apologise to all those who felt offended by that phrase yesterday. I really, really mean it. It was not my intention to say it to laugh, nor to make any kind of joke with Michael, whom I knew, whom I admire, and whom I think is a reference and who I think was quite unlucky."</p> <blockquote class="twitter-tweet"> <p dir="ltr" lang="es">Creo que es necesario dar explicaciones y reconocer que me he equivocado. Por favor, escuchad mi vídeo. Es un poco largo, pero creo que necesario. <a href="https://t.co/89QlCMws2v">pic.twitter.com/89QlCMws2v</a></p> <p>— Antonio Lobato (@alobatof1) <a href="https://twitter.com/alobatof1/status/1706287035445653736?ref_src=twsrc%5Etfw">September 25, 2023</a></p></blockquote> <p><em>Images: Twitter (X) / Netflix</em></p>

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Terminally ill teacher convicted of child abuse granted end-of-life permit

<p>A convicted child abuser from Adelaide, who was imprisoned for his acts of paedophilia against students during his tenure as a music teacher, has been authorised to pursue assisted dying, according to an exclusive report by <a href="https://www.9news.com.au/national/exclusive-adelaide-news-jailed-paedophile-teacher-malcolm-day-given-end-of-life-permit-voluntary-assisted-dying/cab7e95c-f3b1-4dbd-ae0d-cc8dbfee22c0" target="_blank" rel="noopener">9News</a>.</p> <p>Malcolm Day, aged 81, has emerged as the first incarcerated individual in Australia to receive approval for voluntary assisted dying following a terminal illness diagnosis, reportedly linked to cancer.</p> <p>Having received a 20-year prison sentence last June, Day's remaining term spans 17 years.</p> <p>Navigating the 11-step process required for accessing voluntary assisted dying in South Australia, Day's application is reported to be in its concluding stages, potentially reaching completion within the next few days.</p> <p>Dr Philip Nitschke, the director of the pro-euthanasia organisation Exit International, acknowledged that an incarcerated individual availing themselves of this scheme was an inevitable eventuality.</p> <p>"By the sounds of it, he satisfies all the conditions of the South Australian assisted dying legislation," Dr Nitschke told 9News. "So there should be no impediment… he should be given the option that any other person would have if they were terminally ill."</p> <p>During the 1980s, Day, while serving as a music teacher in South Australia, inflicted profound and lasting harm upon two of his students. After grooming and exploiting his victims, he vehemently refuted all allegations when investigated by educational authorities.</p> <p>When Day was sentenced, his legal representative, Stephen Ey, acknowledged the real possibility of his client passing away behind bars, saying at the time that it was "a real prospect... given his age."</p> <p>According to the latest data from SA Health, since the initiation of voluntary assisted dying in January of this year, 39 terminally ill residents of South Australia have opted to peacefully conclude their lives after being granted the necessary permits.</p> <p><em>Image: Nine News</em></p>

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Terminally-ill rugby player carried across marathon finish line by his best mate

<p>There wasn’t a dry eye in the crowd when best friends Rob Burrow and Kevin Sinfield crossed the finish line of the inaugural Rob Burrow Leeds Marathon.</p> <p>The two Leeds Rhinos players have been raising money and awareness for people with Motor Neurone Disease since Burrow’s 2019 diagnosis, with the two raising an impressive total in the millions.</p> <p>And now, the pair have raised spirits and warmed hearts with Sinfield’s act at the end of their Leeds race, when he picked Burrow up from his chair and carried him over the finishing line. Before that, Sinfield had been pushing Burrow’s chair for 26.2 miles (42.2 km). </p> <p>The moment was met with cheering and applause as the wo concluded their marathon just after the 4 hour 22 minute mark, both from those who were there to witness it in person and from those who saw footage later when it circulated online. </p> <p>One Twitter user even went on to dub Burrow an “absolute gem of a human”, while another was certain that they were a “pair of absolute heroes”. </p> <p>“What a mate! Unbelievable in a world full of cr*p at the moment there are some genuinely lovely moments. These lads have been into battle together on the pitch for club and country,” one wrote. “It’s choked me up, I’m not going to lie.”</p> <p>“A bunch of legends,” someone else declared. “I’ve properly welled up watching this, this is what friendship is, to the ends of the earth and back.”</p> <blockquote class="twitter-tweet"> <p dir="ltr" lang="en">Beautiful.</p> <p>Kevin Sinfield carried Rob Burrow over the finish line at the end of the first Rob Burrow Leeds Marathon 🥹 <a href="https://t.co/JFdd9XGgV4">pic.twitter.com/JFdd9XGgV4</a></p> <p>— BBC Sport (@BBCSport) <a href="https://twitter.com/BBCSport/status/1657736670458916865?ref_src=twsrc%5Etfw">May 14, 2023</a></p></blockquote> <p>Prior to the event, Sinfield had spoken about the race to <em>The Sun</em>, and its 12,500 reported participants, as well as the thousands lining the streets to watch, and what it meant to be undertaking the marathon together. </p> <p>“Even if it was just Rob and I, we’d have a great time,” he said, “there’s no better way to do it than with your mate. The fact people want to share in it and do their own little bit is incredible.</p> <p>“This will be with mates, for mates and alongside mates, absolutely. Look across the world at big cities where marathons are run, there’s nothing like this.</p> <p>“We’ve not done any training. We ran a 10km together last July and that’s part of the challenge, doing something neither of us have done before. The unknown adds to the fun of it.</p> <p>“He’s in a custom-made chair but it could be a bumpy ride. I’ll try and find him the safest, comfiest route but if there are hills, there are hills. If it rains, it rains.”</p> <p>And as Burrow himself said to <em>The Guardian</em>, when asked about the seven marathons in seven days that Sinfield had run on behalf of Burrow, his family, and their fight against MND, “we all need a friend like Kevin.” </p> <p><em>Images: Getty</em></p>

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Rove gets candid about wife’s terminal cancer battle

<p>Rove McManus has opened up about his late wife's battle with terminal cancer, and how the couple navigated her devastating diagnosis in the public eye. </p> <p>The former talk show host spoke candidly with Jess Rowe on her podcast <em>The Jess Rowe Big Talk Show</em>, and shared how he would feel uncomfortable when asked questions about Belinda Emmett. </p> <p>"It was a tricky thing to navigate without getting mad at people for prying," McManus admitted.</p> <p>"I'd maybe give a warning and I've had times where I'd literally just sit there with my arms folded and say 'I'm not going to talk about it'."</p> <p>Rove also shared the difficulties of juggling his high profile career and caring for his sick wife, all under the scrutiny of the public eye. </p> <p>"At the time it was difficult because you're trying to juggle what you're dealing with in life with what you're dealing with at work," he said.</p> <p>"Having to do promotion which was part of the job you have to let people know what you're doing but then people want to know what's happening at home."</p> <p>The former talk show host went on to say that details about Belinda's health were reserved only for close friends and family, as he felt a lot of people asking about her wellbeing were now asking out of genuine concern. </p> <p>"It's none of your business what's happening at home, I'm not here to talk about what's happening at home," he said.</p> <p>"There are people who are like 'I need to know so I can write it down and tell people, or take it out of context, or make that key piece out of this whole chat that we've had'."</p> <p>The star explained that he'd respond to questions about his late wife with very brief answers or no answers all together.</p> <p>"I'd just shut down," he added.</p> <p>"People were told that there's legitimate no-go zones and if you don't respect that then you understand that maybe the response you get is not going to be a good one, and that's a roll of the dice you take."</p> <p>Belinda Emmett sadly passed away after her battle with cancer in 2006. </p> <p>Rove then remarried in 2009, and he and his wife Tasma Walton have been happily married ever since. </p> <p><em>Image credits: Getty Images</em></p>

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Man who lived in airport for 18 years dies

<p dir="ltr">The man who inspired Steven Spielberg’s <em>The Terminal</em>, as well as a French film and an opera, has died in the airport where he lived for 18 years.</p> <p dir="ltr">Mehran Karimi Nasseri suffered a heart attack in Terminal 2F of the Charles de Gaulle airport on Saturday and died after police and a medical team were unable to save him, according to an official with the Paris airport.</p> <p dir="ltr">Mr Nasseri, believed to have been born in 1945 in Soleiman, the then-British controlled area of Iran, lived in Terminal 1 between 1988 and 2006, at first while he was in a legal limbo because he was without residency papers and later by choice.</p> <p dir="ltr">The airport official said the 76-year-old had been living in the airport again in recent weeks.</p> <p dir="ltr">His first stint at the airport, when he spent years sleeping on a red plastic bench, making friends with airport workers, showering in staff facilities and spending time writing in his diary, studying economics and watching passing travellers inspired <em>The Terminal</em> starring Tom Hanks, as well as French film <em>Lost in Transit</em> and the opera <em>Flight</em>.</p> <p><span id="docs-internal-guid-60e6406c-7fff-168d-d594-bf2658fa4d87">Mr Nasseri published his autobiography, <em>The Terminal Man</em>, the same year <em>The Terminal </em>was made.</span></p> <p><img src="https://oversixtydev.blob.core.windows.net/media/2022/11/mehran-nasseri1.jpg" alt="" width="1280" height="720" /></p> <p dir="ltr"><em>Mehran Karimi Nessari lived in the Charles de Gaulle airport for 18 years, with his belongings surrounding a red plastic bench he slept on. Image: Getty Images</em></p> <p dir="ltr">After leaving Iran to study in England in 1974, he was reportedly imprisoned on his return for protesting against the shah while abroad and was exiled soon after.</p> <p dir="ltr">He applied for political asylum in several European countries and was given refugee credentials by the United Nations High Commissioner for Refugees in Belgium in 1981, but was later denied entry into England after the briefcase containing his documents was stolen at a Paris train station.</p> <p dir="ltr">Although he was arrested by French police after being sent back to Charles de Gaulle from England, he couldn’t be deported because he had no official documents and stayed.</p> <p dir="ltr">After lengthy legal campaigning, more bureaucratic bungling and increasingly strict European immigration laws kept him in a legal no-man’s land for years, Mr Nasseri was offered French and Belgian residency, but he refused to sign the papers as they listed him as Iranian and didn’t show his preferred name, Sir Alfred Mehran.</p> <p dir="ltr">He stayed at the airport for several more years before being admitted to hospital in 2006 and he later lived in a French shelter.</p> <p dir="ltr">Those at the airport who befriended him said Mr Nasseri’s years of living there had taken a toll on his mental health, while the airport doctor described him as “fossilised here” in 1990.</p> <p dir="ltr">One friend, a ticket agent, compared him to a prisoner incapable of “living on the outside”.</p> <p dir="ltr">“Eventually, I will leave the airport,” Mr Nasseri told the Associated Press in 1999, looking frail with thin hair, hollow cheeks and sunken eyes.</p> <p dir="ltr">“But I am still waiting for a passport or transit visa.”</p> <p><span id="docs-internal-guid-4bd7e308-7fff-3d7d-6c45-f058a4043631"></span></p> <p dir="ltr"><em>Image: Getty Images</em></p>

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Type of person who struggles with the idea of terminal illness

<p dir="ltr">People who tend to look after themselves by working out and eating healthy foods are more likely to struggle with the idea of death and the process of dying. </p> <p dir="ltr">Palliative care nurse Maryan Bova has helped people with dying for 25 years and said some people accept their terminal diagnosis while others struggle to come to terms with it. </p> <p dir="ltr">She revealed that those who lived a healthy lifestyle were those who felt more ripped off when they are given the awful diagnosis. </p> <p dir="ltr">“They're the ones that have looked after themselves their whole life, for example the yoga teacher who runs retreats and has probably never eaten anything that wasn't organic and green in their life,” she told Mamamia. </p> <p dir="ltr">“And yet they've been smacked down with a horrible diagnosis. It can feel like a slap in the face.”</p> <p dir="ltr">Maryan confessed that the job can be emotionally draining as some experiences stick with her, especially when she was in the same position. </p> <p dir="ltr">Her mother Helen was diagnosed with brain cancer and Maryan did what she did best - but this time it was someone close to her. </p> <p dir="ltr">"I knew what it would all end up looking like, but I also knew how to orchestrate the help that was needed for her to die at home in a space she was comfortable in,” she said.</p> <p dir="ltr">“It was a gift to have that time to talk openly, have important conversations and bond as a family. It was like mum became childlike again, a full-circle moment.”</p> <p dir="ltr">Maryan stressed that it was important to look at how people with a terminal diagnosis are treated in the last moments of their life. </p> <p dir="ltr"><em>Images: Facebook/Shutterstock</em></p>

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Aussie with terminal cancer uses time left to make her mark

<p dir="ltr">An Australian researcher who has been diagnosed with terminal ovarian cancer is busy making plans for when she’s gone - including a contribution she hopes will help advance research in animal studies.</p> <p dir="ltr">Siobhan O’Sullivan was diagnosed with stage 3 ovarian cancer in July 2020, finding out within a year that the cancer had spread and that her illness was terminal.</p> <p dir="ltr">“In the week prior to my diagnosis, I was starting to say to people, ‘I’m not feeling right - I think it’s stress because Dad’s going to die soon’,” she told <em><a href="https://7news.com.au/lifestyle/health-wellbeing/a-silent-killer-has-left-her-terminally-ill-now-this-aussie-woman-has-a-simple-message-c-6854866" target="_blank" rel="noopener">7News</a></em>.</p> <p dir="ltr">“The week before dad died, I went to the doctor and said, ‘Something’s not right’.”</p> <p dir="ltr">During her treatments Siobhan suffered multiple strokes - an unexpected side effect - but even extensive treatment couldn’t stop the cancer from spreading.</p> <p dir="ltr">“That was a huge blow for me because a lot of women at that point do get some remission time,” she said.</p> <p dir="ltr">“I’m now at 19 months, which means I’m on borrowed time.”</p> <p dir="ltr">Though she’s living with death, Siobhan has maintained her humour and optimism, as well as her advocacy for ovarian cancer and the legalisation of voluntary assisted dying.</p> <p dir="ltr">She also began making plans, divesting her property and funds to her niece, nephew, godson and his sister, and ensuring her podcast is in good hands once she’s gone.</p> <p dir="ltr">Siobhan has also bequeathed $50,000 to the Australisian Animal Studies Association (AASA), which she is a founder of, and is helpling to establish two awards for future researchers.</p> <p dir="ltr">She is an associate professor of politics at Sydney’s University of New South Wales and was extremely involved in research around animal studies and her other passion, the alleviation of social issues related to poverty.</p> <p dir="ltr">Thanks to her donation, the AASA is offering two new prizes: one for early-career researchers, and the other for animal studies scholars, artists or advocates who have worked to promote their insights and findings with their peers and the public.</p> <p dir="ltr">“This is an exciting way to help the field of animal studies,” she said in a <a href="https://www.inside.unsw.edu.au/awards/new-awards-scheme-advances-the-emerging-sub-discipline-animal-studies#:~:text=As%20a%20founder%20of%20the,be%20established%20in%20coming%20years." target="_blank" rel="noopener">statement</a>. “My own research … suggests that many animal studies scholars feel isolated and their research is not acknowledged by their own institutions. </p> <p dir="ltr">“These awards are a way of strengthening the animal studies community and giving scholars a sense of achievement and recognition.”</p> <p><span id="docs-internal-guid-797bc252-7fff-26df-4e48-a4265576659f"></span></p> <p dir="ltr">As she nears the end of her life, Siobhan has said she would feel immensely comforted by the thought that she could legally end her life before her cancer brings her even more suffering.</p> <blockquote class="twitter-tweet"> <p dir="ltr" lang="en">I was so honoured to speak on behalf of people facing horrible deaths in NSW. Today I'll be watching <a href="https://twitter.com/nsw_upperhouse?ref_src=twsrc%5Etfw">@nsw_upperhouse</a> &amp; <a href="https://twitter.com/NSWParlLA?ref_src=twsrc%5Etfw">@NSWParlLA</a> closely. I hope our political leaders use their power to ease the load of the terminally ill &amp; their friends &amp; family. <a href="https://twitter.com/hashtag/AssistedDying?src=hash&amp;ref_src=twsrc%5Etfw">#AssistedDying</a> <a href="https://twitter.com/hashtag/VAD?src=hash&amp;ref_src=twsrc%5Etfw">#VAD</a> <a href="https://twitter.com/hashtag/nswpol?src=hash&amp;ref_src=twsrc%5Etfw">#nswpol</a> <a href="https://t.co/hecIbBdBAl">pic.twitter.com/hecIbBdBAl</a></p> <p>— Siobhan O'Sullivan 🥦😸♋ (@so_s) <a href="https://twitter.com/so_s/status/1527089433501405184?ref_src=twsrc%5Etfw">May 19, 2022</a></p></blockquote> <p dir="ltr">“My view is that there is no benefit that’s going to come to me, or my family, or this world, for me to suffer the last couple of weeks of a death by ovarian cancer,” she said.</p> <p dir="ltr">But the very recent <a href="https://www.oversixty.com.au/health/caring/emotional-scenes-as-nsw-passes-law-on-voluntary-assisted-dying" target="_blank" rel="noopener">passing of the Voluntary Assisted Dying Bill</a> in NSW Parliament might still come too late for Siobhan, since it could take up to 18 months for the law to come into effect.</p> <p dir="ltr">Despite it not necessarily being an option she could take up, Siobhan says her advocacy will help others in the future.</p> <p dir="ltr">“This is for the other people, for the next people - the people in one, two, three years time,” she said.</p> <p dir="ltr"><span id="docs-internal-guid-62a0997d-7fff-4443-1f85-8266d60241af"></span></p> <p dir="ltr"><em>Image: Siobhan O’Sullivan (Facebook)</em></p>

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Terminally ill nurse caught in desperate waiting game

<p dir="ltr">A nurse who has months to live as a result of her diagnosis of motor neuron disease (MND) is “virtually paralysed” and waiting for the NSW government to decide how she will die.</p> <p dir="ltr">Sara Wright had been a nurse for 33 years before she was diagnosed with amyotrophic lateral sclerosis (ALS) - a subtype of MND - two years ago, and is now dependent on a carer 24 hours a day.</p> <p dir="ltr">“The disease started as a weakness in my right foot, travelled up my right leg, then my left foot and leg,” the 54-year-old told <em><a href="https://7news.com.au/news/public-health/virtually-paralysed-nurse-waits-for-nsw-parliament-to-decide-how-she-will-die-c-6699939">7NEWS.com.au</a></em>.</p> <p dir="ltr">“Then it travelled up my torso affecting my upper body, firstly my abdominal muscles, and now it affects both of my arms and hands, my lungs and my swallowing and speaking muscles.”</p> <p dir="ltr">Ms Wright, who shared her story via dictation since speaking is difficult and painful, is waiting to see whether voluntary assisted dying laws (VAD) will be passed in the NSW Upper House next week.</p> <p dir="ltr">If they don’t pass, she says she will likely “have to deal with suffocating or choking to death”.</p> <p dir="ltr">“It’s a terminal illness and the average life expectancy is three to five years,” she explained.</p> <p dir="ltr">“Given I have already been living with the disease for three years, and the progression has been faster than I ever could have expected, I don’t know how long I will live.</p> <p dir="ltr">“I don’t think that I will live for more than another six to eight months, as my breathing capacity is reducing very fast and I do not wish to have a tracheostomy (an operation where a breathing hole is cut into the front of the neck and windpipe).”</p> <p dir="ltr">ALS/MND is more common among adults aged between 40 and 70 years, with 384 people diagnosed each day according to the <a href="https://www.als-mnd.org/what-is-alsmnd/" target="_blank" rel="noopener">International Alliance of ALS/MND Associations</a>.</p> <p dir="ltr">Ms Wright’s career as a nurse made her all too aware of the “limitations of palliative care in the final stages of terminal illness”, so she initially planned to book into Dignitas, a non-profit organisation in Switzerland that offers a range of end-of-life services.</p> <p dir="ltr">But, the COVID-19 pandemic derailed her plan with the closure of international borders.</p> <p dir="ltr">She then considered moving interstate, where VAD is legal, but she worried about uprooting her 15-year-old daughter, Ester, from her home and friends, especially since most of their family is UK-based.</p> <p dir="ltr">“(Ester) is now 15 and she needs to have her community around her for support when I die,” she said.</p> <p dir="ltr">“Obviously this is an incredibly difficult conversation to have with your own child.</p> <p dir="ltr">“We have not specifically spoken about what could happen to me if the laws aren’t passed … but I have tried to assure her that family in the UK will fly out to be with her as soon as they can if I die unexpectedly.”</p> <p dir="ltr">Ms Wright’s fate is tied to the voluntary assisted dying bill, which passed through the NSW Parliament’s lower house last year and is legal or will soon be legal in <a href="https://end-of-life.qut.edu.au/assisteddying" target="_blank" rel="noopener">every other state</a> except NSW.</p> <p dir="ltr">“I know that all my family, my parents, my brothers, my ex-husband are all in support of voluntary assisted dying and helping me relieve my suffering,” she said.</p> <p dir="ltr">“But none of us want to break the law or risk anyone being imprisoned if they helped me.”</p> <p dir="ltr">Since the bill entered the upper house last March, it has been debated passionately and passed through a second reading stage last week.</p> <p dir="ltr">It has even divided the state’s core leadership, with Premier Dominic Perrottet opposing the bill in favour of improving palliative care and Health Minister Brad Hazzard supporting it - despite opposing euthanisia for 29 years.</p> <p dir="ltr">Ms Wright, a strong supporter of VAD laws, has been brought close to the death of others during her nursing career and said she was “pretty certain” that if members debating the bill had seen people die uncomfortable, drawn-out deaths like she had, they would support the bill.</p> <p dir="ltr">“I have seen far too many people, elderly people, in the middle of the night in a ward without anyone there to hold their hand because nobody knew that was going to be their time to die,” she said.</p> <p dir="ltr">“I think that most people don’t think enough about death because we are all frightened of it.</p> <p dir="ltr">“And this could be the reason that some people are refusing to consider VAD laws, because it’s a topic that is deeply uncomfortable and taboo.</p> <p dir="ltr">“If we as a society were more mindfully aware and thoughtful about death, as it is the only certain outcome of life, then perhaps people would develop more compassion.”</p> <p dir="ltr">Though the laws could still be passed at some point if it fails to pass in next week’s final vote, Ms Wright said it would affect her whole family if it was too late for her to take advantage of it.</p> <p dir="ltr">“This will not only cause suffering to me but also to all of my family,” she said.</p> <p dir="ltr">“I wonder how many people have really stopped to think about what they would like, if they were in a position where they were going to die of (an) unpleasant and drawn-out death.”</p> <p><span id="docs-internal-guid-efb8451b-7fff-fb48-8f9b-0af951ee000d"></span></p> <p dir="ltr"><em>Image: 7News</em></p>

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