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Mother and son reunited after rigid aged care rules divided them

<p>An elderly woman and her disabled son are celebrating after they successfully beat a bureaucratic blockage that threatened to <a href="https://oversixty.com.au/lifestyle/family-pets/red-tape-threatens-to-remove-a-man-with-down-s-syndrome-from-his-elderly-mother" target="_blank" rel="noopener">split</a> them up for good. </p> <p>Anne Deans, 81, and her 56-year-old son, Mark, who suffers from Down's syndrome, were hoping to live together in Anne's aged care facility, but the pair were met with countless hurdles when trying to get Mark a room of his own. </p> <p>Now, Mark's sister Sharon shared the happy news that the mother and son are to be reunited.</p> <p>"We're very happy today. We've got a great result," Sharon told <a href="https://9now.nine.com.au/a-current-affair/melbourne-mum-and-son-living-with-downs-syndrome-reunited-in-aged-care-facility/ff023844-be2d-4ab8-be95-75bf91f17b4a" target="_blank" rel="noopener"><em>A Current Affair</em></a>.</p> <p>"I'm so grateful that people understood and they listened. That's all I ever wanted through this whole thing, was someone to listen."</p> <p>The problems began when authorities originally refused Mark's request to move into Anne's aged care facility, with federal government policy saying that aged care is "not appropriate for people under 65".</p> <p>But Mark's relatives argued that given the life expectancy of people living with Down's syndrome is 60 years, an exception should be made.</p> <p>A new assessment was done and Mark has been granted a place at the same nursing home as his mother, as Mark's other sister Michelle said, "We got what we wanted. Everything worked out perfectly, the way it's supposed to."</p> <p>After Anne received the exciting news, she said, "I'm feeling great. He's staying with Mum!"</p> <p>Sharon and Michelle hope that their experience will assist other families with unique circumstances.</p> <p>"My advice is to keep pushing," Sharon said. "Only you know your family and you have to be their voice.</p> <p>"There's a lot of difference out there and a lot of people who are individuals [and] they need to be looked at individually."</p> <p><em>Image credits: A Current Affair </em></p>

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Red tape threatens to remove a man with Down's syndrome from his elderly mother

<p>An elderly mother and her disabled son are at risk of being separated over the woman's aged care home's red tape. </p> <p>Anne Deans, 81, moved into an aged care facility in July and hoped that she would be able to bring her son, Mark, who suffers from Down's syndrome with her. </p> <p>Mark, 56, has always lived with his mother, and despite his disability, has lived a full life and has dabbled in acting, appearing on Aussie TV hit <em>Blue Heelers</em>.</p> <p>But now, the mother and son have been left in limbo by a bureaucratic battle. </p> <p>Despite the family's history and Mark's disability, the government refuses to fund a place for Mark at Anne's aged care home, stating that aged care is "not an appropriate service for people aged under 65".</p> <p>"People with Down's syndrome have a life expectancy of 60 years. That's if we're lucky. So Mark is experiencing all of the age issues that my Mum is," Mark's sister Sharon said.</p> <p>Sharon and her sister Michelle have been lobbying on Mark's behalf, with Michelle saying, "I don't know why it's so hard. There's so much red tape."</p> <p>"There's so many hills to jump, just to have a mum and a son together. It doesn't make any sense."</p> <p>Anne is digging in and appealing to the Minister for Aged Care Anika Wells for help. </p> <p>"I brought him up all these years, and all of a sudden someone's going to walk in and take him out," Anne told <a href="https://9now.nine.com.au/a-current-affair/victoria-red-tape-threatens-to-tear-man-with-disability-from-his-mum/df4ef75b-6df1-4507-8a73-dfae0b258e08" target="_blank" rel="noopener"><em>A Current Affair</em></a>.</p> <p>"It is damn ridiculous. They should open up their eyes and see what it's doing. He's not going anywhere. I don't know how I'm going to stop it, but I will."</p> <p>In a statement, Ms Wells said, "While Aged Care is generally not suitable for people under the age of 65, we recognise there are exceptional circumstances where people may need to enter aged care before this age, including when there is no suitable accommodation for them."</p> <p>"The New Aged care Act includes exceptional circumstances for people to enter Aged Care before they turn 65, including when they would otherwise be at risk of homelessness."</p> <p>"There are processes in place to support people to explore their options and ensure they have safe and appropriate accommodation."</p> <p>"We encourage Mark to continue to work with Ability First Australia and the Aged Care Assessment Teams to explore all the options."</p> <p><em>Image credits: A Current Affair </em></p>

Family & Pets

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Life after the kids leave: Navigating changes and embracing empty nest syndrome

<p>As your children grow up and go to college, you dread the day they will leave your nest. When they finally leave, it is natural to feel empty and miss the familiar echoes of laughter around the dinner table. While feeling a sense of loss is natural for every parent, it shouldn’t linger. When the feeling lingers, it becomes the empty nest syndrome.</p> <h2>What Is Empty Nest Syndrome?</h2> <p>Empty nest syndrome is an emotional phase and a sense of loss that parents experience when children leave home. Your children becoming adults and leaving your nest symbolises the end of active parenting responsibilities. Since you are uncertain about what to do with the free time on your hands, you may experience a loss of identity and purpose. You have fewer chores and miss your children.</p> <p>When you have empty nest syndrome, you experience a mix of emotions. You may feel lonely and sad in an empty house. The feeling lasts a few days or weeks, but for others, it is intense and may stir up anxiety. If you have empty nest syndrome, you may feel a sense of redundancy and persistent sadness. With no more school runs and daily involvement in your kids’ lives, it’s easy to feel redundant in their lives, leaving you with a lingering sadness and restlessness.</p> <h2>How to Deal with Empty Nest Syndrome</h2> <p>If you are experiencing empty nest syndrome, you can take the following steps to live a fulfilling life:</p> <p><strong>Set New Goals</strong></p> <p>The sudden quietness that comes with children leaving the house can be jarring. However, in the silence awaits a new chapter of your life that starts with you setting new goals. Think about what you want to learn or try out, and write down the steps you need to get there. Whether it is travelling the world or picking up a new hobby, you can achieve self-fulfilment.</p> <p><strong>Identify New Ways to Strengthen Family Bonds</strong></p> <p>You need to redefine your relationships with your children and partner. Your parenting role takes centre stage in your life. As the nest empties, you have a chance to nurture the bond with your partner. Discover each other's aspirations and dreams. You can travel the world together or find new hobbies as a couple. You also need to redefine your bond with your children. Understand that the relationship with your adult children is evolving. Stay connected to your kids, but ensure they have their independence.</p> <p><strong>Adapt Your Cooking Style for Two</strong></p> <p>When you have children at home, you cook for a large family, and you are always excited to prepare the next meal. As your children move out, you have to transition to cooking in a smaller household. Downsizing meals can be challenging when you are used to preparing a large pot of food. Portioning meals to avoid cooking excess food will be challenging at first. However, you can find meal kits from meal delivery services, such as <a href="https://www.hellofresh.com.au/" target="_blank" rel="nofollow noopener">HelloFresh</a>, that offer meal kits for two. Most meal delivery services send pre-portioned ingredients to prevent food waste.</p> <h2>Discovering New Hobbies to Bring Joy and Fulfilment</h2> <p>Reduce your empty nest symptoms by finding new, exciting activities. Having new hobbies gives you a sense of fulfilment and takes up your time. Consider learning new hobbies like gardening, writing or volunteering. Join a club in the community or volunteer programs. It’s a great way to meet new people and fill up your free time with rewarding experiences.</p> <p>Empty nest syndrome is a period of transformation, and it’s important to maintain a positive attitude during this period. You can rediscover yourself and redefine your priorities. If there is a dream you had put on hold, you can pick it up.</p> <p><em>Image: Becca Tapert / Unsplash</em></p> <p><em>This is a sponsored article produced in partnership with HelloFresh.</em></p>

Family & Pets

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"Felt like a criminal": Mother and disabled son "kicked out" of Pink concert

<p>A distraught mother has taken to social media to recall the moment her and her seven-year-old son, who has Down syndrome, were asked to leave a concert venue. </p> <p>Vanessa Vasey, 48, spent over $1,000 to take her son Jesse to see Pink in London during her UK stadium tour, but when the pair arrived at the venue, things took a turn. </p> <p>Jesse struggled to stay still in his seat and was soon surrounded by "six security guards" who ordered the disabled boy to sit down, otherwise they would have to leave.</p> <p>She said she tried to explain her son’s condition to the guards but they ended up being “escorted from the premises” just as Pink took to the stage.</p> <p>On Facebook, Vasey wrote in detail about what happened, saying her son had been “robbed” of a special experience.</p> <p>“Music is his life and Pink is one of his absolute favourites,” she wrote.</p> <p>“We successfully saw her perform at BST Hyde Park last year and were thrilled to learn of her return again this year.”</p> <p>Vasey said she purchased more expensive “hospitality tickets” allowing people to move between bars and food outlets during the night “so that Jesse wouldn’t be pressured into remaining in one seat all night, as he gets overwhelmed in busy environments and finds it hard to sit still.”</p> <p>“We spent some time in the bar leading up to the main act, and Jesse was having a wonderful time, until about 45 minutes before Pink was due to come on, they suddenly shut all the blinds, obstructing us from seeing anything,” she wrote.</p> <p>“I tried to consult with the hospitality managers over this, and explained Jesse’s needs, but they wouldn’t budge on it. So not wanting Jesse to stare at a blind all night, we attempted to go into the seating zone."</p> <p>“We couldn’t get him to sit in his seat, but he was happy dancing and singing at the front railings, and even interacting with some of the other guests."</p> <p>“Doing no harm to anyone, or obstructing anyone’s view. This seemed OK for about half an hour or so. Then ... just as Pink dropped from the sky in her opening number, we had six security guards come into the zone and ask us to leave or sit in our seats.”</p> <p>Vasey said the security guards were “abrupt, intimidating and unpleasant”, as they "tried to force us to take Jesse to a sensory room which was soundproof, and watch Pink on a screen.” </p> <div> </div> <p>“Something we could do at home, robbing us of the whole experience, as if my son was some sort of inconvenience, and better off shut in a room out of sight.”</p> <p>When Vasey complained to venue staff, she claims that more security guards appeared and they had no choice but to leave. </p> <p>“We were escorted out of the building like criminals and saw no more of the Pink show. Jesse was utterly devastated, and they showed absolutely zero care or understanding."</p> <p>“Shame on you Tottenham Stadium,” she concluded. “My poor boy deserved so much better than this!”</p> <p>After UK media picked up Vasey's story, Tottenham Stadium released a statement explaining their actions. </p> <p>“Following further investigation, we can confirm that Ms Vasey was offered assistance by our Safeguarding and Welfare teams throughout the night to provide Jesse with a comfortable viewing experience, including access to our dedicated Sensory Room,” the statement read.</p> <p>“The offers of assistance were declined by Ms Vasey and the party chose to leave the event.”</p> <p>Vasey was soon set upon by online trolls who condemned her choice to take Jesse to the concert in the first place, to which she issues a lengthy statement about inclusivity and not singling people out for their disabilities. </p> <p>“Why do we take them [to events]? Because, as parents, we have the same dreams and aspirations for our children as any other parent,” she wrote.</p> <p>“We have the same desires to see our children’s faces light up, as any other parent would. Our children are exposed to the same world as other children, and they enjoy the same things."</p> <p>“They have the same likes and desires. The only thing that’s different is their needs, their abilities and their way of accessing their dreams."</p> <p>“Why should these things deny them of fulfilling these dreams and passions? This is meant to be a world of inclusion. So let’s start including!"</p> <p>“That means adapting, understanding, supporting and most importantly; changing the way we deliver these privileges so that they are privileges for all of us, and not just some of us.”</p> <p><em>Image credits: Facebook/Richard Isaac/Shutterstock Editorial </em></p> <div class="hide-print ad-no-notice css-qyun7f-StyledAdUnitWrapper ezkyf1c0" style="box-sizing: border-box; caret-color: #292a33; color: #292a33; font-family: HeyWow, Montserrat, 'Helvetica Neue', Helvetica, Arial, sans-serif; font-size: 15px;"> </div>

Caring

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Teen with Down Syndrome sets new world record

<p>A 19-year-old teen with Down Syndrome has conquered the London Marathon and became a Guinness World Record after just five months of training. </p> <p>Lloyd Martin from Cardiff completed the 42.1 km course across the capital with his mother cheering him on. </p> <p>Guinness World Record has awarded him the certificate for becoming the youngest person in his learning disability category to finish a marathon. </p> <p>"I'm so excited to run London. I love being fit and healthy and I want to make my family and friends proud," the teenager said. </p> <p>Mum Ceri Hooper also told the<em> BBC</em> how proud she was of her son's accomplishment. </p> <p>"In Lloyd's words, it's achieving his dream," she said. </p> <p>"Really anything is possible if you put your mind to it. With a bit of work, you can achieve it."</p> <p>Recalling the experience, the proud mum said: "He ran continuously for 14 miles which is the longest he's ever run before." </p> <p>Although Lloyd walked for a bit after his 14-mile-long streak, the crowd cheered him on every step of the way, and despite the challenge the mother-and-son duo had "a ball". </p> <p>The pair were at a loss for words when he finally crossed the finish line and they both "burst into tears." </p> <p>Lloyd is also now the third Welsh Special Olympics athlete to compete in the London Marathon. </p> <p>Prior to completing the world-famous marathon, Lloyed had completed an astonishing 30 Parkruns. </p> <p>Until last Christmas the teenager had never run further than three miles, but his mother was determined to get him marathon-ready. </p> <p>Ceri, who has taken on the London Marathon four times, created a specialised training regime for her son which included weekly runs. </p> <p>Lloyd managed to secure a spot in the marathon thanks to the help of the Special Olympics GB, where he is also a footballer and a gymnast. </p> <p><em>Images: Facebook/ Twitter</em></p>

Caring

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Celine Dion shares rare health update

<p>Celine Dion has shared a rare health update, and revealed that she is determined to get back onstage despite her battle with stiff person syndrome. </p> <p>The singer took to Instagram to share a photo of herself with son René-Charles Angélil, 23, and 13-year-old twins Eddy and Nelson. </p> <p>“Trying to overcome this auto-immune disorder has been one of the hardest experiences of my life, but I remain determined to one day get back onto the stage and to live as normal of a life as possible,” she shared on Friday. </p> <p>“I am deeply grateful for the love and support from my kids, family, team and all of you!”</p> <p>She shared the post in honour of stiff person syndrome awareness day, which falls on the 15th of March. </p> <p>“I want to send my encouragement and support to all those around the world that have been affected by SPS,” she continued in her post. </p> <p>“I want you to know you can do it! We can do it!” she concluded, signing off, “Love Celine xx.”</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/C4j2U_6OI-9/?utm_source=ig_embed&amp;utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/C4j2U_6OI-9/?utm_source=ig_embed&amp;utm_campaign=loading" target="_blank" rel="noopener">A post shared by Céline Dion (@celinedion)</a></p> </div> </blockquote> <p>Stiff Person Syndrome is an an extremely rare neurological disorder that affects the nervous system, mainly the brain and spinal cord. </p> <p>According to the US National Institutes of Health, this disorder can cause stiff muscles in the torso, arms and legs, significantly impeding mobility. </p> <p>The <em>My Heart Will Go On</em> singer first went <a href="https://www.oversixty.com.au/health/caring/celine-dion-reveals-shock-diagnosis" target="_blank" rel="noopener">public</a> with her diagnosis on the 8th of December in 2022, after she was forced to postpone some of her tour dates. </p> <p><em>Image: Instagram</em></p> <p> </p>

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Celine Dion shares powerful message of hope

<p>Celine Dion has shared a powerful statement about her health battle since being diagnosed with stiff person syndrome. </p> <p>The French-Canadian musician has chronicled her health journey in a new documentary titled <em>I Am: Celine Dion</em>, and took to Instagram to promote the new film. </p> <p>While sharing with her legion of fans how her health has progressed, she said she remains hopeful that she will one day return to the stage.</p> <p>In a lengthy post, she wrote, “This last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me."</p> <p>"As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans."</p> <p>"During this absence, I decided I wanted to document this part of my life, to try to raise awareness of this little-known condition, to help others who share this diagnosis.” </p> <p>In December 2022, Celine announced that she would be taking some time away from performing  to focus on her health after revealing her stiff person syndrome diagnosis.</p> <p>At the time, she said the condition did not allow her “to sing the way I’m used to”.</p> <p>According to the <a href="https://www.ninds.nih.gov/health-information/clinical-trials/cause-development-and-progression-stiff-person-syndrome#:~:text=Stiff%2Dperson%20syndrome%20(SPS),recurrent%20falls%20and%20impaired%20ambulation." target="_blank" rel="noopener">National Institute of Neurological Disorders and Stroke</a>, stiff person syndrome is “a rare, progressive syndrome that affects the nervous system, specifically the brain and spinal cord.”</p> <p>According to an official synopsis, <em>I Am: Celine Dion</em> will give viewers an intimate look inside her life “as she reveals her battle with stiff person syndrome (SPS) and the lengths she has gone to continue performing for her beloved and loyal fans”.</p> <p>Capturing over a year’s worth of Dion’s life, including “never-before-seen” private moments, the film will showcase the legendary singer navigating “her journey toward living an open and authentic life amidst illness”.</p> <p><em>Image credits: Getty Images </em></p>

Caring

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Celine Dion's first public appearance in years since cruel diagnosis

<p>Celine Dion, the iconic Canadian singer, has recently made a triumphant return to the public eye after a few years of battling a rare neurological disorder called Stiff Person Syndrome. This inspiring comeback took place as she attended a hockey game in Las Vegas, watching the match between the Vegas Golden Knights and the Montreal Canadiens alongside her sons, René-Charles, and twins, Eddy and Nelson.</p> <p>After the thrilling game, Dion made her way to the locker room, and her visit was captured in images and a reel shared by the Montreal Canadiens, the team she came to support.</p> <p>In the clip, the embattled singer appeared to be in high spirits as she interacted with players and coaches, expressing her delight at meeting them all.</p> <p>The Montreal Canadiens shared their excitement on social media in what was a heartwarming moment for both Dion and her fans – especially getting to witness her enthusiasm and resilience.</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/reel/CzFTVOwLPUP/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/CzFTVOwLPUP/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Canadiens de Montréal (@canadiensmtl)</a></p> </div> </blockquote> <p>Stiff Person Syndrome is an extremely rare neurological disorder that primarily affects the nervous system, specifically the brain and spinal cord. According to the National Institute of Neurological Disorders and Stroke, this condition manifests in symptoms such as extreme muscle stiffness, rigidity, and painful spasms in the trunk and limbs, significantly impeding mobility.</p> <p>Dion's battle with Stiff Person Syndrome forced her to postpone some tour dates, as the disorder was affecting her ability to sing the way she was accustomed to. In a video clip shared on social media, she addressed her fans and revealed her determination to overcome the challenges posed by this condition.</p> <p>"I'm working hard with my sports medicine therapist every day to build back my strength and my ability to perform again," she shared. "But I have to admit it's been a struggle." Dion's candour about her struggles and her unwavering commitment to her recovery have earned her even more admiration from her fans.</p> <p>Celine Dion's journey with Stiff Person Syndrome has been a testament to her strength and resilience. She has shown that even in the face of a rare and debilitating condition, she refuses to be defeated. Her determination to regain her ability to perform is a source of inspiration to all who face adversity in their lives.</p> <p>It's worth noting that Celine Dion has faced significant personal challenges in the past, most notably the loss of her husband, René Angélil, in 2016 to throat cancer. Despite these difficulties, she has continued to be a shining star in the world of music. Her return to the public eye, following her battle with Stiff Person Syndrome, is a testament to her enduring spirit and the deep connection she has with her fans.</p> <p>As Celine Dion makes her way back into the spotlight, her fans around the world eagerly await her return to the stage, where her powerful voice and indomitable spirit will undoubtedly continue to inspire and uplift us all. Her story serves as a reminder that with determination and a strong support system, even the most formidable challenges can be overcome.</p> <p><em>Images: Instagram</em></p>

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Woman dies after being accused by doctors of faking symptoms

<p>A woman from New Zealand has passed away from a debilitating illness after being told by a doctor that her illness was “all in her head”.</p> <p>Stephanie Aston, 33, died after a long and public battle with Ehlers-Danlos Syndrome (EDS), a rare  genetic disorder affecting the body’s connective tissue, on September 1st. </p> <p>EDS, of which there are 13 different variants, is often referred to as an "invisible illness", as sufferers can often appear healthy despite experiencing excruciating symptoms, such as severe migraines, dislocating joints, easy bruising, abdominal pain, iron deficiency, fainting and an abnormally fast heart-rate.</p> <p>Aston said she was dismissed by a doctor in 2016, who dismissed her symptoms and told her that she was faking her disease. </p> <p>Despite being diagnosed with EDS by three different specialists, one doctor in Auckland, who Aston referred to as 'Doctor A', suggested she was not seriously unwell and indicated she was causing her illnesses, <em><a href="https://www.nzherald.co.nz/nz/stephanie-aston-death-eds-sufferers-call-for-change-after-doctors-accused-woman-of-faking-illness/VX4Q6CAWRVH25I6OCKGQ4KTW4M/">The NZ Herald</a></em> reports.</p> <p>Ehlers-Danlos Syndromes New Zealand founder Kelly McQuinlan said Stephanie's death has shocked the community, and said more needs to be done for those suffering with the debilitating condition. </p> <p>“A lot of people are feeling very lost,” she said.</p> <p>“I think most people in these rare positions or invisible illnesses, definitely experience setbacks and disbelieving because things can’t be seen but really the clinical symptoms are there that are being ignored.”</p> <p>Ms McQuinlan described Ms Aston as a “beacon” for those with the illness in a tribute to her on Facebook.</p> <p>“Most people in our community have experienced some form of sort of doctors not believing them or questioning their diagnosis which is extremely hard,” she wrote.</p> <p>“When they see someone in their community pass away, the first thing they think is ‘What if my care is not looked after? What’s going to happen to me?’.”</p> <p>“At the end of the day, if symptoms aren’t managed correctly, anyone can get sick enough that they will pass away.”</p> <p><em>Image credits: Facebook</em></p>

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New Zealand Prime Minister's heartbreaking family update

<p>New Zealand Prime Minister Chris Hipkins has announced his temporary withdrawal from political engagements to care for his 4-year-old daughter who is in hospital. </p> <p>Hipkins, who is mostly private about his personal life, opened up about his daughter's health battle for the first time in a post shared on Facebook. </p> <p>“I don’t normally talk publicly about my kids because I want them to grow up out of the public spotlight, but sometimes it’s unavoidable,” he said. </p> <p>“Both my kids have a blood condition called Von Willebrand Syndrome. It means that sometimes when they get bleeding noses or other health issues they need a bit of extra medical help to get sorted.</p> <p>“Today my four-year-old is in hospital for some needed treatment, so for the rest of the day while that is happening I’ll be working from the hospital while I’m focused on her.”</p> <p><iframe style="border: none; overflow: hidden;" src="https://www.facebook.com/plugins/post.php?href=https%3A%2F%2Fwww.facebook.com%2Fchrishipkinsmp%2Fposts%2Fpfbid021REVmAth3sr9crVCb7Na1PN42D5vskouAv5QrRf5DXWu7KUbTtq5R96gzq1G18d2l&amp;show_text=true&amp;width=500" width="500" height="381" frameborder="0" scrolling="no" allowfullscreen="allowfullscreen"></iframe></p> <p>He also thanked his colleagues for covering him over the next few days and extended his gratitude towards blood donors. </p> <p>"All going well I’ll be back at work soon, but thanks to my colleagues for covering a few engagements over the next couple of days that I’m going to have to miss.</p> <p>"Lots of New Zealanders rely on the generosity of those who give blood. Thank you to all those who help out people like my little girl," he concluded.</p> <p>Hipkins, who replaced Jacinda Ardern in January, had previously revealed that he and his wife had separated and lived apart for a year. </p> <p>At the time, he explained that they were living separately for "the best interest of our family," and he acknowledged the pressure of being a family member of a politician and prime minister. </p> <p><em>Image: Getty</em></p>

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"Tears in my eyes": King's Guard breaks protocol for photo with young royal fan

<p>A member of the King's Guard has been prised online for going out of his way to take a photo with a young man with Down's syndrome, breaking strict protocol. </p> <p>A video of the touching moment, shared by Mike the young man's carer on YouTube, caused a stir thanks to the respectful way the guard acted. </p> <p>Known worldwide for being silent and still even when trying to be distracted by tourists, it is the job of the King's Guard to stand statuesque on duty outside office royal residences. </p> <p>However, footage shows how a kind-hearted member of the Guard moved closer to Mike and the boy who were trying to get a photo to remember their trip to Horse Guards Parade by. </p> <p>Taking to Twitter to post about their day out, Mike who is a professional carer for the youngster, explained, "I've worked for his family and him for a decade now. We were out on a cycle ride on my tandem bicycle and stopped by the Horse Guards Parade."</p> <p><iframe title="YouTube video player" src="https://www.youtube.com/embed/nxvGCQY8m4c" width="560" height="315" frameborder="0" allowfullscreen="allowfullscreen"></iframe></p> <p>He admitted that "both I and the young lad" got a bit of a fright "when he stepped closer to us" because it was so unexpected, adding, "This left me with tears in my eyes for a few evenings."</p> <p>After Twitter users initially thought that Mike was the boy's father, he clarified, "I’m also not his dad, although I’d be proud to be."</p> <p>"I'm very grateful to the soldier," he continued. "I'm lucky I had good parents and went to a Jesuit school that cared about me and taught me well, same for the young lad I'm with. Tears in my eyes."</p> <p>The sweet and respectful moment delighted viewers who rushed to share their thoughts and comments on the scene.</p> <p>One person wrote, "Lovely gesture of kindness. All the guards do an exceptional job with so many tourists."</p> <p>Another social media user added, "Total respect to this Guard especially as this young lad was nervous and total respect to the lads guardian for saying thank you wish more tourists were like him."</p> <p>Someone else wrote, "This Guard never fails to melt my heart. That act of kindness brought a lump to my throat. What a sweetheart he is. Your kindness will come back to you young man."</p> <p><em>Image credits: YouTube</em></p>

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23-year-old bravely dies on her own terms

<p> A terminally ill young woman from Adelaide has ended her life under the state’s voluntary assisted dying laws.</p> <p>In a funeral notice published in the<em> Adelaide Advertiser</em>, the family of Lily Thai said she died at the Flinders Medical Centre on June 21.</p> <p>“Much loved daughter of Kate and Le. Beloved granddaughter, niece and cousin. Treasured friend to many,” the family wrote.</p> <p>The family have shared that her funeral will be held at Centennial Park Cemetery on June 29.</p> <p>She made the <a href="https://www.oversixty.com.au/health/caring/23-year-old-reveals-why-she-s-chosen-to-end-her-life" target="_blank" rel="noopener">heartbreaking decision</a> to take her own life after countless surgeries failed to improve her illness.</p> <p>Thai suffered from Ehlers Danlos Syndrome (EDS) – a genetic condition that left her completely bedridden and in constant pain.</p> <p>Her powerful story touched thousands nationwide before she passed away.</p> <p>Thai had long wished to take her own life with dignity after a battle with such a debilitating condition.</p> <p>“I decided that pain was so severe it wasn’t worth it, and I just wanted to take it into my own hands,” Thai told the Adelaide Advertiser.</p> <p>After her painful health battle, she spent her last days at the Flinders Medical Centre, where she said she mainly slept while in “excruciating pain”</p> <p>Thai had recently signed the paperwork to use South Australia’s voluntary assisted dying laws, which came into effect in January 2023, to end her life after being administered an IV medication.</p> <p><em>Image credit: The Advertiser / TikTok</em></p>

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23-year-old reveals why she's chosen to end her life

<p>23-year-old Lily Thai has made the crippling decision to end her life.</p> <p>The Adelaide native, who suffers from Ehlers Danlos Syndrome (EDS), will use recently passed voluntary assisted dying laws after signing the final paperwork a week prior.</p> <p>In January 2023, South Australia legalised assisted dying with the government funnelling in $18 million over the next five years to support safe access to the service.</p> <p>“I realised that I can’t have any more anaesthesia, so I (couldn’t) have any more feeding tube changes (or) surgeries,” Thai told <em>The Advertiser</em>.</p> <p>EDS is a debilitating genetic condition which has left the 23-year-old completely bedridden and in constant pain.</p> <p>It affects her joints, skin and walls of the blood vessels so severely she is reliant on her father as a caregiver to do everything for her, “even the most intimate things”.</p> <p>Doctors will administer an IV medication that will terminate the young woman’s life within 10 seconds.</p> <p>“I’ll no longer have any pain, I will no longer suffer with any of these issues, and I’ll finally be free of all the suffering that I have endured for so many years.”</p> <p>Thai had initially thought her health deterioration was caused by a spinal fluid leak, but after undergoing treatment to fix it, her condition did not improve and doctors couldn’t give her a definitive diagnosis.</p> <p>As a desperate last measure, she travelled to Sydney to meet a surgeon who “specialised in spinal issues (for) patients with EDS” when she was 21.</p> <p>She was then confined to a halo brace and required a nasal feeding tube as she "couldn’t keep anything down,” and weighed just 40kg.</p> <p>In May 2021, Thai had spinal fusion surgery and just a week later was fitted with a gastro Jejenul feeding tube to vent out stomach acid and secretion.</p> <p>Through her rehab period, hospitals were under strict Covid-19 protocols, so Thai suffered alone without any visitors.</p> <p>“I couldn’t stand not seeing my dad, so I got discharged early,” she said.</p> <p>She was later diagnosed with auto-immune autonomic ganglionopathy — a rare condition where the body’s immune system attacks the nervous system.</p> <p>“The neurologist said that I was in multi-organ failure, but it wasn’t until I had a severe decline after one of my surgeries, (and) when I saw my rehab doctor they found a large lesion of the left side of my brain,” she said.</p> <p>“He suspected I had a type of motor neurone disease.”</p> <p>Thai has spent the past two years at Flinders Medical Centre’s Laurel Hospice, where she shared that most of her days are filled with sleep to avoid being in “excruciating pain”.</p> <p>Healthcare staff there granted one of her final wishes, which was to visit a beach, and so they took Thai in the back of an ambulance to the coastline. </p> <p>An image (at top) shows Lily resting on a bed, enjoying her Maccas fries and looking out at the golden sand and blue water in front of her.</p> <p>While at the hospice, Thai also formed a strong bond with another young woman, Annaliese Holland, who was also suffering a terminal illness at the hospice.</p> <p>The pair say young people with a terminal illness often mourn the “life (they) never got to have.”</p> <p>“For elderly or older people, (they) have memories to look back on to laugh about and cry about,” Holland said. “But for a young person in palliative hospice, you haven’t formed many of them.”</p> <p>“You never do the normal things like going to your high school graduation,” Thai said.</p> <p>“What makes me sad is that … you just want to push on, but at the same time it’s really hard because you know you won’t have babies or any of that,” Holland said.</p> <p>Holland has vowed to do everything in her power to make Thai’s last days in hospice more bearable.</p> <p>“All I can do is brush her (Lily’s) hair or moisturise her legs. I just want her to know that I’m there and people care,” a tearful Holland said.</p> <p>Thai has been able to plan parts of her own funeral and has been busy saying goodbye to family and friends.</p> <p>As part of her legacy, she’s inviting donations for palliative research to The Hospital Research Foundation on her memorial card to be given to funeral attendees.</p> <p><em>Image credit: Facebook</em></p>

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"Broke my heart": Mum's outrage at stranger's comment about her disabled son

<p>A Sydney mother has shared her shock and outrage after a stranger made "rude" comments about her son. </p> <p>Tori Boyadji and her friend Lyndal were walking through Collaroy Park in Sydney's north with Tori's two-year-old son Isaac, who has Down syndrome. </p> <p>The friends were stopped by a woman who looked at Isaac and exclaimed, "Ohh is this a little downsie?"</p> <p>Tori, 28, went on to recount how the stranger said she would "never want a kid with Down syndrome" herself.</p> <p>Ms Boyadji told <a href="https://www.dailytelegraph.com.au/news/nsw/sydney-mum-tori-boyadji-shocked-by-strangers-taunt-to-her-son/news-story/d8e3ee46ad9ed07ded6776987ff220f7" target="_blank" rel="noopener"><em>The Daily Telegraph</em></a> that the stranger's comments left her feeling very upset. </p> <p>"Lyndal and I just looked at each other in disbelief – I’m not easily offended but this comment truly broke my heart," she said.</p> <p>"Why would you say that to two mums with their adorable kids right there?"</p> <p>Tori said Isaac is just like any other toddler, as he loved The Wiggles and going to the beach. </p> <p>"He also happens to have Down syndrome — but this is the least interesting part of him," she said.</p> <p>Rhonda Faragher, Associate Professor of Inclusion and Diversity at Queensland University, weighed in on the exchange, and shared her thoughts that the major issue lays with the fact that people believe those with Down syndrome need to change in some way. </p> <p>"In my view, it's not the language itself, it's what's behind the language," she explained to <a href="https://au.news.yahoo.com/sydney-mums-shock-at-strangers-rude-comment-about-disabled-son-073246046.html" target="_blank" rel="noopener"><em>Yahoo News Australia</em></a>.</p> <p>"That somebody in the community would feel [a child with Down Syndrome] would not be a child they'd like to have in their family without even knowing the child."</p> <p>"I think it's [disappointing] that other people don't understand that this is not a tragedy," she added. "Having a person with Down syndrome in your family, in your life, is actually a terrific blessing."</p> <p><em>Image credits: Instagram </em></p>

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Beloved singing star reveals condition that may force early retirement

<p>Scottish singer and songwriter Lewis Capaldi has opened up about his battle with Tourette’s syndrome, admitting it could lead him into early retirement.</p> <p>The <em>Before You Go</em> singer, 26, has shared details of his condition with fans in the past, making light of it online, even going viral on TikTok for how he handles his on-stage tics.</p> <p>Speaking to The Sun, the 26-year-old revealed it is a “very real possibility” he will have to put the mic down if his condition deteriorates.</p> <p>"It's triggered by stress, anxiety, and excitement. Basically, any strong emotion, you're f—ed," Capaldi, who was diagnosed with Tourette’s in 2022, said.</p> <p>"There are times it has been really bad and I've wondered whether I can continue to do this with the stress, anxiety, and Tourette's. It all comes as a direct result of doing this job.”</p> <p>Capaldi, renowned online for his self-deprecating sense of humour and cheeky commentary, said he has worried that the crowd may mistake his tics for drug use.</p> <p>He also revealed he may have to stop making music and performing if the condition progresses.</p> <p>"This isn't drugs, and I've had that accusation on nights out. People have asked me directly, 'Are you on drugs, is it cocaine?'" He explained.</p> <p>"If it got to a point where my quality of life was drastically diminished, I'd just have to quit.”</p> <p>Capaldi’s powerhouse voice has thrown him into the mix with UK greats including Sir Elton John and Ed Sheeran.</p> <p>He said that John has been a pillar of support during his struggles with anxiety, telling The Sun that the <em>Rocket Man</em> singer emails him regularly.</p> <p>In early 2023, a clip from Capaldi’s concert made waves online after fans helped him finish the song as he experienced a tic attack on stage.</p> <p>Capaldi was singing his perhaps most famous song, Someone You Loved, at a concert in Germany on February 21.</p> <p>Audience members were quick to notice the singer struggling, so they continued the song from where he left off, with him holding onto the microphone in an attempt to compose himself.</p> <p>In 2022, Capaldi shared his diagnosis with fans on Instagram.</p> <p>"I do the shoulder twitch a lot. And you see underneath every TikTok and stuff, people are like, 'Why is he twitching?', which is fine. Curiosity is fine. I get it," he said.</p> <p>"I haven't really learned much about it. I'm learning. I've got Botox on my shoulder to stop it moving. It worked for a bit," he said.</p> <p>"The worst thing about it is when I'm excited, I get it; when I'm stressed, I get it; when I'm happy, I get it. It happens all the time.</p> <p>"Some days it's more painful than others and some days it's less painful. It looks a lot worse than it is. Sometimes it's quite uncomfortable … but it comes and goes."</p> <p><em>Image credit: Getty</em></p>

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Minister steps in to stop deportation of family with Down syndrome son

<p dir="ltr">A Perth family who were on the brink of deportation because of their son’s Down syndrome have been granted permanent residency after an intervention from Immigration Minister Andrew Giles.</p> <p dir="ltr">Last month, the family from India were told to leave because their 10-year-old son’s condition was viewed as a “burden” on the taxpayers.</p> <p dir="ltr">Parent’s Krishna Aneesh and Aneesh Kollikkara begged the Immigration Minister to intervene, as their bridging visa was set to expire on March 15 and they had exhausted all other legal options.</p> <p dir="ltr">The family had been living in Australia for seven years, and on Wednesday they received the happy news through a letter from Giles.</p> <p dir="ltr">The letter read: "[The minister] has personally considered your case and has decided to exercise his public interest power in your case to substitute the decision of the [Administrative Appeals] Tribunal”.</p> <p dir="ltr">Aneesh and her husband spoke to reporters after the decision came out, and said they were “over the moon” when they found out.</p> <p dir="ltr">"I literally went into tears we can stay here we can live in this community we can provide a very good environment for our kids,” she said.</p> <p dir="ltr">Both parents work in highly-skilled industries, with Aneesh as a cyber security expert and Kollikkara working in telecommunications.</p> <p dir="ltr">People with Disability Australia treasurer Suresh Rajan, the family representative, said that their contribution to the society was taken into consideration in the intervention.</p> <p dir="ltr">"That public interest criteria goes to the fact that Krishna and Aneesh are performing work in critical industries and the public wants them here," he said.</p> <blockquote class="twitter-tweet"> <p dir="ltr" lang="en">Letter received from Minister Giles office granting Permanent Residency to Krishna and Aneesh. Hallelujah! <a href="https://t.co/iYnWHrAZ0C">pic.twitter.com/iYnWHrAZ0C</a></p> <p>— Suresh Rajan (@SureshRajan6) <a href="https://twitter.com/SureshRajan6/status/1633340769493999617?ref_src=twsrc%5Etfw">March 8, 2023</a></p></blockquote> <p dir="ltr">Rajan also shared the development on the family’s case on Twitter.</p> <p dir="ltr">“Letter received from Minister Giles’ office granting permanent residency to Krishna and Aneesh. Hallelujah,” he captioned with a picture of the family.</p> <p dir="ltr"><em>Image: Twitter</em></p>

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Celine Dion reveals shock diagnosis

<p dir="ltr">Céline Dion has revealed she has been diagnosed with a rare neurological condition and has cancelled her upcoming Courage world tour.</p> <p dir="ltr">The Canadian songstress shared the news during an emotional video on Instagram, informing fans that she has Stiff Person Syndrome (SPS), a rare disorder that affects the nervous symptom and causes extreme muscle stiffness and painful spasms.</p> <p dir="ltr">“Recently I’ve been diagnosed with a very rare neurological disorder called the stiff person syndrome, which affects 1 in a million people,” Dion said in the clip.</p> <p dir="ltr">"While we're still learning about this rare condition, we now know this is what's been causing all of the spasms that I've been having.</p> <p><span id="docs-internal-guid-11b08fca-7fff-f409-f618-2c1eb0a389b3"></span></p> <p dir="ltr">"Unfortunately these spasms affect every aspect of my daily life, sometimes causing difficulties when I walk and not allowing me to use my vocal chords to sing the way I'm used to."</p> <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/reel/Cl5xJY1AjAO/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/reel/Cl5xJY1AjAO/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Céline Dion (@celinedion)</a></p> </div> </blockquote> <p dir="ltr">According to the <a href="https://stiffperson.org/sps-101/treatments-for-sps/" target="_blank" rel="noopener">Stiff Person Syndrome Research Foundation</a>, SPS affects between 1-2 in one million people and is more common in women than men.</p> <p dir="ltr">While there is no cure for SPS currently, the symptoms can be treated with medication and therapies.</p> <p dir="ltr">The <em>My Heart Will Go On</em> singer said she would be unable to restart her world tour in Europe next February, when she was due to tour in Germany, Switzerland, Poland, Hungary, Austria, Croatia, and the UK.</p> <p dir="ltr">She said eight tour dates would be cancelled and rescheduled to 2024.</p> <p dir="ltr">The news comes after the five-time Grammy winner cancelled the North American leg of her tour earlier this year.</p> <p dir="ltr">In the video, Dion thanked fans for their well-wishes and her children for their support, telling fans she was working with medical therapists to build her strength and ability to perform again.</p> <p dir="ltr">"I always give 100 percent when I do my shows, my condition is not allowing me to give you that right now," the 54-year-old said. </p> <p dir="ltr">"For me to reach you again I have no choice but to concentrate on my health at this moment and I have hope that I'm on the road to recovery.</p> <p dir="ltr">“This is my focus and I’m doing everything I can to recuperate."</p> <p dir="ltr"><span id="docs-internal-guid-58aa65bb-7fff-1527-64d0-6d77b30219e8"></span></p> <p dir="ltr"><em>Image: Instagram</em></p>

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Two-time Big Brother winner's tragic health news

<p dir="ltr">TV personality Reggie Bird, who won <em>Big Brother</em> twice, has taken to social media to share tragic news.</p> <p dir="ltr">The 48-year-old told her thousands of followers that she had recently been diagnosed with Usher syndrome, a condition that affects sight and hearing.</p> <p dir="ltr">Bird was first declared legally blind in 2008 following her diagnosis with retinitis pigmentosa (RP), and has now shared news that she said was “the worst thing you could have”.</p> <p dir="ltr">“It’s not what I wanted to hear,” Bird said in <a href="https://www.facebook.com/ReggieBirdBB/videos/1343107059766143" target="_blank" rel="noopener">a video</a> shared online, with clips showing her in an interview and in August when she received her diagnosis.</p> <p dir="ltr">“I’m gonna find out today what my link is for my RP. I had my DNA taken 13 years ago and it’s just been found what the genetic link will be,” she explains in the clip.</p> <p dir="ltr">After being told that she has Ushers syndrome, Bird fought back tears.</p> <p dir="ltr">“It’s the worst thing that you could have. I’m going to be deaf-blind.”</p> <p dir="ltr">According to <a href="https://my.clevelandclinic.org/health/diseases/15046-usher-syndrome" target="_blank" rel="noopener">Cleveland Clinic</a>, Ushers syndrome is a genetic condition that causes varying degrees of hearing and vision loss, as well as balance issues in some cases.</p> <p dir="ltr">After shooting to stardom following her 2003 win, Bird’s condition worsened. In 2014, she revealed that she had no peripheral vision and that her field of vision had become constricted to only 10 degrees.</p> <p dir="ltr">Earlier this year, she made her return to TV on <em>Big Brother</em>’s ‘Contenders vs Royalty’ season and won once again, taking home another $250,000 in prize money.</p> <p dir="ltr">“I’m honestly so proud of myself for going in and doing what I did and having a go,” Bird said after her second win.</p> <p dir="ltr">“I just wanted to show people who do live with disabilities that you can get out there and achieve anything that you put your mind to.</p> <p dir="ltr">“I’m so proud to represent people with a disability.”</p> <p dir="ltr">Since making her announcement, Bird took to social media again to thank fans for their support.</p> <p dir="ltr">“A s**t announcement really, finding out that I’ve got Ushers syndrome,” she said.</p> <p dir="ltr">“But, you know, life goes on and you’ve gotta make the most of each day and I’m gonna have so fun and I’m gonna get fit again.</p> <p dir="ltr">“Love you all, and thank you for listening.”</p> <p><span id="docs-internal-guid-88f8e8f9-7fff-c001-ea9b-91664656d60e"></span></p> <p dir="ltr"><em>Image: @reggiebirdbb (Instagram)</em></p>

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Why this new mum lay down with her baby daughter in front of a train

<p dir="ltr"><strong>CONTENT WARNING: Distressing content</strong></p> <p dir="ltr">A Victorian courtroom has heard further details surrounding an incident in which a new mother struggling with postpartum depression killed her daughter by laying down with her on train tracks.</p> <p dir="ltr">Melissa Arbuckle appeared in the Victorian Supreme Court on Tuesday where she pleaded guilty to infanticide over the tragic incident at a train station in July last year.</p> <p dir="ltr">Defence barrister Megan Tittensor told the court that Arbuckle suffered severe postpartum depression and psychosis when she tried to kill herself and her daughter, Lily.</p> <p dir="ltr">The court heard that Arbuckle thought Lily was suffering from shaken baby syndrome and that she would eventually die.</p> <p dir="ltr">“This act was committed by someone with a significantly disturbed mind,” Tittensor told the court, <a href="https://7news.com.au/news/court-justice/vic-court-told-of-mums-disturbed-mind-c-6341505" target="_blank" rel="noopener">7News</a> reported.</p> <p dir="ltr">“She had a fixed delusional belief she had harmed her child and they were both broken.</p> <p dir="ltr">“She had a perfectionist personality and need for control...she wanted to be the perfect mother.”</p> <p dir="ltr">Arbuckle was struggling with Lily while taking her for a walk when she began looking at train timetables, the court heard.</p> <p dir="ltr">She then messaged her husband saying their daughter was unsettled, before placing Lily on the train track and laying down next to her.</p> <p dir="ltr">The pair were struck but Lily died while being airlifted to hospital, and Arbuckle survived with fractures and internal bleeding.</p> <p dir="ltr">Arbuckle remains on bail and will be sentenced on Thursday.</p> <p dir="ltr"><em>Lifeline 13 11 14</em></p> <p dir="ltr"><em>beyondblue 1300 22 4636</em></p> <p><em><span id="docs-internal-guid-24028b0b-7fff-a14b-36d0-4e28f7f0372d"></span></em></p> <p dir="ltr"><em>Image: Seven News</em></p>

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Heartbreaking rare diagnosis for baby "Coey"

<p>A devastated family have made an emotional plea to help their son Coen. </p> <p>Known as Coey to his family and friends, the 11-month-old boy was recently diagnosed with Gabriele de vries Syndrome: an incredibly rare disease shared with only 14 other children in the world. </p> <p>Close family friend Jodie Schroder is organising the appeal on behalf of Coey's parents, Hayley and Trent van der Jagt, in order to help raise awareness for the disorder, and appeal for donations to help with extensive medical costs. </p> <p>According to the Caring for Coey <a href="https://www.gofundme.com/f/caring-for-coey" target="_blank" rel="noopener">GoFundMe</a> page, Gabriele de vries Syndrome has varied outcomes, and "is characteristiced by mild-to-profound developmental delay / intellectual disability and a wide spectrum of functional and morphologic abnormalities."</p> <p>"People with Gabriele de vries often experience feeding difficulties and other systemic difficulties, including congenital brain, eye, heart, kidney, genital, and/or skeletal system anomalies."</p> <p>For most of Coey's life, he has been fed with a nasal gastric tube due to a series of complications with his birth and numerous physical difficulties. </p> <p>Due to his extensive medical problems, Coey suffers from "recurrent infections requiring multiple hospitalisations at Campbelltown, Randwick and Westmead Children’s hospitals," which has been "considerably stressful for his family."</p> <p>According to the donation page, "Children with Gabriele de vries syndrome are also more likely to experience difficulties associated with anxiety, ADHD, Autism and Schizoaffective disorder. Currently Coen has also been diagnosed with a Global Developmental Delay secondary to his Gabriele de vries syndrome."</p> <p>Jodie created the page to ask for donations to help with the "substantial" costs of Coey's treatment, "that are not met due to limited resources under the NDIS."</p> <p>The costs Coey's family are met with include physiotherapy, speech therapy, occupational therapy, "out-of-pocket medical treatment" and "psychological therapies as he gets older."</p> <p>All the money raised on the page will go directly to Coey's numerous treatments, as well as "other expenses over the next few years including accommodation close to hospitals and day-to-day living expenses."</p> <p>On top of Coey's diagnosis, his mum Hayley is also suffering from a work accident that requires surgery and extensive physical therapy, which has placed an additional "emotional and financial stress on their family."</p> <p>Jodie says in the post that despite his many challenges at such a young age, Coey has an "infectious giggle" and "he adores his big brother, Miles", and hopes any donations will help "see him flourish and grow to become the healthiest, warm-hearted boy we all know him to be."</p> <p>Check out the <span style="font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;">Caring for Coey</span><span style="font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;"> </span><a style="font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;" href="https://www.gofundme.com/f/caring-for-coey" target="_blank" rel="noopener">GoFundMe</a><span style="font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;"> </span><span style="font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, Oxygen, Ubuntu, Cantarell, 'Open Sans', 'Helvetica Neue', sans-serif;">page for more information and to show your support.</span></p> <p><em>Image credits: GoFundMe</em></p>

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