Charlotte Foster
Caring

Celine Dion shares powerful message of hope

Celine Dion has shared a powerful statement about her health battle since being diagnosed with stiff person syndrome. 

The French-Canadian musician has chronicled her health journey in a new documentary titled I Am: Celine Dion, and took to Instagram to promote the new film. 

While sharing with her legion of fans how her health has progressed, she said she remains hopeful that she will one day return to the stage.

In a lengthy post, she wrote, “This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me."

"As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans."

"During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.” 

In December 2022, Celine announced that she would be taking some time away from performing  to focus on her health after revealing her stiff person syndrome diagnosis.

At the time, she said the condition did not allow her “to sing the way I’m used to”.

According to the National Institute of Neurological Disorders and Stroke, stiff person syndrome is “a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord.”

According to an official synopsis, I Am: Celine Dion will give viewers an intimate look inside her life “as she reveals her battle with stiff person syndrome (SPS) and the lengths she has gone to continue performing for her beloved and loyal fans”.

Capturing over a year’s worth of Dion’s life, including “never-before-seen” private moments, the film will showcase the legendary singer navigating “her journey toward living an open and authentic life amidst illness”.

Image credits: Getty Images 

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caring, health, Celine Dion, stiff person syndrome