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Your friend has been diagnosed with cancer. Here are 6 things you can do to support them

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/stephanie-cowdery-2217734">Stephanie Cowdery</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a>; <a href="https://theconversation.com/profiles/anna-ugalde-2232654">Anna Ugalde</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a>; <a href="https://theconversation.com/profiles/trish-livingston-163686">Trish Livingston</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a>, and <a href="https://theconversation.com/profiles/victoria-white-1888110">Victoria White</a>, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> Across the world, <a href="https://www.who.int/news/item/01-02-2024-global-cancer-burden-growing--amidst-mounting-need-for-services">one in five</a> people are diagnosed with cancer during their lifetime. By age 85, almost <a href="https://www.cancer.org.au/cancer-information/what-is-cancer/facts-and-figures">one in two</a> Australians will be diagnosed with cancer. When it happens to someone you care about, it can be hard to know what to say or how to help them. But providing the right support to a friend can make all the difference as they face the emotional and physical challenges of a new diagnosis and treatment. Here are six ways to offer meaningful support to a friend who has been diagnosed with cancer. <h2>1. Recognise and respond to emotions</h2> When facing a cancer diagnosis and treatment, it’s normal to experience a range of <a href="https://www.canceraustralia.gov.au/impacted-by-cancer/emotions#:%7E:text=It's%20likely%20that%20feelings%20will,these%20feelings%20ease%20with%20time">emotions</a> including fear, anger, grief and sadness. Your friend’s moods may fluctuate. It is also common for feelings to <a href="https://link.springer.com/article/10.1007/s00520-014-2492-9">change over time</a>, for example your friend’s anxiety may decrease, but they may feel more depressed. Some friends may want to share details while others will prefer privacy. Always ask permission to raise sensitive topics (such as changes in physical appearance or their thoughts regarding fears and anxiety) and don’t make assumptions. It’s OK to tell them you feel awkward, as this acknowledges the challenging situation they are facing. When they feel comfortable to talk, follow their lead. Your support and willingness <a href="https://www.cancervic.org.au/get-support/stories/what-to-say-and-not-say.html">to listen without judgement</a> can provide great comfort. You don’t have to have the answers. Simply acknowledging what has been said, providing your full attention and being present for them will be a great help. <h2>2. Understand their diagnosis and treatment</h2> <a href="https://onlinelibrary.wiley.com/doi/full/10.1002/pon.4722">Understanding</a> your friend’s diagnosis and what they’ll go through when being <a href="https://www.cancer.org/cancer/caregivers/what-a-caregiver-does/treatment-timeline.html">treated</a> may be helpful. Being informed can reduce your own worry. It may also help you to listen better and reduce the amount of explaining your friend has to do, especially when they’re tired or overwhelmed. Explore reputable sources such as the <a href="https://www.cancer.org.au/">Cancer Council website</a> for accurate information, so you can have meaningful conversations. But keep in mind your friend has a trusted medical team to offer personalised and accurate advice. <h2>3. Check in regularly</h2> Cancer treatment can be isolating, so regular check-ins, texts, calls or visits can help your friend feel less alone. Having a normal conversation and sharing a joke can be very welcome. But everyone copes with cancer differently. Be patient and flexible in your support – some days will be harder for them than others. Remembering key dates – such as the next round of chemotherapy – can help your friend feel supported. Celebrating milestones, including the end of treatment or anniversary dates, may boost morale and remind your friend of positive moments in their cancer journey. Always ask if it’s a good time to visit, as your friend’s immune system <a href="https://www.cancerresearchuk.org/about-cancer/what-is-cancer/body-systems-and-cancer/the-immune-system-and-cancer#:%7E:text=to%20fight%20cancer-,Cancer%20and%20treatments%20may%20weaken%20immunity,high%20dose%20of%20steroids">may be compromised</a> by their cancer or treatments such as chemotherapy or radiotherapy. If you’re feeling unwell, it’s best to postpone visits – but they may still appreciate a call or text. <h2>4. Offer practical support</h2> Sometimes the best way to show your care is through practical support. There may be different ways to offer help, and what your friend needs might change at the beginning, during and after treatment. For example, you could offer to pick up prescriptions, drive them to appointments so they have transport and company to debrief, or wait with them at appointments. Meals will always be welcome. However it’s important to remember cancer and its treatments may <a href="https://www.cancer.gov/about-cancer/treatment/side-effects/nutrition#effects-of-cancer-treatment-on-nutrition">affect</a> taste, smell and appetite, as well as your friend’s ability to eat enough or absorb nutrients. You may want to check first if there are particular foods they like. <a href="https://www.cancervic.org.au/downloads/resources/booklets/nutrition-cancer.pdf">Good nutrition</a> can help boost their strength while dealing with the side effects of treatment. There may also be family responsibilities you can help with, for example, babysitting kids, grocery shopping or taking care of pets. <h2>5. Explore supports together</h2> Studies <a href="https://pubmed.ncbi.nlm.nih.gov/35834503/">have shown</a> mindfulness practices can be an effective way for people to manage anxiety associated with a cancer diagnosis and its treatment. If this is something your friend is interested in, it may be enjoyable to explore classes (either online or in-person) together. You may also be able to help your friend connect with organisations that provide emotional and practical help, such as the Cancer Council’s <a href="https://www.cancer.org.au/support-and-services/cancer-council-13-11-20">support line</a>, which offers free, confidential information and support for anyone affected by cancer, including family, friends and carers. <a href="https://www.researchgate.net/publication/5659099_Systematic_review_of_peer-support_programs_for_people_with_cancer">Peer support groups</a> can also reduce your friend’s feelings of isolation and foster shared understanding and empathy with people who’ve gone through a similar experience. GPs <a href="https://pubmed.ncbi.nlm.nih.gov/34333571/">can help</a> with referrals to support programs. <h2>6. Stick with them</h2> Be committed. Many people feel <a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC11120751/">isolated</a> after their treatment. This may be because regular appointments have reduced or stopped – which can feel like losing a safety net – or because their relationships with others have changed. Your friend may also experience emotions such as worry, lack of confidence and uncertainty as they adjust to a <a href="https://www.cancer.gov/about-cancer/coping/survivorship/new-normal">new way of living</a> after their treatment has ended. This will be an important time to support your friend. But don’t forget: looking after <a href="https://www.healthdirect.gov.au/caring-for-someone-with-cancer">yourself</a> is important too. Making sure you eat well, sleep, exercise and have emotional support will help steady you through what may be a challenging time for you, as well as the friend you love. <a href="https://www.deakin.edu.au/faculty-of-health/research/cancer-carer-hub">Our research</a> team is developing new programs and resources to support carers of people who live with cancer. While it can be a challenging experience, it can also be immensely rewarding, and your small acts of kindness can make a big difference.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/239844/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/stephanie-cowdery-2217734">Stephanie Cowdery</a>, Research Fellow, Carer Hub: A Centre of Excellence in Cancer Carer Research, Translation and Impact, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a>; <a href="https://theconversation.com/profiles/anna-ugalde-2232654">Anna Ugalde</a>, Associate Professor & Victorian Cancer Agency Fellow, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a>; <a href="https://theconversation.com/profiles/trish-livingston-163686">Trish Livingston</a>, Distinguished Professor & Director of Special Projects, Faculty of Health, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a>, and <a href="https://theconversation.com/profiles/victoria-white-1888110">Victoria White</a>, Professor of Pyscho-Oncology, School of Psychology, <a href="https://theconversation.com/institutions/deakin-university-757">Deakin University</a> Image credits: Shutterstock This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/your-friend-has-been-diagnosed-with-cancer-here-are-6-things-you-can-do-to-support-them-239844">original article</a>. </div>

Caring

Offering end of life support as part of home care is important – but may face some challenges

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/jennifer-tieman-378102">Jennifer Tieman</a>, <a href="https://theconversation.com/institutions/flinders-university-972">Flinders University</a> Earlier this month, the government announced <a href="https://theconversation.com/the-government-has-a-new-plan-for-residential-aged-care-heres-whats-changing-238765">major changes</a> to aged care in Australia, including a A$4.3 billion <a href="https://theconversation.com/what-the-governments-home-care-changes-mean-for-ageing-australians-238890">investment in home care</a>. Alongside a shake up of home care packages, the Support at Home program will include an important addition – an <a href="https://www.health.gov.au/sites/default/files/2024-09/support-at-home-fact-sheet.pdf">end of life pathway</a> for older Australians. This pathway will allow access to a <a href="https://www.health.gov.au/our-work/support-at-home/features">higher level</a> of in-home aged care services to help Australians stay at home as they come to the end of their life. Specifically, it will provide an extra A$25,000 for palliative support when a person has three months or less left to live. This is a positive change. But there may be some challenges to implementing it. <h2>Why is this important?</h2> Older people have made clear their preference to remain in their homes as they age. For <a href="https://journals.sagepub.com/doi/10.1177/0269216313487940">most people</a>, home is where they would like to be during their last months of life. The space is personal, familiar and comforting. However, data from the <a href="https://www.abs.gov.au/statistics/research/classifying-place-death-australian-mortality-statistics">Australian Bureau of Statistics</a> shows most people who die between the ages of 65 and 84 die in hospital, while most people aged 85 and older die in residential aged care. This apparent gap may reflect a lack of appropriate services. Both palliative care services and GPs have an important role in providing medical care to people living at home with a terminal illness. However, being able to <a href="https://grattan.edu.au/wp-content/uploads/2014/09/815-dying-well.pdf">die at home</a> relies on the availability of ongoing support including hands-on care and assistance with daily living. Family members and friends often provide this support, but this is not always possible. Even when it is, carers may <a href="https://pubmed.ncbi.nlm.nih.gov/38533612/">lack confidence and skills</a> to provide the necessary care, and may not have enough support for and respite from their carer role. The palliative care funding offered within Support at Home should help an older person to remain at home and die at home, if that is their preference. Unless someone dies suddenly, care needs are likely to increase at the end of a person’s life. Supports at home may involve help with showering and toileting, assessing and addressing symptoms, developing care plans, managing medications, wound dressing, domestic tasks, preparing meals, and communicating with the person’s family. Occupational therapists and physiotherapists can assist with equipment requirements and suggest home modifications. End of life supports may also involve clarifying goals of care, contacting services such as pharmacists for medications or equipment, liaising with organisations about financial matters, respite care or funeral planning, as well as acknowledging grief and offering spiritual care. But we don’t know yet exactly what services the $25,000 will go towards. <h2>What do we know about the scheme so far?</h2> The Support at Home program, including the end of life pathway, is scheduled to start from <a href="https://www.health.gov.au/sites/default/files/2024-09/support-at-home-fact-sheet.pdf">July 1 2025</a>. We know the funding is linked to a prognosis of three months or less to live, which will be determined <a href="https://www.abc.net.au/news/2024-09-15/new-payment-aims-to-make-it-easier-for-people-to-die-at-home/104347984">by a doctor</a>. Further information has indicated that an older person can be referred to a <a href="https://www.health.gov.au/our-work/support-at-home/features">high-priority assessment</a> to access the end of life pathway. We don’t know yet what this means, however they don’t need to be an existing Support at Home participant to be eligible. The pathway will allow 16 weeks to use the funds, possibly to provide some leeway around the three-month timeline. Although more details are coming to light, there are still some things which remain unclear. Home care providers will be looking for details on what can be covered by this funding and how they will work alongside primary care providers and health-care services. Older people and their families will want to know the processes to apply for this funding and how long applications will take to be reviewed. Everyone will want to know what happens if the person doesn’t die within three months. <h2>Some challenges</h2> Ready availability of appropriate supports and services will be crucial for older people accessing this pathway. Home care providers will therefore need to assess how an end of life pathway fits into their operational activities and how they can build the necessary skills and capacity. Demand for nurses with palliative care skills and allied health professionals is likely to increase. Providing end of life care can be <a href="https://pubmed.ncbi.nlm.nih.gov/33096682/">especially taxing</a> so strategies will be needed to prevent staff burnout and encourage self-care. How pathways are implemented in rural and remote areas and in different cultural and community groups will need to be monitored to ensure all older people benefit. Effective coordination and communication between home care, primary care and specialist palliative providers care will be key. Digital health systems that connect the sectors could be helpful. Family engagement will also be very important. Escalation pathways and referral pathways should be established to enable appropriate responses to emergencies, unexpected deterioration, and family distress. Finally, <a href="https://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01155-y">accurately determining</a> when someone will die can be difficult. Knowing when the last three months of life starts may not be easy, particularly where frailty, cognitive issues and multiple health concerns may be present. This might mean some people are not seen as being ready for this pathway. Others may not be willing to accept this prognosis. An older person may also be expected to live with a terminal illness for many months or years. Their palliative care needs would not be met under this pathway. Despite these challenges, the announcement of an end of life pathway within the home care program is timely and welcome. As a population we are living longer and dying older. More details will help us be better prepared to implement this scheme.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/239296/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/jennifer-tieman-378102">Jennifer Tieman</a>, Matthew Flinders Professor and Director of the Research Centre for Palliative Care, Death and Dying, <a href="https://theconversation.com/institutions/flinders-university-972">Flinders University</a> Image credits: Shutterstock This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/offering-end-of-life-support-as-part-of-home-care-is-important-but-may-face-some-challenges-239296">original article</a>. </div>

Retirement Life

New support system helps older Aussies who have fallen victim to scams

A new support system has been set up to help vulnerable older Australians who have fallen victim to dangerous scams. With millions of Aussies targeted every year, many of these targets are elderly with 30 percent of victims hesitant to come forward because they are too embarrassed to admit what's happened to them. One such victim, 86-year-old Mary, said she was humiliated after falling for a scam saying she is old enough to know better. "It serves me right, I shouldn't have been so trusting," she said. "You blame yourself and you don't really want to tell people how stupid you are, so you think, 'Well, I'll just have to bear it'." Mary was scammed when she received a call from a man pretending to be a technician, saying he needed access to her computer to resolve a problem in her area. Step by step, the "technician" got Mary to log-in and give him complete access to her entire online identification, completely cleaning her out of $20,000 in savings. This is why <a title="ID Support NSW" href="https://www.nsw.gov.au/id-support-nsw" target="_blank" rel="noopener">ID Support NSW</a> is now offering a free service to help older Australians be able to protect themselves online and spot suspicious activity. "The most common scams are romance and impersonation scams, where people pretend to be someone they're not," ID Support NSW's Jacqueline Wilson told <a href="https://9now.nine.com.au/today/scam-awareness-week-id-support-nsw-offering-free-help-for-older-australians/20d3f8d6-fe32-4b1d-af32-294e47f4412d" target="_blank" rel="noopener">Today</a>. "Most start with a text or call and once someone responds or engages, they usually end up losing money." Jacqueline said the best thing you could do if you even suspect a scammer was to just hang up the phone, saying, "You don't need to indulge them, you don't need to be polite, you don't need to engage in a long conversation." Image credits: Today

Legal

REVIEW: Feel supported and comfortable through every stride with ASICS

Finding the right sports shoe can be a challenge, whether you’re an avid runner, Sunday afternoon walker, or just want the extra support when going from A to B. Then there’s the added difficulty of your foot shape, and finding what works best for you and your circumstances, and when there are so many sports shoes on the market, it’s easy to feel overwhelmed. One of those many brands are ASICS, who are a much loved and trusted staple in the world of activewear for both your body and feet. In July, ASICS announced the launch of their new shoe the GEL-KAYANO 31: a classic shoe in the ASICS range with updated and advanced comfort and support to help you move easier. I was lucky enough to try out the GEL-KAYANO 31, and as one of the many people who have long struggled to find the right shoes for me, these shoes were one hell of a treat. While the GEL-KAYANO shoes are marketed as a “running shoe”, the only running I do is when I’m sprinting to the bus, so as a regular park walker, I put my new shoes to the test. From walking 20 minutes to the shops, to going for an hours-long stroll through the park these shoes did not let me down. The new technical engineered upper material (the bit of the shoe that hugs your ankle) sits a lot higher than other sports shoes, making this shoe so supportive, as you truly feel enclosed and in control. The PureGEL technology, which is designed to improve softness and shock absorption to reduce the impact on your joints and keep you moving comfortably, is second to none, after all my walks my feet felt comfortable, cool, and ready to walk even further. The GEL-KAYANO 31 also features FF BLAST PLUS ECO foam to deliver a softer landing through your movement and energised cushioning to keep you feeling comfortable on harder surfaces. And while I may not fall into the over sixty age as many of you reading this, my dodgy hip and knee would have me feeling very differently, and through my mild mobility issues, these shoes took the pressure off my joints and supported every step. ASICS have also updated the shoe’s outsole with a HYBRID ASICSGRIP rubber material, as the shoe helps provide better traction throughout your movement, to strengthen the shoe’s stability, helping you feel more comfortable for longer. And if that wasn’t enough, ASICS shoes are the only brand of sports footwear to be recommended by Sports Medicine Australia, who are instrumental in working with the brand to address specific biomechanical requirements. Junichiro Tateishi, General Manager of Product Function Research Department, at ASICS said, “We believe the GEL-KAYANO™ 31 shoe not only provides the stability the shoe is famous for, but also delivers a truly impressive level of comfort to help runners go further. We are also proud that GEL-KAYANO™ 31 shoe continues to display its CO2e emissions, printed on its insole as 10.6kg per pair, which shows ASICS’ ongoing commitment to transparency regarding the CO2e emissions, so that runners can feel confident about their choices when purchasing the GEL-KAYANO™ 31 shoe.” “The GEL-KAYANO is a legendary running shoe for a reason, and we’re excited to see how fans of the series enjoy this added comfort when they try the shoe. Our hope is that it helps everyone feel comfortable, confident and uplifted,” said Tateishi. The <a href="https://www.asics.com/au/en-au/gel-kayano-31/p/AOP_1012B670-300.html">GEL-KAYANO 31</a> shoe is available now for men and women from <a href="https://www.asics.com/au/en-au/">ASICS</a> retail, online stores and official ASICS stockists for $280 AUD. If you’re in the market for a long-lasting, supportive, stylish and comfortable pair of walking/running shoes, the ASICS GEL-KAYANO 31 will revolutionise the way you move, keeping you supported with every stride. Image credits: Supplied

Beauty & Style

Teen actress on life support after devastating mishap

Teen actress Mamie Laverock is currently on life support after falling five stories from a balcony. According to a <a href="https://www.gofundme.com/f/help-us-support-mamie" target="_blank" rel="noopener">GoFundMe</a> page, the 19-year-old initially suffered a "medical emergency" on May 11 and was hospitalised in Winnipeg, Canada before being transferred to a hospital in Vancouver, where her condition was labelled “unclear” but showed “signs of improvement.” However, her parents Nicole and Rob shared a devastating update over the weekend, saying that she is now on life support after an incident on May 26 where she was "was escorted out of a secure unit of the hospital and taken up to a balcony walkway from which she fell five stories". "She sustained life threatening injuries, has undergone multiple extensive surgeries, and is currently on life support," the GoFundMe page read. "We are all devastated, in shock, at this intensely difficult time." The teen actress who stars in When Calls the Heart, was in intensive care for two weeks prior to the incident. Following the news, her co-stars took to social media to urge fans to keep her in their thoughts and prayers. “I love this family, my heart is broken,” Johannah Newmarch, who plays Laverock's on-screen mother on the show, tweeted on Monday. “A devastating time for all who care for Mamie. Please help if you can,” she added alongside a link to the fundraiser. “They need all the support they can get to make it through this.” Co-stars Erin Krakow and Loretta Walsh also told their followers that they have donated and encouraged them to do the same. The GoFundMe page has so far raised over $23,000 CAD or over $25,400 AUD. Hallmark Media, the production company Laverock is with, shared a statement on Variety. "We are deeply saddened to hear the news about Mamie. As a beloved member of our When Calls the Heart community, we wish her and her family peace, comfort, and many prayers during this difficult time," the statement read. Image: GoFundMe/ Instagram

Caring

Families including someone with mental illness can experience deep despair. They need support

<div class="theconversation-article-body"> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> In the aftermath of the <a href="https://theconversation.com/bondi-attacker-had-mental-health-issues-but-most-people-with-mental-illness-arent-violent-227868">tragic Bondi knife attack</a>, Joel Cauchi’s parents have <a href="https://www.theguardian.com/australia-news/video/2024/apr/15/bondi-junction-stabbings-joel-cauchis-father-extremely-sorry-for-victims-video">spoken</a> about their son’s long history of mental illness, having been diagnosed with schizophrenia at age 17. They said they were “devastated and horrified” by their son’s actions. “To you he’s a monster,” said his father. “But to me he was a very sick boy.” Globally, one out of every eight people <a href="https://www.who.int/news-room/fact-sheets/detail/mental-disorders">report a mental illness</a>. In Australia, <a href="https://www.aihw.gov.au/reports/mental-health-services/mental-health">one in five people experience a mental illness</a> in their lifetime. Mental illness and distress affects not only the person living with the condition, but <a href="https://www.aihw.gov.au/reports/australias-health/chronic-conditions-and-multimorbidity">family members and communities</a>. As the prevalence of mental health problems grows, the flow-on effect to family members, including caregivers, and the impact on families as a unit, is also rising. While every family is different, the words of the Cauchis draw attention to how families can experience distress, stress, fear, powerlessness, and still love, despite the challenges and trauma. How can they help a loved one? And who can they turn to for support? <h2>The role of caregivers</h2> Informal caregivers help others <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">within the context of an existing relationship</a>, such as a family member. The care they provide goes beyond the usual expectations or demands of such relationships. Around <a href="https://www.aihw.gov.au/reports/australias-welfare/informal-carers">2.7 million Australians</a> provide informal care. For almost a third of these the person’s primary medical diagnosis is psychological or psychiatric. It has <a href="https://journals.sagepub.com/doi/10.1177/1074840708323598">long been acknowledged</a> that those supporting a family member with ongoing mental illness need support themselves. In the 1980s, interest grew in caregiving dynamics within families of people grappling with mental health issues. Subsequent research recognised <a href="http://www.aihw.gov.au/chronic-diseases/">chronic health conditions</a> not only affect the quality of life and wellbeing of the people experiencing them, but also impose burdens that reverberate within relationships, caregiving roles, and family dynamics over time. Past studies have shown families of those diagnosed with chronic mental illness are increasingly forced to <a href="https://pubmed.ncbi.nlm.nih.gov/24943714/">manage their own depression</a>, experience elevated levels of <a href="https://pubmed.ncbi.nlm.nih.gov/23692348/">emotional stress</a>, negative states of mind and <a href="https://pubmed.ncbi.nlm.nih.gov/21165597/">decreased overall mental health</a>. Conditions such as depression, anxiety disorders, bipolar disorder, and schizophrenia can severely impact daily functioning, relationships, and <a href="https://pubmed.ncbi.nlm.nih.gov/36875411/">overall quality of life</a>. Living with mental illness is often accompanied by a myriad of challenges. From stigma and discrimination to difficulty accessing adequate health care and support services. Patients and their families navigate a complex and often isolating journey. <h2>The family is a system</h2> The concept of <a href="http://apps.who.int/iris/bitstream/10665/40336/1/16937_eng.pdf">family health</a> acknowledges the physical and psychological wellbeing of a person is significantly affected by the family. Amid these challenges, <a href="https://www.frontiersin.org/journals/psychology/articles/10.3389/fpsyg.2024.1330720/full">family support</a> emerges as a beacon of hope. Research consistently demonstrates strong familial relationships and support systems play a pivotal role in mitigating the adverse effects of mental illness. Families provide emotional support, practical assistance, and a sense of belonging that are vital for people struggling with mental illness. My recent <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">research</a> highlights the profound impact of mental illness on family dynamics, emphasising the resilience and endurance shown by participants. Families struggling with mental illness often experience heightened emotional fluctuations, with extreme highs and lows. The enduring nature of family caregiving entails both stress and adaptation over an extended period. Stress associated with caregiving and the demands on personal resources and coping mechanisms builds and builds. Yet families I’ve <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">interviewed</a> find ways to live “a good life”. They prepare for the peaks and troughs, and show endurance and persistence. They make space for mental illness in their daily lives, describing how it spurs adaptation, acceptance and inner strength within the family unit. When treating a person with mental illness, health practitioners need to consider the entire family’s needs and engage with family members. By fostering open and early dialogue and providing comprehensive support, health-care professionals can empower families to navigate the complexities of mental illness while fostering resilience and hope for the future. Family members <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">express stories</a> of an inner struggle, isolation and exhaustion. <h2>Shifting the focus</h2> There is a pressing need for a shift in research priorities, from illness-centered perspectives to a <a href="https://shop.elsevier.com/books/child-youth-and-family-health-strengthening-communities/barnes/978-0-7295-4155-8">strengths-based focus</a> when considering families “managing” mental illness. There is transformative potential in harnessing strengths to respond to challenges posed by mental illnesses, while also <a href="https://www.collegianjournal.com/article/S1322-7696(24)00004-0/fulltext">supporting family members</a>. For people facing mental health challenges, having <a href="https://www.sane.org/information-and-resources/facts-and-guides/families-friends-carers">loved ones who listen without judgement</a> and offer empathy can alleviate feelings of despair. Beyond emotional support, families often serve as crucial caregivers, assisting with <a href="https://www.blackdoginstitute.org.au/emergency-help/helping-someone-else/">daily tasks, medication management and navigating the health-care system</a>. As the Cauchi family so painfully articulated, providing support for a family member with mental illness is intensely challenging. Research <a href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4804270/">shows</a> caregiver burnout, financial strain and strained relationships are common. Health-care professionals should prioritise support for family members at an early stage. In Australia, there are various support options available for families living with mental illness. <a href="https://www.carergateway.gov.au/?utm_source=google&utm_medium=paid-search&utm_campaign=10626744435&utm_adgroup=102994881737&utm_term=carer%20gateway%20wa&gad_source=1&gclid=EAIaIQobChMIt8T6pJzIhQMVjAyDAx2KiQl1EAAYASAAEgLj-fD_BwE">Carer Gateway</a> provides information, support and access to services. <a href="https://www.headspace.com/?utm_source=google&utm_medium=search&utm_campaign=HS_Headspace_Brand-Exact_Search_AU-INT_Google_NA&utm_content=&utm_term=headspace&gad_source=1&gclid=EAIaIQobChMI4uKKvpzIhQMVFheDAx1bZgk8EAAYASAAEgLy6vD_BwE">Headspace</a> offers mental health services and supports to young people and their families. Beyond these national services, GPs, nurses, nurse practitioners and local community health centres are key to early conversations. Mental health clinics and hospitals often target family involvement in treatment plans. While Australia has made strides in recognising the importance of family support, challenges persist. Access to services can vary based on geographic location and demand, leaving some families under-served or facing long wait times. And the level of funding and resources allocated to family-oriented mental health support often does not align with the demand or complexity of need. In the realm of mental illness, family support serves as a lifeline for people navigating the complexities of their conditions. <hr /> If this article has raised issues for you, or if you’re concerned about someone you know, call <a href="https://www.lifeline.org.au/">Lifeline</a> on 13 11 14.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/228007/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/amanda-cole-1484502">Amanda Cole</a>, Lead, Mental Health, <a href="https://theconversation.com/institutions/edith-cowan-university-720">Edith Cowan University</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/families-including-someone-with-mental-illness-can-experience-deep-despair-they-need-support-228007">original article</a>. </div>

Caring

Outpouring of support for baby girl after Bondi tragedy

The heart-wrenching events that unfolded during Saturday's Bondi massacre shook not just Sydney, but all of Australia. Amid the sorrow and shock, however, there emerged a glimmer of hope and solidarity as Australians united to support the victims, particularly a nine-month-old baby girl named Harriet, who became a symbol of resilience in the face of tragedy. Harriet, the daughter of Ashlee Good, tragically lost her mother in the Bondi Westfield shopping centre attack perpetrated by Joel Cauchi. Ashlee, described by friends and family as a radiant presence, lost her life while heroically protecting her beloved daughter from the assailant's violence. The infant, Harriet, sustained stab wounds and was rushed to Sydney Children’s Hospital in critical condition. Thankfully, she has since been stabilised and moved out of ICU, but remains under close medical care. In response to this harrowing ordeal, the Australian community swiftly rallied together, demonstrating an outpouring of compassion and generosity. Within a mere three days, a <a href="https://www.gofundme.com/f/Ash-Good" target="_blank" rel="noopener">GoFundMe campaign</a> surpassed its initial goal of $100,000 by raising over $535,000 for Harriet's support. The fundraiser, initiated to alleviate the financial burdens faced by Harriet and her father, Dan, garnered support from both loved ones and strangers alike, reflecting the nation's collective grief and determination to provide solace in any way possible. The sentiments expressed within the fundraiser encapsulated the profound loss felt by those who knew Ashlee and the unwavering commitment she had to her family. "Our hearts were broken beyond comprehension as we learned of the tragic loss of our beautiful friend, Ash, in the stabbing attack at Westfield Bondi Junction on Saturday afternoon," it reads. "Ash was a ray of sunshine and positivity in every aspect of her life and died a hero saving her little girl from the most unspeakable evil. "We have been overwhelmed by requests from loved ones and strangers wanting to support Dan and Harriet as they face life without their beloved Ash. Being a mother to baby Harriet and partner to Dan was Ash’s whole life. Her love and commitment to them was evident to all who knew her. We are united in our devastation that her bright future was cut short in this way. Her beautiful and warm spirit, drive and energy inspired us all." Ashlee's radiant spirit, her boundless love for her daughter and partner, and her selfless act of sacrifice resonated deeply with all who encountered her. The profound impact of the Bondi massacre extended beyond the immediate victims, as the entire nation mourned the loss of innocent lives and grappled with the senseless violence that shattered a community. The victims, including Yixuan Cheng, Pikria Darchia, Dawn Singleton, Faraz Tahir, Jade Young, and Ashlee Good, were remembered not just as statistics but as individuals whose lives were tragically cut short. The makeshift memorial at Bondi Junction served as a powerful symbol of remembrance and solidarity, adorned with an abundance of flowers and heartfelt messages from those touched by the tragedy. Friends and family of Ashlee Good gathered at the memorial, finding solace in the outpouring of support from their community. As the healing process begins, the ongoing support for Harriet and her family serves as a testament to the strength of community bonds and unwavering compassion. Images: Nine News

Caring

Cricket legend Greg Chappell's dire situation sparks rally of support

Australian cricket has seen its fair share of legends, but few have left a mark as indelible as Greg Chappell. The former Australian cricket captain, who graced the pitch during the 1970s and early 80s, has fallen upon challenging times, leaving his friends, teammates and fans deeply concerned about his well-being. At the time of writing, the cricketing community has rallied to support him in a bid to provide the assistance he so desperately needs. Chappell, a figure synonymous with the sport, recently organised a <a href="https://www.gofundme.com/f/gc-tribute-lunch" target="_blank" rel="noopener">GoFundMe page </a>with the ambitious goal of raising $250,000. The campaign has garnered almost $90,000 in donations, with a substantial contribution of $25,000 from high-profile businessman and cricket enthusiast, Greg Boorer. This heartwarming response signifies the deep respect and admiration that people have for the cricketing icon. Chappell's plight came to the forefront when a testimonial lunch was held in his honour at the Melbourne Cricket Ground last Monday. The GoFundMe initiative was launched after it became apparent that arranging donation facilities at the event would be logistically challenging. The driving force behind the lunch, businessman and close friend Peter Maloney, expressed his concerns for Chappell's well-being, stating, "Greg is a very proud man. He's doing it tougher than what he says." It is worth noting that Greg Chappell is also the face of the Chappell Foundation, which has raised an impressive $1 million this year for homeless youths. However, Maloney emphasised that Chappell has never taken a cent out of the foundation, despite being entitled to do so. This selflessness exemplifies Chappell's commitment to making a positive impact on society, even during his personal hardships. During the 1970s and '80s, Chappell was a cricketing sensation, sharing the field with other greats like Dennis Lillee, Rod Marsh and Jeff Thomson. As a member of the illustrious Chappell family, which includes brothers Ian and Trevor, he is part of a dynasty that holds a revered place in Australia's rich sporting history. However, unlike many of today's athletes, Chappell's era did not offer the financial rewards that modern sports stars enjoy. Even after retiring, he chose to maintain a low profile and never fully embraced the spotlight of full-time commentary roles or media engagements. Instead, Chappell worked behind the scenes on cricket boards, undertook selector roles, and had a brief stint as a coach for the Indian cricket team. Chappell, displaying his characteristic humility, stated, "I'm not on the bones of my arse. I certainly don't want it to sound like we're in desperate straits, because we're not... but we're not living in luxury either. I think most people assume that because we played cricket, we are all living in the lap of luxury. While I'm certainly not crying poor, we're not reaping in the benefits that today's players are." The initiative to organise the testimonial lunch for Chappell came from Peter Maloney, who recognised his friend's health issues and financial difficulties. Maloney's suggestion that Chappell deserved a testimonial dinner finally saw the light of day after a heartfelt conversation with Greg and his wife. The outpouring of support for the Australian cricketing legend on the GoFundMe platform is nothing short of heartwarming. People from all walks of life have come forward to express their admiration and appreciation for Chappell's contributions to the sport and society: "Greg Chappell is a cricket great, an inspiration for all aspiring players. He certainly deserves our support, in whatever small way we can," wrote one supporter. "Dear Greg, What a phenomenal cricketer you were! It is still a treat to watch your batting videos on YouTube. Wishing you all the best..." wrote another. "You're a true Australian sporting legend. I remember doing a school project on you back in high school. Enjoy your retirement Greg, you deserve it," wrote a third. It's evident that Greg Chappell holds a special place in the hearts of cricket fans and Australians alike. As he faces his current challenges, the cricketing community is rallying together to ensure that this iconic figure receives the support he needs during this difficult phase of his life. It's a reminder of the enduring impact and admiration he has garnered throughout his remarkable career. Image: GoFundMe

Retirement Income

"I’m not going to be cured". How breast cancer awareness and support sidelines people with metastatic disease

<a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> There have been incredible <a href="https://www.cancer.gov/types/breast/research">advances</a> in breast cancer diagnosis and treatment in recent years. And stories about celebrities who have “beaten” breast cancer continue to be a source of inspiration for many people. However, this emphasis on fighting, beating and surviving cancer shuts out the voices of those who will not survive. That is, the many people diagnosed with incurable, life-limiting metastatic breast cancer, <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">which kills nine Australians every day</a> or nearly <a href="https://www.aihw.gov.au/reports/cancer/cancer-data-in-australia">3,300 people</a> a year. Yet an <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">estimated 10,000</a> Australians are living with the diagnosis. Being diagnosed with metastatic breast cancer, as one of the authors has been, means ongoing treatment to live as long, and as well, as possible. It also means an ongoing need for emotional and practical support. However, society, health-care professionals, cancer advocacy organisations, even a patient’s closest family and friends, can struggle to understand what it is like to live with an incurable and life-limiting cancer and how best to provide support. <h2>Why is there so little awareness?</h2> <a href="https://www.breastcancer.org/types/metastatic">Metastatic breast cancer</a>, also called stage four breast cancer, is the most serious form of breast cancer. Unlike early breast cancer that is contained within the breast or nearby lymph nodes, metastatic breast cancer has spread to other parts of the body, most often the bones, lungs, liver, or brain. There is no cure for metastatic breast cancer despite decades of advocacy, funding and research. Treatment continues for as long as it helps to control the cancer and is tolerated by the patient. Median survival is <a href="https://onlinelibrary.wiley.com/doi/10.5694/mja2.51687">two to three years</a>, although newer, novel treatments mean some patients are living much longer. As a society, we can be uncomfortable <a href="https://theconversation.com/before-you-go-are-you-in-denial-about-death-34056">talking about and facing death</a>. When it comes to cancer, we usually prefer focusing on good news stories. These narratives are often perceived to be better for fundraising and are reassuring for people newly diagnosed. But they fail to <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">represent</a> the diversity and reality of cancer experiences. Despite considerable research into people with non-metastatic breast cancer, <a href="https://www.bcna.org.au/latest-news/bcna-news/making-metastatic-breast-cancer-count/">relatively little</a> is known about Australians with metastatic breast cancer. <h2>Feeling silenced and unsupported</h2> Through our <a href="https://onlinelibrary.wiley.com/doi/10.1111/1467-9566.13704">research</a> we wanted to better understand people’s experiences of metastatic breast cancer. We interviewed 38 participants from around Australia with diverse experiences of metastatic breast cancer. Participants were recruited through breast cancer and community organisations. We found messages and public campaigns about cancer survivorship, which emphasise hope and positivity, drowned out the voices of those with metastatic breast cancer. The focus on “success stories” about surviving breast cancer made some people feel like it was their responsibility to “beat” cancer. If they didn’t, it was their own fault. As one interviewee told us: "I react quite badly to all the, ‘we’ve had breast cancer and we beat it and we’ve survived. Aren’t we fantastic.’ There’s almost a feeling if you haven’t beaten your breast cancer you haven’t tried hard enough." Silence around metastatic breast cancer was common in research participants’ experiences. It prevented many from connecting with others and to the support they needed. It even affected relationships with those closest to them leaving them feeling misunderstood: "They don’t realise I’ve got to be on treatment forever. I’m not going to be cured. I think society thinks everything can be fixed; metastatic breast cancer actually can’t be fixed." Sharing deep fears and worries about their life expectancy can leave people with metastatic breast cancer feeling drained rather than supported. Many participants reported having to support and shield family, friends, acquaintances and work colleagues from the reality of their terminal diagnosis. "You hide how you feel because you don’t want to be avoided […] You put on that big, happy face. But like an onion if you peeled the layers away, you’d find out what’s going on." While many participants wanted to join a community of people with metastatic breast cancer, they struggled to know how to find one. Those who did, emphasised how invaluable it had been: "Being able to identify with and know that these people really get me is a huge relief and it reduces the isolation." These findings echo <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">previous research</a> demonstrating people with metastatic breast cancer have higher support needs than those with non-metastatic breast cancer. And these needs are <a href="https://www.bcna.org.au/media/alcjjmm2/bcna_member-survey-report_2017.pdf">less likely to be met</a> by <a href="https://bmchealthservres.biomedcentral.com/articles/10.1186/s12913-022-08269-8">health care, support services</a>, family or friends. <h2>A new path</h2> Being diagnosed with metastatic breast cancer can be terrifying, lonely and create significant support needs. It is essential people with metastatic breast cancer have their <a href="https://ascopubs.org/doi/10.1200/OP.20.00183">voices listened to</a> and their needs met. Next steps should include: <ul> <li> <a href="https://bcna-dxp.azureedge.net/media/d32bhdzf/bcna_making-metastatic-breast-cancer-count_2022.pdf">improving data collection by cancer registries</a> so we know exactly how many people in Australia have metastatic breast cancer </li> <li> increasing representation of people with metastatic breast cancer in advocacy, support organisations and research </li> <li> nationwide access to peer-to-peer programs and professionally led metastatic breast cancer support groups. </li> </ul> We must ensure people with metastatic breast cancer are the ones to speak to their experience and needs. As a colleague with metastatic breast cancer said: "I read an article written by an early-stage breast cancer ‘survivor’. It felt like someone describing winter when they had only ever experienced autumn." If you or someone you know has metastatic breast cancer, these organisations may be able to support you or connect you with others with the same diagnosis: <ul> <li> <a href="https://www.bcna.org.au">Breast Cancer Network Australia</a> for information and support </li> <li> <a href="https://www.mcgrathfoundation.com.au/">McGrath Foundation</a> for information about access to metastatic breast care nurses. </li> </ul> <hr /> The authors would like to thank the members of Breast Cancer Network Australia’s Metastatic Breast Cancer Lived Experience Reference Group for their review of this article.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/215458/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/sophie-lewis-111177">Sophie Lewis</a>, Senior Lecturer, University of Sydney, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>; <a href="https://theconversation.com/profiles/andrea-smith-15431">Andrea Smith</a>, Research fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a>, and <a href="https://theconversation.com/profiles/katherine-kenny-318175">Katherine Kenny</a>, ARC DECRA Senior Research Fellow, <a href="https://theconversation.com/institutions/university-of-sydney-841">University of Sydney</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/im-not-going-to-be-cured-how-breast-cancer-awareness-and-support-sidelines-people-with-metastatic-disease-215458">original article</a>.

Caring

4 ways to support someone with dementia during extreme heat

<a href="https://theconversation.com/profiles/nikki-anne-wilson-342631">Nikki-Anne Wilson</a>, <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a> Our ability to adapt our behaviour to changes in temperature takes a significant amount of thought and decision making. For example, we need to identify suitable clothing, increase our fluid intake, and understand how to best keep the house cool. A person with dementia may find some or all these things challenging. These and other factors mean, for someone with dementia, extreme heat <a href="https://pubmed.ncbi.nlm.nih.gov/31520832/#:%7E:text=Conclusion%3A%20Heatwaves%20increased%20the%20risk,heat%2Drelated%20Alzheimer's%20disease%20burden.">can be deadly</a>. But as the temperature rises, friends, relatives and carers can help. <h2>El Niño means there are challenges ahead</h2> The recent declaration of <a href="https://www.abc.net.au/news/2023-09-19/bureau-of-meteorology-el-nino-blog/102875154">another El Niño</a> means we need to think about how we can best support those more vulnerable to be safe during the warmer months. Extreme heat and bushfires bring unique challenges for someone with dementia. Bushfires have a significant impact on older people’s mental health. But they generally <a href="https://www.health.act.gov.au/sites/default/files/2023-03/PATH_Impact%20of%202019-20%20Bushfires%20on%20a%20Cohort%20of%20Older%20Adults_REPORT_V3_0.pdf">bounce back</a> quickly. However, for someone with dementia, extreme heat can lead to a <a href="https://www.sciencedirect.com/science/article/pii/S0013935119305110">significant deterioration</a> in their overall health and they may not recover. Emergency evacuations can also be confusing and distressing for a person with dementia, so it is important to think ahead. <h2>Why are people with dementia more at risk?</h2> Dementia can affect the parts of the brain that help <a href="https://academic.oup.com/brain/article/138/11/3360/332653?login=true">regulate</a> our body temperature. Some <a href="https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0243665">medications</a> can also increase someone’s sensitivity to heat. Problems with memory and thinking associated with dementia <a href="https://www.alzheimers.org.uk/get-support/daily-living/drinking-hydration">means</a> remembering to drink or communicating you are thirsty can be challenging. Heat can affect everyone’s mood. But if someone with dementia becomes dehydrated this can <a href="https://www.alzdiscovery.org/cognitive-vitality/blog/can-dehydration-impair-cognitive-function">increase</a> confusion and agitation, making it harder for them to know how to cool down. A person with dementia can also wander and become lost, which can be dangerous in extreme heat. <h2>4 ways to support someone with dementia</h2> 1. Avoid dehydration and heatstroke Try to avoid dehydration by encouraging someone to drink throughout the day. It’s better to have <a href="https://pubmed.ncbi.nlm.nih.gov/31769256/">small amounts</a> of liquid regularly instead of a large amount all at once. Little and often will help maximise hydration while avoiding sudden trips to <a href="https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/dementia-continence-issues#causes-of-incontinence-in-people-with-dementia">the bathroom</a>. Try to offer different types of drinks, or ice blocks. Placing drinks in sight can help as a reminder to drink. Choose foods with a high liquid content, such as fruit, salads, cool broths and yoghurt. Look out for <a href="https://www.nia.nih.gov/health/hot-weather-safety-older-adults#:%7E:text=Signs%20of%20heat%20stroke%20are,as%20under%20shade%20or%20indoors.">signs of heatstroke</a>, such as increased confusion beyond what the person would usually experience. Heatstroke may be more difficult to spot in someone living with dementia so it is important to check in when possible and to help them cool down if needed. 2. Cool the home Try to modify their home to make it easier to stay cool. Some air-conditioners have complex settings so make sure the temperature is set appropriately and the person with dementia knows how to use the controls. It is important to keep blinds and curtains shut where possible to reduce heat. However, ensure the <a href="https://www.scie.org.uk/dementia/supporting-people-with-dementia/dementia-friendly-environments/lighting.asp">lighting is adequate</a> to avoid falls. Try to support the person to make suitable clothing choices for the season by having cool, lightweight options easily available. 3. Think about communications early If someone with dementia lives alone, consider how you will maintain contact in an emergency. Some people may not realise many landlines don’t work in a power outage, and of course, mobile phones can’t be recharged. Ensure the person with dementia has access to an <a href="https://www.telstra.com.au/support/category/home-phone/uninterruptible-power-supply">uninterruptable power supply</a>. This can help maintain communication for a few hours in a blackout. 4. Have an evacuation plan In case of fire, flash flooding or severe storm, <a href="https://dementiaresearch.org.au/wp-content/uploads/2017/10/2447_DCRC_Prep_natural_disaster_EBook_5.pdf">have an evacuation plan</a>. If the person with dementia attends a day or respite centre, know their plan too. The situation can change quickly in an emergency, and this can be particularly overwhelming for people with cognitive issues. Understand that someone with dementia may become distressed when their routine is disrupted. So be prepared with some simple activities or comfort items, current medications, and any specific medical information. Stay up-to-date with <a href="http://www.bom.gov.au/">current warnings</a> and act early whenever possible. <h2>We can all help</h2> It’s not just carers of people with dementia who can help. We can all ensure people with dementia stay safe and cool this spring and summer. So remember to check in on your relatives, friends and neighbours or arrange for someone to do so on your behalf.<img style="border: none !important; box-shadow: none !important; margin: 0 !important; max-height: 1px !important; max-width: 1px !important; min-height: 1px !important; min-width: 1px !important; opacity: 0 !important; outline: none !important; padding: 0 !important;" src="https://counter.theconversation.com/content/213987/count.gif?distributor=republish-lightbox-basic" alt="The Conversation" width="1" height="1" /> <a href="https://theconversation.com/profiles/nikki-anne-wilson-342631">Nikki-Anne Wilson</a>, Postdoctoral Research Fellow, Neuroscience Research Australia (NeuRA), <a href="https://theconversation.com/institutions/unsw-sydney-1414">UNSW Sydney</a> Image credits: Getty Images This article is republished from <a href="https://theconversation.com">The Conversation</a> under a Creative Commons license. Read the <a href="https://theconversation.com/4-ways-to-support-someone-with-dementia-during-extreme-heat-213987">original article</a>.

Body

Ted Lasso star ordered to pay massive child support sum

Jason Sudeikis has been ordered to pay ex Olivia Wilde an enormous sum of child support, as a bitter two-year custody battle draws to a close. According to new court filings obtained by <a href="https://pagesix.com/2023/09/25/jason-sudeikis-and-olivia-wilde-settle-custody-battle-actor-to-pay-27500-per-month/" target="_blank" rel="noopener">Page Six</a>, the Ted Lasso star has allegedly agreed to pay his ex $27,500 ($A42,800) per month in child support for their two kids, Otis, 9, and Daisy, 6. The hefty settlement has been based on Sudeikis' reported 2023 income of $10.5 million ($A16.3 million) and Wilde’s estimated income of $500,000 ($A778,000). “The parties agree that child support for the minor children in the amount of $27,500 per month is sufficient to maintain the needs of the minor children considering Jason’s station in life … is consistent with each child’s best interest, and application of the guideline would be unjust or inappropriate in this case,” the court papers reportedly state. The legal proceedings began two years ago, and took a dramatic turn in 2022 when Wilde, who was promoting her new movie Don't Worry Darling at the time, was served legal papers while on stage delivering a speech at CinemaCon. At the time, a source told <a href="https://pagesix.com/2022/04/29/olivia-wilde-mortified-after-being-served-with-legal-papers/" target="_blank" rel="noopener">Page Six</a> that Wilde was mortified over the brazen act. “It seemed unthinkable to her, and it took a moment to set in, but as mortifying as it was, she did not want to give a reaction,” the insider explained. Since then, things have improved for the couple, as they were both seen putting on a united front at Otis' soccer game in LA. Wilde and Sudeikis started dating in November 2011 and got engaged in January 2013. They welcomed their two kids before separating in November 2020. Image credits: Getty Images

Legal

Lisa Curry's emotional post sparks a wave of support and love

Lisa Curry has shared a heartfelt tribute on the third anniversary of her daughter Jaimi's death. Jaimi passed away in 2020 after a long health battle, at just 33 years old, and is the daughter of Lisa and former Ironman Grant Kenny. Lisa took to Instagram to commemorate her daughter with a painting of Jaimi that she commissioned to a local artist, and share her grief journey. "3 years ago, our beautiful daughter Jaimi took her last breath. We all love you and miss you everyday Jaimi and hope you’re at peace. It still feels like yesterday," she began the long and emotional post. “We all love you and miss you every day Jaimi and hope you’re at peace. “It’s been a s*** and sad week, where I’ve needed lots of hugs and am constantly wiping my tears away. I tell myself to breathe because I know it’s a bad day, not a bad life. “I’m doing ok ... but feeling sad on the inside while trying to be happy on the outside is overwhelming and feels exhausting," she added. Lisa also said that sometimes she can barely recognise herself in the mirror because she looks like "a mess" and other times she sees "the old Lisa." "The path to recovery is long and can only be done in my own time. "The last 3 years has been a long, slow, painful, uneventful decline in my health and my soul. I talk out loud, frustratingly scolding myself to get my s*** together. There are days when I don’t care about anything. "I need to change that talk to be more positive and give myself permission that it’s ok to move forward. "Moving on doesn’t mean letting go. I will never let her go," she added. <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/CxJb9jkhg5C/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/CxJb9jkhg5C/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Lisa Curry AO (@lisacurry)</a> </div> </blockquote> Lisa then said that she needed to start looking after herself so she can be "the mother, grannie, wife and friend that I should be." She then thanked local artist Donna Munro for the beautiful painting of her daughter, before asking her fans if they were okay, after noting that it was R U OK Day. She reminded fans to talk to someone and sent “Love and strength to everyone who’s struggling for whatever reason.” Her followers flocked to the comments to offer their love and support, and thanked her for being open and vulnerable. “Do what you can today Lisa and let tomorrow take care of the rest. Your baby mattered, your grief at her loss is justifiable. Don’t punish yourself for not having a heart of stone. One step after another, no time limit. ❤️🙏🌸” wrote one fan. “Sending love, Lisa. Can’t imagine your pain," commented another. “You’re very brave Lisa, sending strength and a big hug, we who have lost a piece of our heart knows how hard it is," wrote a third. "The words I say will never ease the pain but know you are a beautiful strong woman who inspires more people than you would ever know with your honest and raw feelings on grief. Hugs to you," commented a fourth. "I hope that you find a little comfort in the fact that you would have helped so many other people going through similar grief. Sending much needed hugs and sunshine," added another. Images: Instagram

Caring

Charlie Teo's great walk of support

Neurosurgeon Dr Charlie Teo has now accepted work in China following the imposed conditions on his practicing certificate after complaints from the families of two patients. Despite the restrictions, many patients still in need of his surgical skills are expressing disbelief over the situation. In a message posted to social media, Dr Teo has urged his supporters to join him in solidarity for a walk across Sydney Harbour Bridge – and dozens have already committed to the walk, which will take place in September. “Many have asked what you can do to show your support," wrote the embattled surgeon. "Well, I would be honoured if you would join me in solidarity on the Sydney Harbour Bridge.” Patients are rallying their friends and family to walk with Dr Teo on September 17, in a message that emphasised that Dr Teo remains determined and will be present for the event after flying in from Spain. The decision to work in China and other countries came after the Health Care Complaints Commission (HCCC) found Dr Teo guilty of "unsatisfactory professional conduct", a verdict he vehemently denies. Dr Teo addressed those affected by brain cancer, acknowledging the severity of the disease and emphasising the importance of the Charlie Teo Foundation in offering hope and support to those affected. Dr Teo affirmed that while he would be working in various countries, he still considers Australia his home. He expressed sadness over his recent experiences within the Australian medical system but remains motivated by the work he continues to do worldwide. The announcement of Dr Teo's decision to focus on China garnered hundreds of supportive comments from social media users, along with comments left on news articles. Dr. Teo confirmed that he would soon be performing complicated brain stem surgeries in China, acknowledging that his future in Australia is likely over. As he told the <a href="https://www.dailytelegraph.com.au/news/nsw/charlie-teo-ive-been-crucified-i-have-no-choice-but-to-try-china/news-story/61bb1af2516de2705d55143c53dece47" target="_blank" rel="noopener">The Saturday Telegraph</a>: “I am not guilty of what I am accused of. I reject what they say I have done. They just don’t believe me, so why would I show remorse for something that I deny?” “I could appeal, I think I would win. They wouldn’t be able to prove beyond a reasonable doubt the things they have accused me of because they are not true. But I’m not sure I have the strength to run an appeal. Furthermore, I don’t have the money to do so,” he said. “And then the whole emotional turmoil.” Dr Teo instead will focus on saving lives in countries that will allow him to. “I have just been granted privileges in China, in three different hospital,” he said. “The fact that I have been crucified over here didn’t appear to affect their decision, so I am going over there to check the facilities, make sure they are good. They just bought the latest MRI for me.” Dr Teo said he was committing to a future in China “because they have committed to me” and would continue to do the occasional cases in Europe and parts of Southeast Asia that required his expertise. He expressed disappointment but not surprise at the conditions placed on his practicing certificate following an investigation into two brain surgeries with adverse outcomes. Dr Teo categorically denied any failure to obtain proper consent or lacking empathy for his patients. He expressed his reluctance to appeal the decision due to the emotional turmoil and financial constraints associated with it. Instead, he will focus on saving lives in countries that permit his expertise. Having recently been granted privileges in three hospitals in China, Dr Teo expressed his commitment to this new chapter in his career. He mentioned that the accusations against him would not hold up if challenged but admitted uncertainty regarding his ability to endure an appeal process. Dr Teo's primary concern lies in ensuring quality facilities and patient care in China. While he plans to continue performing occasional cases in Europe and Southeast Asia, he lamented the fact that he can no longer assist patients in his home country. Dr. Teo criticised the recent findings by the HCCC, stating that they send a negative message to doctors who offer contrary second opinions. He expressed concern that neurosurgeons across Australia may become reluctant to undertake risky surgeries, fearing media scrutiny and judgment from colleagues who lack the necessary expertise to treat complex tumour cases. Dr Teo also revealed that he continues to receive regular calls from individuals suffering from rare brain tumours seeking his help, but he is forced to turn them away. Image: Wikimedia

Caring

Father of murdered Aussie soldier voices support for Ben Roberts-Smith

The father of an Australian soldier murdered in Afghanistan has spoken out in defence of former SAS member Ben Roberts-Smith. Hugh Poate’s son, Robert, was playing cards with two other Australians when they were tragically shot by a rogue Afghan soldier named Hekmatullah in 2012. According to Poate, Roberts-Smith was simply following orders in a bid to apprehend Hekmatullah, who had brutally taken the lives of their son. Acting on intelligence, they were taken to the village of Darwan, where Roberts-Smith had allegedly kicked a farmer named Ali Jan off a cliff and ordered his execution. “These citizens in the village could well have been a civilian one day and pulling the trigger the next, that‘s the way the Taliban operated. This perspective should have been included to provide some balance and context,” Poate told the Daily Telegraph. The federal court <a href="https://www.oversixty.com.au/finance/legal/a-win-for-the-press-a-big-loss-for-ben-roberts-smith-what-does-this-judgment-tell-us-about-defamation-law" target="_blank" rel="noopener">dismissed</a> Roberts-Smith’s defamation trial against the Sydney Morning Herald, The Age, and the Canberra Times, with Justice Besanko concluding the various titles had substantially proven the former soldier unlawfully killed four unarmed Afghan prisoners during his service in the SAS between 2009 and 2012. The judgement also acknowledged instances of Roberts-Smith’s alleged bullying of fellow soldiers. However, the court dismissed two other murder allegations and an accusation that he had assaulted his mistress. In his thorough 736-page judgement, the judge determined that Roberts-Smith and four key witnesses called to testify were both dishonest and unreliable in their evidence. Following the release of the completed judgement, Roberts-Smith’s legal team is now closely inspecting the document to identify potential grounds for an appeal. Poate emphasised the fact that Hekmatullah was captured and convicted of war crimes and subsequently released. In comparison, Roberts-Smith <a href="https://www.oversixty.com.au/news/news/australian-war-memorial-urged-to-remove-ben-roberts-smith-s-uniform-from-display" target="_blank" rel="noopener">has not been convicted</a> of any war crimes. Potae perceives the treatment of Roberts-Smith as a case of double standards. Additionally, Poate asserted that the responsibility for any wrongdoing committed by the SAS in Afghanistan lies with others in the Australian Defence Force (ADF). By acknowledging the collective accountability within the organisation, Poate has suggested a wider perspective on the matter. Image credit: Getty

Legal

6 ways to be more supportive to those closest to you

Susan Krauss Whitbourne is a professor of Psychology and Brain Sciences at the University of Massachusetts Amherst. She writes the Fulfilment at Any Age blog for Psychology Today. During difficult periods of life, such as experiencing a tragic loss or sudden break-up, those you care about need you to be there for them. At other times, your loved ones may not need help, but at least would like some support and encouragement. It’s well known that receiving social support is one of the best and most effective ways to cope with stress. People who perceive themselves to be supported are also most likely to be happier, and may even live longer than those who don’t. New research on social support for parents of autistic children shows just how you can be the person on whom your loved ones can most rely. The ageing parents of adult children with autism spectrum disorders (ASD) undoubtedly face major challenges in their daily life and, according to this new research, benefit tremendously from the type of social support that friends and loved ones can provide. Christine Marsack, in the School of Social Work at Eastern Michigan University, teamed up with Preethy Samuel of Wayne State University (2017), to investigate the role of social support in mediating the amount of perceived burden and quality of life. As the authors point out, caregiving research on adult children and their ageing parents has typically focused on predicting burden in the children. There is far less known about what happens to ageing parents when it’s the children themselves who are in need of caregiving. The Michigan team based their work on the cognitive model of stress and coping, in which it’s the appraisal of an event as stressful that leads it to have a negative impact on the individual. In the case of parents of children with ASD, after coping with the challenge of receiving the diagnosis itself, their next step is to come “to grips with the condition and obtain access to support services to assist with caregiving” (p. 2379). The question that Marsack and Samuel investigated was whether formal or informal social support would have ameliorating effects on parental stress. Using a sample of 320 parents aged 50 and older, the majority of whom were under 70 years of age, the research team administered an online survey inquiring about psychological quality of life, perception of caregiving burden, contact with formal support agencies, and perceived degree of informal social support. Formal supports were used heavily by sample members, including psychiatric, financial, counselling, and adult day care, for example. Even the relatively wide range of opportunities to get help in this way was not enough to stave off the effects of perceived burden on parental mental health outcomes. Instead, it was their answers to a six-item questionnaire of informal support that proved to be key in reducing their perceived stress. The questionnaire used by Marsack and Samuel was one developed for use in assessing perceived availability of social support by coronary heart disease patients that has been widely adapted to other situations. It’s from this measure, known as the Enhancing Recovery in Coronary Heart Disease (ENRICHD) Social Support Index (ESSI), that we can now look to see how you can support people coping with challenges in their own lives right now: 1. Be available to listen. The ESSI asks whether there is someone who will be available to listen when needed. This means that you provide a sounding board when the person who needs your support approaches you. It doesn’t mean that you provide help regardless of whether you’re being asked for it. Let the person you care about know that you’re willing to listen, uncritically, when the situation demands it. 2. Be available with advice. When you are approached for help, providing advice can prove to be very supportive. Again, providing unsolicited advice isn’t perceived as particularly supportive, but being ready for it when asked will help ensure that your advice hits a receptive audience. 3. Show love and affection. Without providing anything in the way of objective support, it’s often enough just to know that someone cares to help get the stressed individual through tough times. The love and affection could be of the face-to-face form, and it's probably best when it is, but it can also come in the form of virtual cheers. 4. Help out every now and then with daily chores or by running errands. This is something you need to be able to do in person, so if you live some distance away from the individual you would like to support, it may mean that you take a trip there every few months to do some of the heavy lifting around the house, or just help with some on-site logistics. 5. Support the individual during the decision-making process. The person you care about may have to come up with plans that require more than just a sounding board or advice. Being patiently willing to go through the steps required to solve the problem can give the person you care about a more balanced perspective than would be possible if he or she were making this decision alone. 6. Be a person who the person you care about can trust and confide in. The ESSI inquires about being actually present, but if this isn’t feasible, that quality of being trustworthy seems to be key. Caring for an adult child with ASD may have led some of the parents to wish they could talk about their frustrations, perhaps even about those they felt toward their spouse, with someone outside the relationship. Worrying that the person they told might violate that trust would only add to the stress of their situation. You might think it’s enough for the person you care about to sign up for an established support network or to be able to receive financial or emergency assistance. The Marsack and Samuel study shows that the quality of the friendship, trust, and sensitivity you provide that can make an even greater difference. There’s no way to avoid all of the stressful situations that life can present, whether through family situations, work problems, or emergencies. Fulfillment in our relationships involves, as this study shows, that willingness to give the support that will make the most difference in helping those we care about. Written by Susan Krauss Whitbourne. Republished with permission of <a href="https://www.psychologytoday.com/files/attachments/4141/the-neuroscience-joyful-education-judy-willis-md.pdf" target="_blank" rel="noopener">Psychology Today</a>. Images: Getty

Relationships

“We can be better”: Support flows for outgoing ABC host Stan Grant

Australians have banded together in support of veteran journalist Stan Grant, flocking to social media to rally behind the resigning Q+A host after his final show at the helm. Grant’s final panel discussion saw the likes of Labor member Michelle Ananda-Rajah, Liberal member Zoe McKenzie, Independent Senators David Pocock and Tammy Tyrrell, and Greens member Griffith Max Chandler-Mather. The panel of first-term parliamentarians were there to review the Albanese government’s initial year in charge following their federal election win. It marked Grant’s final discussion in the wake of his decision to step back from the show, an announcement that had come following the host’s experiences with racial abuse. The first audience question of the session cut right to the chase, with one member - Anaru August - raising the matter of the abuse directed at Grant. “I have been disgusted by the hatred and abuse that has been fired at Stan Grant because of his colour and the articulation of his professional essence,” August said, before asking the panel “what needs to happen to stop hate speech?" The question drew immediate praise across social media, from both fans of Grant and the show, to Indigenous advocates, and his colleagues at the ABC. It wasn’t the first show of support from the latter, either, with a group of hundreds gathering outside the ABC’s Sydney headquarters that same day to spread the message that “enough for enough”, and that they stood with Stan. "The line in the sand is here, and we will not tolerate our staff being subjected to racial abuse, or any form of abuse. It must stop," ABC News Director Justin Stevens said of the move. "I would say, other sections of the media that play a part in facilitating, encouraging, or drawing attention to this ... need to take a really good hard look at themselves and the role they play. "We all stand with Stan. The abuse he copped is abhorrent and egregious and needs to stop. I'm incredibly sorry that he felt let down by our organisation, that we could have done better by him in defending him. We will do all we can to make up for it from this moment. "It's important we create a safe space for Indigenous and diverse journalists." It was a message continued in feedback over the episode, with not-for-profit inclusivity advocacy group Media Diversity Australia noting that Grant was “One of Media Diversity Australia's earliest and most high-profile supporters … A mentor to countless young reporters, especially Blak reporters … Stan Grant is a tireless veteran journalist that we admire, support, and respect” along with the hashtag “#IStandWithStan”. <blockquote class="twitter-tweet"> 📣 One of Media Diversity Australia's earliest and most high-profile supporters. 📣 A mentor to countless young reporters, especially Blak reporters. 📣 Stan Grant is a tireless veteran journalist that we admire, support, and respect.<a href="https://twitter.com/hashtag/IStandWithStan?src=hash&ref_src=twsrc%5Etfw">#IStandWithStan</a> <a href="https://t.co/rPUSEZ7AfN">https://t.co/rPUSEZ7AfN</a> — Media Diversity AU (@MediaDiverseAU) <a href="https://twitter.com/MediaDiverseAU/status/1660614419859259394?ref_src=twsrc%5Etfw">May 22, 2023</a></blockquote> It was a message that continued through the flood of tweets, with Seven News reporter Christie Cooper writing that racism, and “personal attacks on journalists”, were not okay. “#IStandWithStan,” she said, “and I’m so sorry Stan Grant has been so hurt by racial commentary, both in and out of the media, that it’s forced him to walk away. It’s 2023, it’s not good enough.” “Solidarity to the ABC journalists standing in support of their colleague Stan Grant and to all journalists who face racists and racism for doing their job,” one supporter added. “Look at the replies to their tweets. It's not the exception, it is the rule. “Australians need to reckon with our racism.” As Grant himself said when closing his final episode, “to those who have abused me and my family, I would just say - if your aim was to hurt me, well, you’ve succeeded. "I'm sorry. I'm sorry that I must have given you so much cause to hate me … I will get back up. And you can come at me again, and I will meet you with the love of my people. "My people can teach the world to love." It was a moment that resonated with viewers, with one taking to social media to share that ”history will remember this moment. A moment when Stan Grant, his passion as palpable as his pain, spoke poignant truths to Australia & bravely faced his racism with power, love & grace. Solidarity.” <blockquote class="twitter-tweet"> "Sometimes, strength is knowing when to say stop." History will remember this moment. A moment when Stan Grant, his passion as palpable as his pain, spoke poignant truths to Australia & bravely faced his racism with power, love & grace. Solidarity. <a href="https://twitter.com/hashtag/QandA?src=hash&ref_src=twsrc%5Etfw">#QandA</a> <a href="https://twitter.com/hashtag/IStandWithStan?src=hash&ref_src=twsrc%5Etfw">#IStandWithStan</a> <a href="https://twitter.com/hashtag/auspol?src=hash&ref_src=twsrc%5Etfw">#auspol</a> <a href="https://t.co/fVjUVvZ9GE">pic.twitter.com/fVjUVvZ9GE</a> — Sahar Adatia (@sahar_adatia) <a href="https://twitter.com/sahar_adatia/status/1660644110770814976?ref_src=twsrc%5Etfw">May 22, 2023</a></blockquote> Images: Q+A / ABC

Ally Langdon breaks down in tears over 13-year-old life support patient

Ally Langdon has broken down in tears while hearing the heart-breaking story of 13-year-old Esra Haynes. The A Current Affair host was joined by Esra’s parents, who shared that their daughter had fallen victim to the dangerous practice of “chroming”. Chroming is when a person inhales solvents or other household chemicals, or aerosol deodorant in Esra’s case, to get high. Esra’s parents, Paul and Andrea, recalled receiving a phone call while their daughter was at a sleepover that changed their lives forever. Over the Easter long weekend, the teenager had gone into cardiac arrest as a call was made to the parents to “Come and get your daughter”. When Andrea arrived at the home, police and paramedics were trying to resuscitate the teen before she was taken to hospital and placed on life support. Just eight days later, Esra passed away. “We thought we would bring her home,” Andrea <a href="https://9now.nine.com.au/a-current-affair/esra-haynes-melbourne-family-open-up-to-ally-langdon-about-tragic-chroming-trend-that-killed-daughter/7b4fcf4e-662b-4a91-8875-76fa4024a31a" target="_blank" rel="noopener">told </a>Langdon. “We still had hope, we did not think the worst,” Paul said. Although her parents were optimistic their little girl would recover, a scan revealed Esra had sustained irreparable brain damage from the dangerous chemicals. The couple were forced to make the painful decision to turn off Esra's life support, and were told to bring in friends and family to say their final goodbyes to the teenager on her deathbed. “She was put onto a bed so we could lay with her,” a heartbroken Paul said. “We cuddled her until the end.” Langdon was visibly overwhelmed by the parents' memories of their final day with their daughter, and teared up alongside them. Andrea and Paul are now dedicating their time to educating young people about the dangers of chroming, which has claimed the lives of more than a dozen young Australians since 2009. <blockquote class="twitter-tweet"> The Haynes family have an unimaginable pain that they'll never recover from. After losing their 13-year-old loved one to a dangerous teen craze, they're now pleading with families across the nation to try and stop anyone else going through the same heartbreak. <a href="https://twitter.com/hashtag/9ACA?src=hash&ref_src=twsrc%5Etfw">#9ACA</a> <a href="https://t.co/zZt1MF6way">pic.twitter.com/zZt1MF6way</a> — A Current Affair (@ACurrentAffair9) <a href="https://twitter.com/ACurrentAffair9/status/1660529859897200640?ref_src=twsrc%5Etfw">May 22, 2023</a></blockquote> “It's unquestionable that this will be our crusade,” Paul told the <a href="https://www.heraldsun.com.au/news/victoria/lilydale-high-school-mourns-loss-of-muchloved-year-7-student-esra-haynes/news-story/4d58fa97b02019475bc830920f32c357" target="_blank" rel="noopener">Herald Sun</a>. “No matter how much you lead a horse to water, anyone can drag them away. It's not something she would have done on her own.” Esra’s family and friends have honoured her memory online, with a flood of tributes from her loved ones recalling her sweet nature. One of her closest friends wrote on Facebook, “There wasn't one day in the past three years you've not made my day by your contagious laugh and gorgeous smile.” “My heart aches and it doesn't feel real knowing I'll have to say goodbye to you Esra. You're so young. You were gone too soon.” Image credits: A Current Affair

Caring

“She wasn’t ready to die”: Son speaks after mum on life support dies during power outage

A grieving son is calling for energy companies to do better after his mum, Gloria Shae, 80, who was on life support, died during a power outage in Dubbo. Gloria was found collapsed on the floor after her oxygen machine switched off during an unexpected blackout at around 5am on May 8. The great-grandmother was woken up out of a deep sleep and was later on found trying to reach for her bottled oxygen. Now, her son Brian Shae, has spoken up about the tragic incident and is calling for energy companies to do better. "She wasn't ready to die," Brian said. "She was full of life and energy, she had planned what she was doing the next day. He said that his mother was a registered life support customer with Origin Energy and Essential Energy. Neither Brian, who lives in the same property, nor Gloria were notified about the outage by their energy providers. "If there was some sort of automated system that sent out a text message, I could have been there in 30 seconds, in under a minute,” the grieving son said. "We could have assisted her, we could have got her oxygen bottles to her. "She does have oxygen bottles in the home but at night you rely on the oxygen generator." Although emergency services arrived about 15 minutes after Gloria was found, and they managed to restart her heart, Brian said that by then she was already brain dead. Gloria’s oxygen machine was rented and didn't come fitted with a back-up battery. Providers currently only need to give customers using life support four days' notice if there is a planned power outage, but in the case of a blackout there is nothing in place to contact their customers or the next of kin. Instead, they urge vulnerable customers to have a back-up battery or generator, to call triple-zero in an emergency, and to “have contingency plans in place”. “But how could an 80-year-old lady who has woken up out of a deep sleep (and) short of breath manage to go out (and) start a generator?” Brian asked. Health Minister Ryan Park described the death as a “terrible tragedy” and said that he has spoken with NSW Health. The Health Minister also encouraged energy companies to find better ways to support vulnerable customers. “If there’s anything that we could have done differently, we will look at that,” he added. An Essential Energy spokesperson has also commented and said that the team had personally contacted the family to extend their "deepest condolences". Images: 9News

Caring

Rare sighting as famous friends step out in support of Michael J. Fox

Michael J. Fox has been joined by a host of his famous friends for a screening of his upcoming documentary. The new documentary explores the Back to the Future star's ongoing battle with Parkinson's disease, and the changes in his life and condition as he gets older. In a show of support for the actor, his celebrity mates joined together for a screening of Still at New York's Lincoln Center. Among the famous faces was actress Meg Ryan, who has not been spotted in public for more than six months. The former rom-com queen, best known for starring roles in films like When Harry Met Sally, Sleepless in Seattle and You’ve Got Mail, lives a more quiet life outside of the spotlight these days. <blockquote class="instagram-media" style="background: #FFF; border: 0; border-radius: 3px; box-shadow: 0 0 1px 0 rgba(0,0,0,0.5),0 1px 10px 0 rgba(0,0,0,0.15); margin: 1px; max-width: 540px; min-width: 326px; padding: 0; width: calc(100% - 2px);" data-instgrm-captioned="" data-instgrm-permalink="https://www.instagram.com/p/Cr1TCUeO8e3/?utm_source=ig_embed&utm_campaign=loading" data-instgrm-version="14"> <div style="padding: 16px;"> <div style="display: flex; flex-direction: row; align-items: center;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 40px; margin-right: 14px; width: 40px;"> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 100px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 60px;"> </div> </div> </div> <div style="padding: 19% 0;"> </div> <div style="display: block; height: 50px; margin: 0 auto 12px; width: 50px;"> </div> <div style="padding-top: 8px;"> <div style="color: #3897f0; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: 550; line-height: 18px;">View this post on Instagram</div> </div> <div style="padding: 12.5% 0;"> </div> <div style="display: flex; flex-direction: row; margin-bottom: 14px; align-items: center;"> <div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(0px) translateY(7px);"> </div> <div style="background-color: #f4f4f4; height: 12.5px; transform: rotate(-45deg) translateX(3px) translateY(1px); width: 12.5px; flex-grow: 0; margin-right: 14px; margin-left: 2px;"> </div> <div style="background-color: #f4f4f4; border-radius: 50%; height: 12.5px; width: 12.5px; transform: translateX(9px) translateY(-18px);"> </div> </div> <div style="margin-left: 8px;"> <div style="background-color: #f4f4f4; border-radius: 50%; flex-grow: 0; height: 20px; width: 20px;"> </div> <div style="width: 0; height: 0; border-top: 2px solid transparent; border-left: 6px solid #f4f4f4; border-bottom: 2px solid transparent; transform: translateX(16px) translateY(-4px) rotate(30deg);"> </div> </div> <div style="margin-left: auto;"> <div style="width: 0px; border-top: 8px solid #F4F4F4; border-right: 8px solid transparent; transform: translateY(16px);"> </div> <div style="background-color: #f4f4f4; flex-grow: 0; height: 12px; width: 16px; transform: translateY(-4px);"> </div> <div style="width: 0; height: 0; border-top: 8px solid #F4F4F4; border-left: 8px solid transparent; transform: translateY(-4px) translateX(8px);"> </div> </div> </div> <div style="display: flex; flex-direction: column; flex-grow: 1; justify-content: center; margin-bottom: 24px;"> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; margin-bottom: 6px; width: 224px;"> </div> <div style="background-color: #f4f4f4; border-radius: 4px; flex-grow: 0; height: 14px; width: 144px;"> </div> </div> <p style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; line-height: 17px; margin-bottom: 0; margin-top: 8px; overflow: hidden; padding: 8px 0 7px; text-align: center; text-overflow: ellipsis; white-space: nowrap;"><a style="color: #c9c8cd; font-family: Arial,sans-serif; font-size: 14px; font-style: normal; font-weight: normal; line-height: 17px; text-decoration: none;" href="https://www.instagram.com/p/Cr1TCUeO8e3/?utm_source=ig_embed&utm_campaign=loading" target="_blank" rel="noopener">A post shared by Tracy Pollan (@tracy.pollan)</a> </div> </blockquote> Ryan hasn’t appeared on screen since the 2015 film Ithaca, which she also directed. However, she is plotting a return to screens later this year, with Ryan starring in and directing the film What Happens Later, which is currently in production. Ryan was among a star-studded group of famous friends supporting J. Fox for the premiere of his doco, with stars including Bill Murray, Denis Leary, Joan Jett, Katie Couric, Mariska Hargitay, and Debra Messing. The screening of the documentary comes after Michael J. Fox <a href="https://oversixty.com.au/health/caring/i-m-not-gonna-be-80-michael-j-fox-s-tragic-admission" target="_blank" rel="noopener">admitted</a> that his battle with the disease is getting more difficult. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“I’m not gonna be 80,” he said in a preview for an upcoming episode of the American current affairs program CBS Sunday Morning, according to Page Six. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">In the clip, Journalist Jane Pauley tells Fox that he has “not squandered” but that his condition will eventually “make the call” as to when it’s his time to go. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“Yeah, it’s, it’s banging on the door,” the actor said. <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">“I’m not gonna lie. It’s gettin’ hard, it’s gettin’ harder. It’s gettin’ tougher. Every day it’s tougher.” <p style="font-size: 16px; box-sizing: border-box; margin-top: 0px; margin-bottom: 1rem; caret-color: #212529; color: #212529; font-family: -apple-system, BlinkMacSystemFont, 'Segoe UI', Roboto, 'Helvetica Neue', Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', 'Segoe UI Symbol', 'Noto Color Emoji';">Image credits: Instagram

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Go Floyd! Huge support for 9-year-old heading to World Dwarf Games

One multi-talented nine-year-old boy from Northern New South Wales is hard at work preparing to represent Australia at the World Dwarf Games. Floyd Morley was born with a form of dwarfism known as achondroplasia - a condition considered to be one of the most common types of short-limbed dwarfism, said to affect approximately one in every 25,000 people. His parents - mother Jade and father Ross - were initially concerned about the challenges their son may face in life, considering everything from potential health conditions to bullying. “At the beginning, we were really worried about all his health concerns,” Jade explained to A Current Affair’s Leila McKinnon, “we were worried that he was going to get picked on, we worried that he was going to get bullied.” However, all the pair truly wanted was for everyone to “celebrate him. He’s the best. He is the best kid.” After too much time spent unable to catch anyone playing tag, or finishing behind his peers in school races, Floyd was left feeling “very frustrated” and “very lonely.” “I didn’t really realise how much it affected him,” Jade admitted. “I didn’t really feel that confident,” Floyd explained, “of playing soccer. I only just took to surfing and handball.” And now, everyone will have the chance to see that Floyd is the best at what he does, with the nine-year-old’s sights set on competing in Germany alongside his friends and teammates. It was a convention for short-statured people that changed things, giving Floyd the opportunity he needed and deserved to find his confidence and joy in what he was doing. "He comes running up to me and he has had this beam of light and he was like, 'Mum, I caught them in tag'," Jade said of that pivotal moment. "No one was slowing down for him to catch them … then he participated in soccer and basketball and he was like, 'oh my God, I'm good at this'." As Floyd’s pride for himself and what he could accomplish grew, and his connection to those who were like him, so did Jade’s - as she had said, “I just want him to be proud and to have that real soul about him that’s like ‘I am proud of who I am’” - with his mother also confessing that it had been a “beautiful experience.” When asked what the upcoming World Dwarf Games meant to him, Floyd wasted no time in declaring that he “felt really proud of myself, I felt really great, I couldn’t wait to meet all these people that were just like me.” The games - which take place every four years in Germany - are run by volunteers, and the Australian team rely on fundraising and donations for their financial assistance. Funds go towards training costs for the athletes, as well as travel to and from the games, and are vital for budding talents such as young Floyd. Short Statured People of Australia set up a fundraiser for the 2023 competition, and their page has seen a flood of love and support for Floyd and his team, after Jade admitted that “we're looking for multiple sponsors or one really big sponsor. We've got shirts, we want to put sponsors' names on them." “You deserve the world Floyd,” wrote one donor. “Keep shining your magic!” “Go Floyd! And all the amazing guys and girls participating in the games,” said another. “What an inspiration you all are. I will be following these games all the way.” “Go Team Australia! Can’t wait for My Sophia to join you in the future!!” said one proud supporter. And as another put it, “way to go Floyd. You’re a true inspiration of your parents.” Images: A Current Affair / Nine

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Rare sighting as famous friends step out in support of Michael J. Fox

Go Floyd! Huge support for 9-year-old heading to World Dwarf Games

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