Mother of Charlie Teo's "miracle girl" shares more tragic news
In the face of immense tragedy and loss, Monica Smirk, the mother of 14-year-old Amelia "Milli" Lucas, has opened up about more devastating news that has befallen her family.
Amelia, fondly known as Milli, passed away a month after celebrating her 14th birthday on January 4, 2021, following a courageous battle against a rare and terminal genetic cancer.
Diagnosed with a Grade VI Glioblastoma at the tender age of nine, Milli was given a mere 12 weeks to live. However, with the help of controversial neurosurgeon Charlie Teo, she defied the odds, surviving another remarkable five years after undergoing two surgeries.
Now, Monica, her resilient mother, has revealed that she is facing her own battle with terminal cancer. Inoperable tumours on her back have cast a shadow of uncertainty, leaving her and her family grappling with fear and hope.
The Smirk family has encountered the devastating impact of Li-Fraumeni syndrome, a rare gene disposition that has tragically claimed the lives of Monica's mother, brother, daughter, niece, and nephew. This syndrome, affecting fewer than 1,000 individuals worldwide, greatly increases the risk of various cancers throughout one's life.
Recalling the emotional turmoil, Monica shared that she first discovered the lumps on her back while caring for Milli in 2021, but the overwhelming emotions held her back from seeking an immediate biopsy. As her health situation progressed, treatment was halted after fluid was found in her lungs. Nevertheless, she holds on to the possibility of further treatment options pending additional scans later this year.
In another heart-wrenching update, Monica also revealed that her 19-year-old daughter Tess is awaiting the results of a concerning annual scan. Tess, who also battles Li-Fraumeni syndrome, faced her own hardships when diagnosed with a brain tumour in 2016, resulting in legal blindness. Despite the challenges, she courageously pursues her dream of becoming a professional dancer.
As the Smirk family grapples with these overwhelming health challenges, their community has come together, rallying behind them with love and support.
The Millstar Foundation, an initiative started by the family to honour their beloved "angel" Milli, aims to provide alternative therapies for patients in Western Australia. Their efforts have been met with an outpouring of generosity, as they have collected more than $13,000 worth of prizes for a raffle, supporting Monica in her fight for life.
Milli's journey with Dr Teo, who she affectionately referred to as her "miracle worker," brought both hope and controversy. Though he successfully removed 98 percent of a brain tumour considered inoperable and incurable by other surgeons in 2019, recent incidents have led to reprimands by the NSW Medical Board.
While the circumstances are undoubtedly heartbreaking, Monica expressed her gratitude for the extra years Dr Teo provided Milli, acknowledging the precious time and memories they had together.
Amidst the pain, Monica also spoke out about her concern for other patients who may no longer have access to potentially lifesaving surgeries due to restrictions imposed on Dr Teo. She hopes that future research and medical advancements will continue to shine a light of hope for those facing similar battles.
In the face of unimaginable adversity, the Smirk family finds solace in the unwavering support and love of their community. For those who wish to contribute to the raffle and extend a helping hand to the Smirk family, The Millstar Foundation Incorporated Facebook group provides an opportunity to make a difference and be a source of hope in their challenging journey.
Images: Facebook